Of course, tech has moved on a bit since I was in a similar situation. I refused the alarm thingy, too. Thinking it was better to be 'independent' than to be feeling old. Mobile phones were like the size of a housebrick, and would only work if you were close to one of those transmitter gizmos when I first had the need for extra support.I was thinking the same last night. I am not of the generation that is wedded to their phones but if and when I find my mobile I shall just have to staple it to my face. Lol
Of course, tech has moved on a bit since I was in a similar situation. I refused the alarm thingy, too. Thinking it was better to be 'independent' than to be feeling old. Mobile phones were like the size of a housebrick, and would only work if you were close to one of those transmitter gizmos when I first had the need for extra support.
It took some time for me to get used to the idea that being independent did not mean refusing all help, and gadgets, instead independence was recognising my limitations and being in control choosing of what assistance / adaptations / equipment and gadgets I needed.
Hope you can get what you need @Guzzler.
of course you should. BecauseI really shouldn't grumble.
Fair reason to grumble.In my head I am still 24 years old
of course you should. Because
Fair reason to grumble.
When I was first diagnosed with MG the first year or so was quite bad. Wife used to have to get me out of bed and down stairs put me in a chair with remote control for tv and radio and any thing else I may need for the day then go to work and basically thats where I would stay till she got home after work. So I understand what it's like to be immobilized not pleasant.The only aids I have steadfastly refused are a zimmer and an alarm. No point in getting a zimmer now but an alarm may be on the cards. I am really lucky in having a fantastic OT. My house is fully adapted and I have a support network, I really shouldn't grumble. The physical limitations are really a case of coming to terms which I struggle with but at least I do not feel like I am 'giving in' as I once used to. What I rail against still is the limitation on choices. In my head I am still 24 years old and I miss the whole gamut of choice I had back then.
When I was first diagnosed with MG the first year or so was quite bad. Wife used to have to get me out of bed and down stairs put me in a chair with remote control for tv and radio and any thing else I may need for the day then go to work and basically thats where I would stay till she got home after work. So I understand what it's like to be immobilized not pleasant.
It's also when I found out what a true friend is. As when our friends a married couple we had known for many years realized what was going on they would drive round to our house let them selves in pick me up out of the chair and take me to their place just about every day then bring me home later in the day. They made sure I didn't stay on my own in that chair all day.
So with good friends you can get through anything Support from family and friends is so important and I feel blessed to have such friends. That is why this forum when at it's best is so vital friendly action at a distance.
They are in good company then because thats how Einstein came up with a workable version of the theory of relativity by talking it through with himself out loud.Just a thought
If you see a oap/ elderly person muttering about onions and courgettes or "what time did I say that I would meet John " don't think that I(sorry they ) are crazy they are just thinking in an undertone !
Carol
Add it to your dictionary and in future it will or should.Why doesn't predictive text recognise Yorkshire?
Add it to your dictionary and in future it will or should.
Good morning everyone,
No rain or thunder yesterday, but some rain early this morning and now rain clouds floating about above but nothing falling yet. It is very much cooler with a fresh breeze. I hope all those in the areas where there was thunder and lightning are safe. I was chatting on Skype to my friend in Sunderland last night when she had to leave the conversation as the thunder was so loud and the lightning very close - she was frightened.
No storms overnight here but the wind is steadily rising. Funnily enough I love to watch electrical storms and used to like the sound of thunder. Living high up in the Pennines it is the wind that frightens me.
You aren't near Hebden Bridge by any chance are you?
Not far but much higher up.
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