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Diabulimia

Hi , you aren't alone.
It's good that you want to talk about it
I have known people with diabulimia but though I have T1, I have no personal experience with it.
Hopefully you will get some response but meanwhile this a link to a registered UK charity run for people with it,by people who are in recovery. There are links to resources and their facebook pages.
http://www.dwed.org.uk/
 
Hi,

I suffered quite badly with diabulimia when I was younger. Started missing injections and would lose weight as my sugars rose. I then started skipping meals and, before long, was living on not much more than an apple a day.

My diabetes suffered a lot and I am lucky that I didn't end up with a load of long term complications. It room about three years before I had the courage to seek help. The doctor I saw was great with the anorexia but not so much with the diabetes. It was a really hard thing to conquer but I did manage. I was 15 when it all started and even now, 15 years on, I still find it easy to slip back into old habits if I'm not careful.

For me the key has been to have people around me who recognise the early symptoms and give me a good talking to before it goes to far. Getting over the diabulimia was quite possibly one of the hardest things that I have ever had to do. I was in therapy for quite a while and learning to eat normally again was really hard. I'm really glad that I confronted it though and I wouldn't want to go back down that path again.

Find somebody that you can talk to and do whatever you can to beat it. It's not easy but it's well worth it :)

Em x
 
Hi, yes, I had diabulimia when I was about 18 years old. I found that making myself sick purged the guilt from eating the things I shouldn't have. That was a long time ago now, about 33 years ago. In the end I just stopped because I realized that it was the guilt and high expectations of body image that was the main cause of the problem. I went through a time after I was diagnosed that having too much sugar in the blood was bad! I became quite fearful that I would be 'discovered' having eaten 'naughty' food. Its funny but the fear of being caught out with too much sugar actually made my sugar levels go up, especially when I had to visit the old frosty male consultants at hospital.
Anyway, I am rambling on, but I hope you can find help to stop your diabullimia and please don't feel alone. Best of luck. x
 
Hi,

I went through Diabulimia after my Dad passed away when I was 14, I went through it for about 5 years. Until a couple of years ago, I didn't actually have a name for what I had. I skipped injections, binged and purged as a result and had DKA more times than I care to count over those 5 years.

I ended up with maculopathy in both eyes and had laser treatment for those 2 years ago. I've spent 4 years getting better from diabulimia, I'm only just now starting to take regular injections, rather than just one or 2 a day. It takes a while to get better, I wish I did sooner, I might have avoided having complications because of it. Fortunately, my maculopathy is beginning to reverse and I'm hoping to be funded for a pump this year, which will really help with my control.

It always helps talking to people, and you're never alone. As Em said, it's not easy getting yourself out of this, but it's much better than being in it.
 
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