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Diagnosed type 1 in A+E yesterday.

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5
Hi everyone,

This forum was recommended to me as a valuable resource by two different diabetic nurses and a consultant over the past few days so I thought i'd drop by, register and say hello.

Without wishing to bore anybody I thought I'd explain how I got to this point.

Back in early february I'd just turned 40, and suddenly started to feel thirsty at night so I just started to take a drink to bed at night. This carried on for a couple of weeks and gradually I started to get thirstier and thirstier, drinking more and more and consequently finding myself spending more and more time in the bathroom!
This continued for another couple of weeks until it got to the point where my thirst was unquenchable, i was drinking about 5-7 litres of water/squash/sweet tea per day/night. I was also having to go to the bathroom about once an hour in the day and once every two hours at night. I also felt constantly light headed and unable to concentrate. So I made an appointment to see a GP.
The GP listened to my complaints and said he suspected type 1 diabetes, he told me to book an appointment to have a fasting blood test, then make another appointment with a GP for when the results would be back (7-10 days after the blood test). I thought he might measure my BG but he didn't, so I booked a fasting bloodtest which was in 5 days time, then booked an appointment with a GP for 10 days after that.
The fasting blood test was a nightmare, my symptoms were getting worse and worse and after not eating for 12 hours I felt like death warmed up. By this time the thought of waiting another 10 days to see my GP seemed an eternity away but I just tried to carry on as normal.
After about a week after the fasting blood test I received a letter from the doctors surgery telling me to book an 'urgent' appointment to see the nurse at the surgery, which I did, and a couple of days later I was sat with the nurse at the doctors surgery explaining what was going on. She also said she suspected type 1 diabetes and that there were ketones in my sample, so for the first time I had a finger prick BG reading taken. Unfortunately the machine only said 'high' and wouldn't give a reading so I was told to go home, have no sugar or sugary things then go back to the nurse the following morning to try and get a reading.
When I got back to the nurse I felt truly horrible, she took my BG which was 30.2 and tested my sample and found the ketones had increased so I was packed off to A&E.
In hospital I was seen by a doctor, given fluids, then seen by a diabetic nurse (both of whom were amazing) and eventually after giving what felt like my own body weight in blood, and having my finger pricked relentlessly they confirmed I had type 1 diabetes and I was educated in the dark art of injecting insulin, and taking my own blood glucose readings. After what seemed like an age I was shipped off home, thankfully avoiding an overnight stay in hospital.
I attended my first Diabetic Clinic the next morning (this morning), saw the consultant who upped my dose, the diabetic nurse and the dietician, again all of which were fantastic and helped me feel less overwhelmed by it all.
So here I am, still a little overwhelmed, but starting to feel human again, and more than anything else determined to get this under control.

Thanks for reading.
 
Hi Captain!

Sounds like you've been on a bit of a roller coaster lately! Welcome to the forum, there are loads of helpful and supportive people on here to answer any questions you may have.
No doubt others will be along shortly to say Hi.
Sarah [SMILING FACE WITH OPEN MOUTH AND SMILING EYES]


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Hi & welcome to the forum! I've found the forum useful even after having type 1 for about 15 years so I'm sure you will find it useful too!

Gosh sounds like you had quite an ordeal getting diagnosed and I'm surprised you weren't sent straight to A&E when the metre said HIGH! Luckily it sounds like after diagnosis you have had a good lot if doctors and nurses to help you out :-)

It is quite overwhelming at first, but you will learn more and more as you get used to having it and you seem to have a great attitude of getting it under control. Keep the positive attitude and my advice would be to read as much about it as you can and ask lots of questions on here about things you're not sure about.

Good luck!


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Well, bad news that you're here, but good news that you've been diagnosed so quickly. For some, this can take months ! You'll start to feel much better very quickly now ! Ask many questions, read lots on the forum. I'm fairly recently diagnosed type 1 ( Jan 2013 ) and the best advice I can give is gain knowledge ! Lastly, it's not the end of the world ! Good luck and keep us posted ;-)
 
Hey and welcome, this site is awesome, I found it a few years ago but after losing my log in created this new id, everyone here are great, if you have any questions just ask. Its nice to know there's plenty of people in the same boat and can understand how you feel.

Kelly :)

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justjay said:
And I thought my diagnosis was a bit nasty, it was nothing compared to that! Glad they got you squared away in the end mate, can't have been a nice experience.

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The consultant told me this morning they refer to it as a "crash landing" ?!

It wasn't great to be honest, but all that matters now is getting well again!
 
CaptainSensible said:
justjay said:
And I thought my diagnosis was a bit nasty, it was nothing compared to that! Glad they got you squared away in the end mate, can't have been a nice experience.

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The consultant told me this morning they refer to it as a "crash landing" ?!

It wasn't great to be honest, but all that matters now is getting well again!

Certainly right there mate. Strange how Dr's etc can leave things with time in between knowing full well how dangerous it can be though.....

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Hi CaptainSensible and welcome to the forum :)

Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you like as there are always members here who can help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi there CaptainSensible, so pleased that this place was recommended to you, that you found it and posted a message already!! Welcome!! It took me a while to post anything. I was too busy reading all the other comments and info. This place is great, I hope you find it useful. Best wishes.


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Welcome Captain Sensible. Sounds the same as me. GPs told me I was type two for two years until I crashed after sleeping thirty two hours and babbling away like a nutcase! Apparently eating low carb delayed my crash. A& E were great and the diabetic nurses were great. I think all gps should go to some training about late onset type one. They seem to take far too long to diagnose.
How are you finding injections and carb counting?

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