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Type 1 Diabetes
Diagnosed with Type 1 AND NOW ALSO Coeliac Disease!
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<blockquote data-quote="gemma_T1" data-source="post: 1830273" data-attributes="member: 473650"><p>Hi, </p><p></p><p>I’m so sorry that your son has both these horrible auto-immune conditions. I really feel for him and for you too. I am both type 1 (diagnosed at 18) and Coeliac (found out by chance much, much later)... my son was diagnosed as Coeliac aged six, so I can see your situation from both a patient and a mother’s point of view. </p><p></p><p>Unfortunately your son must go cold turkey. There is no other way to stay healthy and avoid other health complications later on. </p><p>You must, if you cannot make your home totally gluten free, have separate utensils for your son and a separate toaster, there is danger lurking in cross contamination. </p><p></p><p>I am very strict with my diet and with eating out and hardly ever do it unless I know the place is guaranteed and I can see how they work and also that they actually know what I am talking about when I say the magic words gluten free/ Coeliac .. </p><p></p><p>My son follows a totally gluten free lifestyle too and has only eaten gluten once in six years since diagnosis and this was by accident last summer and he was very, very sick. </p><p></p><p>At first it is really hard as you still remember vividly the taste of the real foods that you are replacing with the gluten free stuff. However you will by trial and error find things you like more or bear more than others. </p><p></p><p>Tesco, Sainsbury and the Co-op do lovely triple chocolate cookies, my son loves them, although he is not diabetic. Diabetes makes being Coeliac much more complicated for many reasons. The main reason being that the products are full of sugars and usually made with corn or rice products, which make then extremely high GI foods. So being Coeliac is actually much harder for us diabetics .. but I suppose you could give him the biscuits when his blood sugar is low. </p><p></p><p>Also Sainsburys gluten free bread is fine for toast as is Warburtons. There are also wraps made by BFree which are wheat and gluten free. </p><p></p><p>Nairn’s make gluten free porridge and muesli guaranteed. Available from Sainsbury and Tesco. </p><p></p><p>N.B. Not all oats are guaranteed gluten free </p><p></p><p>Findus or Birds Eye make gluten free fish fingers if he likes that sort of thing. </p><p></p><p>Also be aware that things like sausages have wheat in them ... you will need to read the labels ever so carefully as it’s a minefield. Things you would never associate with gluten have it... it’s everywhere.. </p><p></p><p>We are lucky in that we live 3O mins away from a gluten free bakery. But if you check online you may be able to find a gluten free bakery near you. </p><p></p><p>I don’t know where you live, but if your son likes to eat fish and chips there are some fish and chip shops that do gluten free once a week. </p><p></p><p>If you come from the North East you are lucky, as Tynemouth has an award winning fish and chip shop called Longsands, who do an excellent gluten free fish and chips, my son dreams of this place [emoji23] </p><p></p><p>It’s going to be hard for him to deal with having both these conditions at such a young age .. just when you want to do your own thing and also be like everyone else your first experiences of independence, so I hope the hospital will give him and you lots of support. </p><p></p><p>Barilla is my son’s favourite pasta. </p><p></p><p>It is really important that he follows the diet strictly and that everyone around him, school, friends and family know about his conditions so that if he feels tempted they can talk him out of it ... </p><p></p><p>Your son has diabetes and not following the gluten free diet will make his diabetes much harder to control believe me it brings huge swings in glucose levels.</p><p></p><p>Just one further thing he will come to rebel it’s normal I know I also have to take that into consideration when my son gets older .. in fact I just found out 2 weeks ago that my cousin’s son who has also been diagnosed with Coeliac is not following the diet at all and at 18 is drinking beer which is obviously strictly off limits unless it is gluten free. He is ill all the time but he won’t listen to anyone, he just wants to be like everyone else. </p><p></p><p>What I guess I’m trying to say is that the psychological impact of both of these conditions is so huge and must be addressed and I’m really hoping that you have a good team to help you both in this because you will also be finding this really tough, I remember my mum burst into tears and never stopped worrying about me. </p><p></p><p>I send you both my love and best wishes. </p><p></p><p>If you ever need anything and think I could help I will be very happy to answer as best I can. </p><p></p><p>Also there are some lovely recipes online which you can try at home and there are also gluten free food magazines too. I wouldn’t buy the Coeliac approved cookery books, I have two and I have never made anything from them. </p><p></p><p>Coeliac diagnosis means we mums have no choice but to get creative in the kitchen!! [emoji6]</p><p></p><p>Good luck <img class="smilie smilie--emoji" loading="lazy" alt="☘️" title="Shamrock :shamrock:" src="https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/2618.png" data-shortname=":shamrock:" /></p><p></p><p>Gemma</p></blockquote><p></p>
[QUOTE="gemma_T1, post: 1830273, member: 473650"] Hi, I’m so sorry that your son has both these horrible auto-immune conditions. I really feel for him and for you too. I am both type 1 (diagnosed at 18) and Coeliac (found out by chance much, much later)... my son was diagnosed as Coeliac aged six, so I can see your situation from both a patient and a mother’s point of view. Unfortunately your son must go cold turkey. There is no other way to stay healthy and avoid other health complications later on. You must, if you cannot make your home totally gluten free, have separate utensils for your son and a separate toaster, there is danger lurking in cross contamination. I am very strict with my diet and with eating out and hardly ever do it unless I know the place is guaranteed and I can see how they work and also that they actually know what I am talking about when I say the magic words gluten free/ Coeliac .. My son follows a totally gluten free lifestyle too and has only eaten gluten once in six years since diagnosis and this was by accident last summer and he was very, very sick. At first it is really hard as you still remember vividly the taste of the real foods that you are replacing with the gluten free stuff. However you will by trial and error find things you like more or bear more than others. Tesco, Sainsbury and the Co-op do lovely triple chocolate cookies, my son loves them, although he is not diabetic. Diabetes makes being Coeliac much more complicated for many reasons. The main reason being that the products are full of sugars and usually made with corn or rice products, which make then extremely high GI foods. So being Coeliac is actually much harder for us diabetics .. but I suppose you could give him the biscuits when his blood sugar is low. Also Sainsburys gluten free bread is fine for toast as is Warburtons. There are also wraps made by BFree which are wheat and gluten free. Nairn’s make gluten free porridge and muesli guaranteed. Available from Sainsbury and Tesco. N.B. Not all oats are guaranteed gluten free Findus or Birds Eye make gluten free fish fingers if he likes that sort of thing. Also be aware that things like sausages have wheat in them ... you will need to read the labels ever so carefully as it’s a minefield. Things you would never associate with gluten have it... it’s everywhere.. We are lucky in that we live 3O mins away from a gluten free bakery. But if you check online you may be able to find a gluten free bakery near you. I don’t know where you live, but if your son likes to eat fish and chips there are some fish and chip shops that do gluten free once a week. If you come from the North East you are lucky, as Tynemouth has an award winning fish and chip shop called Longsands, who do an excellent gluten free fish and chips, my son dreams of this place [emoji23] It’s going to be hard for him to deal with having both these conditions at such a young age .. just when you want to do your own thing and also be like everyone else your first experiences of independence, so I hope the hospital will give him and you lots of support. Barilla is my son’s favourite pasta. It is really important that he follows the diet strictly and that everyone around him, school, friends and family know about his conditions so that if he feels tempted they can talk him out of it ... Your son has diabetes and not following the gluten free diet will make his diabetes much harder to control believe me it brings huge swings in glucose levels. Just one further thing he will come to rebel it’s normal I know I also have to take that into consideration when my son gets older .. in fact I just found out 2 weeks ago that my cousin’s son who has also been diagnosed with Coeliac is not following the diet at all and at 18 is drinking beer which is obviously strictly off limits unless it is gluten free. He is ill all the time but he won’t listen to anyone, he just wants to be like everyone else. What I guess I’m trying to say is that the psychological impact of both of these conditions is so huge and must be addressed and I’m really hoping that you have a good team to help you both in this because you will also be finding this really tough, I remember my mum burst into tears and never stopped worrying about me. I send you both my love and best wishes. If you ever need anything and think I could help I will be very happy to answer as best I can. Also there are some lovely recipes online which you can try at home and there are also gluten free food magazines too. I wouldn’t buy the Coeliac approved cookery books, I have two and I have never made anything from them. Coeliac diagnosis means we mums have no choice but to get creative in the kitchen!! [emoji6] Good luck ☘️ Gemma [/QUOTE]
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