diagnosed wrong type

[mistee71]

I was wondering, is there anyone that was diagnosed with the wrong type and how did it effect you :?: Something is nagging at me that i could be type 1 but then if i was i wouldn't be insulin resistant would i ? There is things i've been reading that seems a bit odd and on my my first visit to the DN she had a hospital diabetic specialist with her they mentioned ketones in my urine test when i was admitted to hospital for high sugar levels the week previous. They tested it again there and then and no ketones present. The speed of how it all happened as well seems to be the same as type 1. I had no warnings of diabetes. Everything happened in the space of about 6/7 weeks. I am responding well to type to meds though and everything seems to have cleared up well. I developed psorosis over my legs and scalp. I'd never had it before. ( I know i'm insulin resistant because while i was in hospital they gave me a shot of a slow releasing insulin and it hardly made a dent in the levels. Took it down by 2 points. The gliclizide seem to be doing a great job )

 

[Sanober]

Hi there, you'll see from signature below the different types I was considered! Now I'm Type 1.5 (or T1 slow onset in adulthood).

Did you get any anti-body tests done or c-peptide test? If your c-pep is high this helps to indicate insulin resistance i.e T2 (Pancrease producing more and more as the cells are resistent and glucose is rising). However c-pep low, points to T1 (although in my case it was normal...) The anti-GAD test needs to be done too and if positive is definitely T1.5.

Sometimes some folk can have some insulin resistance as well as insulin deficiency (double Diabetes). Type 1 in adults can present in this way at the start, however over time the insulin producing cells in the Pancreas are destroyed by the immune system and therefore leads to insulin deficiency (no one truly knows what triggers this, genetics, environment, virus seem to be popular theories).

I was never given insulin (well, I will on the 12th Dec) I was put on Gliclazide which didn't make a difference at all. However Gliclazide may prove effective for some at the start and then start to become less so especially if you are Type 1.5. I was told to come off mine, and my A1cs as you'll see below show 2 clear jumps, I do wonder in hindsight if they were basically waiting for the next jump! Which I really did not want!

I've been getting trace Ketones here and there, typically T1s get ketones but so do low carbers as an indication of successful fat burning. However trace Ketones AND feeling ill should be attended to. And definitely moderate and above level ketones should be reported.

Ultimately only the doctors can decide but at least you can question them. I just asked for the anti-GAD test myself in the end and I'm glad I did.

Do be prepared, it may not be a clear cut diagnosis, Diabetes is complex and everyone's different. There are also other Diabetes types, google it and you'll see what I mean.

 

[Unbeliever]

There is no need for anyone to worry abiut this, I will put you in tpoch with the diabetes nurse in my practice.
When I was first diagnosed I was told that it would be very difficult to test me for tyope for various reasons, There were some issues over my treatment a year or so ago and I mentioned to the nurse that some doubts had been expressed in the past.
She looked at me in amazement abd pronounced very definitely that I was type 2,
I asked her how she was able to be so sure hoping to hear some new definitive information.
" Because it says so on your file " was the reply.
So that's it then. Just think of all that money I saved not having to pay for tests etc.!

 

[mistee71]

I have never had a blood test. All that happened with me is.. the Doc gave me a prick test on the meter. It said 27.2 and he said i was diabetic. I asked what type and he said 2. He gave me a perscription and told me to make an appointment with the diabetic nurse. My aunty is type 1 and my grandad on the other side is type 2. My grandads was weight related now he has lost a lot of weight he hardly has to take meds. The doc assured me mine wasn't weight related although i could do with losing about a stone. I dont even know why i feel this is important anyway. The meds i'm on now seem to be working so why should i worry? I know i'm sounding sorry for myself but i feel neglected by the doctors and the nurses. I need answers from them but keep getting fobbed off. They make me feel like i'm wasting there time :cry:

 

[AMBrennan]

The main reason to be concerned is that your medication will (eventually) stop working as (hypothetical) misdiagnosed autoimmune diabetes progresses - which would puts you at risk of diabetic ketoacidosis, which you may not be watching out for since DKA is uncommon in type 2 patients. [Ignoring any psychological impact for the moment - failing control despite trying hard and doing everything " right" will, at least, be demotivating]
Also, I it might be advantageous to start insulin therapy early for autoimmune diabetes patients (I think studies suggest that it might preserve some pancreas function for longer)

 

[mistee71]

just spoke to the nurse practitioner saying i have never had a blood test and he said "why do i need one?" He also said i am type 2 because of my age and the meds i'm on wouldn't work if i wasn't T2 and that i wouldn't be insulin resistant if i was T1 or T1.5 He also said that they dont do blood tests for type unless something happens. I have read so many different things about what the DN does and the doctors. Am i supposed to be asking anything else?

 

[Fallenstar]

Hi Mistee
I think I would try not to worry so, if things are working as they are,then stay aware, but leave things for the moment..Why fix what ain't broke!
The stress alone from worrying what category you fall into will not do your overall health any good. Obviously if you start to lose a lot of weight without trying ,and feel very poorly then certainly go and see your HCP this will be Type 1. I know there is LADA ect, but if the Glitz ect is working then look on this as a positive for now and hopefully that will carry on being the only treatment you need . I hope oral meds will keep you healthy without the hassle of insulin.
If you are Type 1 ,you will get very poorly, very quickly, if you are LADA ect it may take longer , but you are getting the knowledge to deal with things and are in "the system" hopefully and are being monitored, so give it a bit more time and if things obviously go down hill go ASAP.
Hope it all works out.

 

[Daibell]

As others have said, if the tablets are having a useful effect you are more likely to be Type 2 than Type 1, but that is not an absolute position. If the tablets get to the point where they are having no effect and the BG keeps rising then you may have one of Type 1 variants (or your Type 2 has just progressed too far). I had to have a 3rd med added i.e. Sitagliptin to keep my BG under control which is one of the options before insulin. At the end of the day knowing the type you have isn't super-critical but keeping your BG measured and under control is. BTW I was diagnosed and classified by my surgery's DB expert GP through the use of a urine stick! I did, however, have the complete set of symptoms.

 

[mistee71]

I was only worrying because of what i had read about starting early if you are type 1. I didn't want to take a chance knowing how serious type 1 can be. The symtoms i had also fitted type 1 but then both types are very similar. My symptoms, extreme itching and swelling down below. Blurry sight, headaches. Constant drinking and it had to be near freezing and never off the loo. In one end out the other. Tierd all the time, fantastic weight loss. ( i had been going to the gym 3/4 times aweek since feb and all i succeeded in doing was bulking out with muscle). I had lost a lot of muscle definition. I also kept feeling sick and had pains in my tummy. All this happened inthe space of 2 months. Diagnosed on the wednesday in hospital on the sunday and ketones found in the urine. Anyway.... the inportant thing for me to think about now is that the meds are working well for me. :clap: I know.... I can be bit of a drama queen :lol: