• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Diagnosed Yesterday [emoji30]

What the other said. Get it all in writing at your appointments, and they will get you started with the beginners tools to manage your blood sugars. They will teach you how to count carbohydrates, when to measure your blood glucose, when and what to inject and so on. Roughly where are you in the country?
 
Welcome @clare-marie108 you have found a website with a lot of well informed members, but we advise from our experience and do not always agree because we are all different. Clearly your diagnosis was a shock, and your readings are certainly high at the moment but please try to be patient with your health team. In the meantime you want to be doing something positive to help yourself so I would suggest keeping a note of your meals and the resulting tests. It was probably the bread in the sandwich you ate which caused your bg to rise, but then I am a type 2 not type 1. Food shopping initially takes time until you establish what you can and can not eat so allow double the time for a couple of weeks and read the labels. Read around the forum when you can and take one step at a time. When you have your appointment have some questions ready and make a note of the answers. Good luck.
 
Phoenix55 said:
Welcome @clare-marie108 you have found a website with a lot of well informed members, but we advise from our experience and do not always agree because we are all different. Clearly your diagnosis was a shock, and your readings are certainly high at the moment but please try to be patient with your health team. In the meantime you want to be doing something positive to help yourself so I would suggest keeping a note of your meals and the resulting tests. It was probably the bread in the sandwich you ate which caused your bg to rise, but then I am a type 2 not type 1. Food shopping initially takes time until you establish what you can and can not eat so allow double the time for a couple of weeks and read the labels. Read around the forum when you can and take one step at a time. When you have your appointment have some questions ready and make a note of the answers. Good luck.
Click to expand...
 
Thank u, it’s a comfort being able to ask questions on here! It’s all so overwhelming at the moment
 
clare-marie108 said:
I’m in Essex, so if my reading is high 22.8 should I not be eating carbs?
X
Click to expand...
You need to keep eating basically normally until your appointment on Monday, as you are on a fixed dose of insulin. If you cut carbs out now, you’ll end up too low. Maybe don’t have anything too sugary until then.

So hang in there until then without changing your food too drastically xxx
 
Mel dCP said:
You need to keep eating basically normally until your appointment on Monday, as you are on a fixed dose of insulin. If you cut carbs out now, you’ll end up too low. Maybe don’t have anything too sugary until then.

So hang in there until then without changing your food too drastically xxx
Click to expand...
 
There are no silly questions. Other type 1 people will give you the best advice. Take a deep breath and try to stay calm. Other people have lived with the condition for years and if they can you can too.
 
Hi clare-marie. I was diagnosed type 1 last Aug at the age of 43, so I know what you're going through! Don't worry too much about your glucose levels until you've seen the diabetes team. They will prescribe something like novorapid for you to take alongside meals which will help get the figures under control in time.
I eat what I want and take enough novorapid to cov er the meal. The only thing I've found I really can't deal with any longer are high sugar drinks and pasta. I still eat chocolate and carbs.
It'll take a while for your body to normalize to lower sugar levels and sometimes eyesight can go blurry when sugar levels drop - the nurses forgot to mention that and it was the worst side effect.
Post on here if you need advice. Lots of friendly, supportive people.
 
Obviously everything I say will be wrong, but personally I was diagnosed on 12 september last year and I did not let them get away with this stupid fixed doses thing, I was desperate to fix the whole thing as soon as I could and I could not have lived with it, I got them to explain how the ratios work and it was not very complicated. It doesn't work very well even then but I would not put up with what you are putting up with.

If I say much more some mod will tell me off but just prepare to be told to do things that are impossible, and then they will tell you it's OK if you don't do them. It is totally confusing, I now have absolutely zero trust in doctors who seem to contradict each other all the time. If you can be ready for anything at all, be ready for the fact that it just does not make sense, and they will try to scare you to death to somehow make it make sense.
 
Nothing wrong with what you did there @NoKindOfSusie - I also had my DSN explain the basics ASAP after diagnosis so I could come off the fixed doses and start figuring out the correct ratios for me. Only thing is it sounds like the OP of this thread hasn't been put straight on a basal/bolus regime which won't give them as much flexibility.

I'm surprised if Type 1 is suspected that they haven't as I believe it's been in the NICE guidelines for the last couple of years to start Type 1s on basal/bolus.
 
Circuspony said:
Hi clare-marie. I was diagnosed type 1 last Aug at the age of 43, so I know what you're going through! Don't worry too much about your glucose levels until you've seen the diabetes team. They will prescribe something like novorapid for you to take alongside meals which will help get the figures under control in time.
I eat what I want and take enough novorapid to cov er the meal. The only thing I've found I really can't deal with any longer are high sugar drinks and pasta. I still eat chocolate and carbs.
It'll take a while for your body to normalize to lower sugar levels and sometimes eyesight can go blurry when sugar levels drop - the nurses forgot to mention that and it was the worst side effect.
Post on here if you need advice. Lots of friendly, supportive people.
Click to expand...
 
Hi and Thankyou Circuspony

I think it’s going to take me a while to get my head around all these do’s and don’t’s and with what I have been reading I need to find my “normal”
This forum has been such a help, I’ve literally got advice from every message I’ve had which has been such a comfort. I have great support from husband, family and friends but they can’t answer all my questions.
The diabetic nurse did say about the blurry eyes, once I go to my 1st appointment on Monday and the nurses look at my levels will they adjust it there and then or does a dr have to do that?

Thanks again
 
NoKindOfSusie said:
Obviously everything I say will be wrong, but personally I was diagnosed on 12 september last year and I did not let them get away with this stupid fixed doses thing, I was desperate to fix the whole thing as soon as I could and I could not have lived with it, I got them to explain how the ratios work and it was not very complicated. It doesn't work very well even then but I would not put up with what you are putting up with.

If I say much more some mod will tell me off but just prepare to be told to do things that are impossible, and then they will tell you it's OK if you don't do them. It is totally confusing, I now have absolutely zero trust in doctors who seem to contradict each other all the time. If you can be ready for anything at all, be ready for the fact that it just does not make sense, and they will try to scare you to death to somehow make it make sense.
Click to expand...
 
Hi NoKindOfSusie

I hate contradicting dr’s, all this is confusing enough!!!!

Do you think I should get them to change the insulin at my Mondays appointment? Will they just do that?

Yesterday was just day 1 and I noticed that my levels started going down in the morning but then hit 22.8 again last night! At what level does it get to before I need to go to hospital?

Thanks again x
 
db89 said:
Nothing wrong with what you did there @NoKindOfSusie - I also had my DSN explain the basics ASAP after diagnosis so I could come off the fixed doses and start figuring out the correct ratios for me. Only thing is it sounds like the OP of this thread hasn't been put straight on a basal/bolus regime which won't give them as much flexibility.

I'm surprised if Type 1 is suspected that they haven't as I believe it's been in the NICE guidelines for the last couple of years to start Type 1s on basal/bolus.
Click to expand...
 
Hi db89

I’m going to speak to nurses at my Mondays appointment, I feel like the 2 injections (1 morning, 1 night) is not enough, I feel like I need 1 during the day? My levels were just increasing throughout the day until I took the Novomix before dinner and it’s come down to 17.2 by bedtime from 22.8

Thanks for taking the time to message
 
clare-marie108 said:
Hi NoKindOfSusie

I hate contradicting dr’s, all this is confusing enough!!!!

Do you think I should get them to change the insulin at my Mondays appointment? Will they just do that?

Yesterday was just day 1 and I noticed that my levels started going down in the morning but then hit 22.8 again last night! At what level does it get to before I need to go to hospital?

Thanks again x
Click to expand...

With respect, there are MANY more T1s on here who really know their stuff. Tagged in but one. Wait for them .... @Jaylee ??
 
Hi Clare-marie108. It is indeed early days. Within a month you will feel more confident.
However the medical profession seem to hedge their bets with a type 1 diagnosis when the patient is above 20. I was 54, I discovered that late type 1 diagnosis is quite common. Too many GPS default to a type 2 diagnosis. Luckily for me, on hospital admittance the on call consultant was the diabetes consultant. He had me in his clinic first thing next day and my basal/bolus regime started immediately.
When you go to the hospital on Monday they should get you on the basal/bolus regime. This will sort those high numbers out. Until then there is not much that you can do about big rises after eating. Try and relax a bit and read as much as possible.
Everybody manages their diabetes in ways suitable for them. Some eat very few carbs, some moderate carbs and others eat what they want. All are fine. The insulin is there to aid us. You will find your own way in time.
Good luck on Monday!
 
Back
Top