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Did anyone else take a back step after the diabetic nurse??

Discussion in 'Newly Diagnosed' started by MissMac, Aug 2, 2016.

  1. MissMac

    MissMac · Well-Known Member

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    From what I have been watching it depends on what type of lipids you are high in as some are good and others not x
     
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  2. MissMac

    MissMac · Well-Known Member

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    That's gonna be my plan from here on now as am not bothering with her again for sure! Just got the "information" she handed to me and the list of food to eat OH HALLO CARBS! I feel like taking on the NHS with this utter rubbish at the moment but instead have decided to just take me on and have spent most the afternoon writing out foods I have found I like and the recipes so I at least can start geting some decent meals in as they have been seriously lacking! Though just been most naughty and tried half of one of those Lidl high protein rolls with some herb cream cheese...nearest thing to bread in nearly 2 weeks but I'm not testing at the mo as need to get a meter so what the hell! It's a one off and I know they are low in carbs even if I am trying to knock out grains all together (done well on that so far but then again..meals have been pants lol). I'm back in the room and back on my game and sticking several middle fingers up to yesterday's experience...tonight when the other half is home I plan on burning the useless information she bestowed upon me! x
     
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  3. jane67

    jane67 · Member

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    It's horrible that you have had this experience but I have to say the diabetic nursing service in Southend on Sea are fantastic. So may be next time you'll get one of the better nurses. Chin up its not all doom and gloom at least you had done your research x
     
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  4. MissMac

    MissMac · Well-Known Member

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    Considering she was the lead nurse for the practice I don't hold much hope in honesty but also, today I don't care! Looks like I need to move back down south then!! xxx
     
  5. Vettriano

    Vettriano Type 2 · Newbie

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    I am so glad it's not just me having this experience. I am newly diagnosed and my first appointment with my DN was pointless. I left feeling more confused than when I arrived, she told me conflicting advice to the handouts she gave me. I was also informed that there are education courses available but they don't send everyone and she would check with the doctor to see if I needed to go, no urine sample tested. She seemed really focused on how my test results were so high for someone of my age. Frustrated doesn't begin to describe it.

    My saving grace is my sister who is diabetic also and a district nurse manager so is very knowledge on both fronts, her medical experience where she lives has been completely different to mine and she tells me the care I should be getting.
     
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  6. ck18

    ck18 Type 1 · Active Member

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    Have had 2 meetings with GPs DSN since being diagnosed as T1 2 years ago and had district nurses calling to house daily for 11 weeks just after diagnosis. District nurses said my blood sugar readings are excellent! 1st GP DSN meeting - I knew more than her but my blood sugar readings were excellent! Hospital specialist said the same. 2nd one - went through informing DVLA (already done a year before!), told me my blood sugar readings were excellent, but told me GP DSNs can't do anything for me as I'm under the hospital Diabetc specialist and their DSNs and GP DSNs specialise in T2, not T1. My GP reckons he's more experienced than the hospital specialist! Funny thing was - I saw same hospital diabetic specialist a month later, my bs figures were roughly the same and he told me off because my blood sugar levels were much too low as I was taking too much insulin - I've only ever been told how much to take by various DSNs and have not been told how it work it out myself - just advised to use trial & error. TheGP DSNs say I should have been on a course within weeks if being diagnosed, although I was laid up and housebound for 12 weeks at the time after the hospital accidentally punctured my lung while trying to drain my spleen. GP DSNs can't refer me for any courses as only the hospital DSNs can do that - they've advised me they've only just restarted the courses, after. 5 years gap, and it's for those having major problems with their levels and mine are fairly balanced. Am waiting for my next appt with hospital specialist next month to see how long I have to wait to see a specialist as having problem with veins in both legs and can hardly walk without pain - going to ask for private referral if queue too long! One team doesn't really seem to understand what the other does!
     
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  7. Hollieandethan

    Hollieandethan Type 1 · Member

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    Eat fewer eggs? Do you find eggs keeps your blood sugar well controlled and weight down?

    Would love to know I love eggs so if this happens then I'd eat eggs a lot. Lol.
     
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  8. Paulgrayston

    Paulgrayston · Active Member

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    I have one nurse at local surgery and one at hospital. both tell me totally different from the other. I get more information from speaking to other diebetics. waste of time these nurses!
     
  9. Sue H

    Sue H Type 2 · Member

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    wow that is a good HbA1c i was concerned mine was too low at 35 down from 90 ...thankfully my DN is great (y)
     
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  10. eddie1968

    eddie1968 Type 2 · Well-Known Member

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    I'll redress the balance here, all DSN's I see at my local hospital diabetic unit are always cheery, don't treat you like a five year old and never moan at me. They are always showering me with meters, bags, new insulin pens, pen cases and don't need to ask and spares/replacements replaced pronto. Any NHS person who does my nut in gets it back - I'm very assertive from the bat of meeting any staff and they know I don't suffer fools gladly. I am however a gentle and polite person but I have my limits. :)
     
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  11. Zoeleanne

    Zoeleanne Type 2 · Newbie

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    I only been twice to diabetic nurse since been diagnosed type 2 diabetic and each time I've come away more confused and feeling down
     
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  12. Oggykev

    Oggykev Type 2 · Member

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    Chin up they are not all the same, the message is slowly getting through.
    My dn started off giving me the nhs company line 6months ago I educated her she reads the forum and has changed into a complete star.
    Last check up acouple of days ago she agreed that low carbing was the best thing for me so I told her I was checking bg levels daily and showed her the meter.
    She then told me that there had been a problem with the strips I was using, accuchek aviva and they were being superceded. Then to my complete surprise she handed me a new accuchek performa meter and strips told me I was doing well and to come back in 6months to see her.
    So it is changing keep in there and do what you want to it really works. Lots of hugs
     
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  13. MissMac

    MissMac · Well-Known Member

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    I am SO sorry that you are having to deal with this as well and having to rely on family...this forum and the members are a MIRACLE workers, their wealth of support and knowledge and, as I have said before, patience is out of this world. You might still be in the place I was when first diagnosed and not be able to take it all on board...do I what did...save everything even if you cannot read it at that moment and then when you can, you go back and it feels less overwhelming. In the meantime...we're all here xx
     
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  14. MissMac

    MissMac · Well-Known Member

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    It's wrong...it's SO wrong...as we know I am a nurse and if I thought I had ever given the wrong info. even through no fault of my own I would hang my head in shame..it's just awful x
     
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  15. MissMac

    MissMac · Well-Known Member

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    I had one of those meters but through work so I have just bought my own as was struggling to get anything for the performa and might be leaving the job so would need to hand it back. Most jealous of those who are getting the support they need...thank all that is good in the world for this forum for the rest of us and @eddie1968 i wanna come on your appointments!!! x
     
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  16. eddie1968

    eddie1968 Type 2 · Well-Known Member

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    Lol..all the nurses are sweeties. Congrats to the DSN's in the Greater Glasgow & Clyde Health Board - stars all of them. :)
     
  17. MissMac

    MissMac · Well-Known Member

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    Ahhhh a dear friend of mine, also in the wonderful land of Scot, was telling me the difference in care her son received when he moved.....to Glasgow! Though it was still the same health board....well as long as I can fly back to my mum and sister in deepest darkest Kent...I'm up for moving! LOVE the country and am sure the walking would be further added to..though the dog will not thank me..might have to get her a buggy! xx
     
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  18. Milly R

    Milly R Type 1 · Newbie

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    Sorry to hear you've had such an awful experience. Coincidentally, I just came back from an appointment with my diabetics nurse and was feeling totally discouraged when I came across your post. I was diagnosed in March of this year with Type 1 Diabetes and although I have been doing everything I can since diagnosis to improve my HbA1c and get a handle on blood glucose control it feels like the diabetics nurse knocks me back for ten each time I attend these appointments. I do think a small bit of positivity and encouragement from the medical team would be much more helpful than all this criticism and negativity. Mind you, I live in Ireland so the system might be different, but if I had posted something today, it would pretty much have been word for word what you said. Chin up anyways, don't let it get you down! ;)
     
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  19. smeeagain

    smeeagain Type 2 · Newbie

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  20. MissMac

    MissMac · Well-Known Member

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    The thing I learnt very quickly here is no matter what you are going through someone, somewhere has gone through or felt the same...I have to hold my hands up and say that I never really paid much mind to how someone might feel with a diagnosis of diabetes...probably as I was too busy running about but it's no excuse. I am so sorry you too have felt despondent and like all your fantastic work is not being recognised...this nurse made me feel like no matter what I did, in 3 months they would be firing metformin at me...they haven't met me properly! As for telling me not to walk anywhere bare foot...she can well and truly *post own expletives* x
     
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