Diet control....WHAT?

[Trinkwasser]

I agree, that's quite a collection of diseases and you really need a much higher level of input from your Medical Professionals in order to balance stuff against each other.

Even they may not get it right (a friend's father had heart failure and associated kidney failure and even the London Heart Hospital was making him worse due to the way he reacted to the drugs. When they decided he was going to die anyway they discontinued all medication - and he walked out and lived many more years)

I will guestimate that your bread consumption alone will be driving up your BG and that may well be one factor behind the gout and probably also the thromboses.

Mother had a series of attacks of gout. For her the allopurinol and avoiding the likely triggers seems to be working, but apart from her age one factor appears to have been a combination of felodipine (CCB) and lasix (diuretic) since the former was stopped and the latter replaced with bumetanide she has been much improved. In your case perhaps the diabetes insipidus is having a similar effect to the furosemide, causing a uric acid buildup in the blood.

If your disease is that unique I'd have thought you could probably get referred to some professor who specialises in such things?

 

[Ragnar von Spreuth]

If your disease is that unique I'd have thought you could probably get referred to some professor who specialises in such things?

I WAS. I wrote earlier about the Royal Liverpool hospital.

But when the tell you, "if you move out of country, we will send your medical records to your doctor when you find one there". You can tell them on my authority, they are lying bastards. They WILL not send my doctor the records. And now, because there is no evidence, they just repeat at regular imtervals, "It as all the type 2". I have insisted till blue in the face that I have Insipidus and as I have only had type 2 for 2-3 years, can they explain why from the age of one day old, I drank 4 Liters of water, and since15 or 16, 10 to 20 Liters per day. "Oh it must be the type 2". OR they say, which the Proffessor in Liverpool once sais would happen if I ever got another type, "Because you have type 2, it is virtually impossible to get the values of the Insipidus".
[

Sounds GREAT.

One trouble;

grated cheese, almonds, oat bran, wheat germ, gram flour, oats, all GARUNTEED, give me gout. Today for instance, I ate two eggs, with no additions. Pure egg, and the German equivalent of Flora cooking oil, (Hence I also have to beware of margarine) omelette. Today I am on two crutches, and have to know 20 minutes in advance when I want to go the toilet, because it takes that long to be able to stand, and to get there. (This time in feet and lower back)

It is always a balance. eat and get either gout, or high sugar, or do not eat. Normaly I do not eat. Some weeks two or three times in the week I will eat. Especially if I have an important appointment, I do not eat for two days before, because I dare not risk gout and therefore be not able to go.

AND, to add insult to injury, they will only give me a 40% dissability grade. THAT means according to the dole here, that I must still look for work in my normal occupation. My "normal occupation" is Botswain on fishing trawlwrs (You seen "The most dangerous job in Alaska"? Well we fished Cod, and the ship was MUCH bigger, those are the only differences), Police, and Military police. Last month they sent me for a job as a scaffolder. Because when I got there I was once more on two crutches, the boss, quite rightly, told me where to go. The dole, however have taken €150 per month for three months, out of €430, for "actions not conducive to finding work". Because THEY say, with "ONLY" 40%, I should be able to do that job.