D
debrasue
Guest
I agree with what you say. @Oldvatr, but I didn't intend to generalise when I posted this thread; I was just sharing my own diagnosis experience.Hi @Brunneria I won't copy your rant again, but I agree with it. It makes me sad that HCP bashing is so prevalent in the Forum. Its an easy thing to do, and, yes, there are bad practices and poor staff that could do better. But there are also many who do the best they can, but still evoke ire here,
Many of their antagonists seem to be Newbies, and I remember being similar when I was DX'ed. The problem seems to be that there is no proper introduction process to give the info and support data that a newly diagnosed person requires.
I was a User Representative on the comittee that was formulating the Desmond / Daphne courses. One thing we pushed for was a small booklet similar to the startup advice given by Daisy1 here, that the GP could give to each Newbie, But the NHS shot it down as being too expensive and of being 'one size fits all'. So we still have this sudden brick wall.
This info chasm opens up, and stays as a barrier for possibly all future contacts with HCP's.
If GP's just gave out the details of this website, and forum then this woukd help, but that opens up access to the web, which is not an APPROVED source. My GP practice has a large notice warning against using the NET for info, especially WebMD and Drugs.com
End of MY Rant.
Perhaps part of the reason why the greater number of GP-bashers tend to be Newbies is because - as in my case - this is the first time they have ever encountered a significant medical problem, and when they turn to their trusted medical adviser for support, he/she is found wanting.
I appreciate that GPs deal with a vast number of people every day and 10 minutes is barely enough time to dole out a prescription for hemorrhoids or an antibiotic for a chest infection. But an understanding of the shock and fear that a newly-diagnosed individual may be experiencing, along with a few minutes' basic support and an outline of the options available, would make a dramatic difference to that individual's perception of the condition and determination to fight it. Surely this, in turn, would ultimately benefit the NHS in the long run..