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DLA Higher Rate

Hi IHS
Thank goodness for your mum's sixth sense. Like you my son does not wake up in the night when going low. I checked his bg once and he was 1.8mmol. Thank god I checked on him. Someone I know thought their child was stable overnight but had cgm for a week to help with daytime issues. They discovered that although her bg was fine at bed time she dropped to between 2-3 mmols after midnight and stayed there for hours. Her bg would rise to an acceptable level before she woke up and everyone was non the wiser.
 
Please excuse my ignorance: I was diagnosed with T1 as an adult so never experienced parental management.
I am finding it difficult to understand how the number of times a parent gets up in the night correlates to how much money you are entitled to. What are the extra costs? I ask because the government explains that "Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child".
 
Engineer88 said:
No I wasnt stable overnight but its not something that was even thought of in the early 90's. It did however teach me to get myself up and deal with it and take responcibilty for myself.
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My son is 8 now and if his hypos were infrequent and he woke up when low believe me I would be more than happy to leave him to it! Unfortunately that isn't the case for him and many others with type 1
 



There is an excellent webpage for any of you having trouble with Benefits, whether that be ESA, DLA to PIP or Tribunals it's a brilliant site & well worth signing up to. http://www.benefitsandwork.co.uk/ Hope this helps good luck !
 
This thread is here to provide help to the OP and others in the same situation. We do not know the full details of members posting here, and it's wise to bear in mind that we are all individuals, as are those we care for.

This thread is not the place for discussions on the merits of the benefits system nor for criticism of other members for receiving benefits.
 
Many of you are being horribly judgemental! If the OP is still around after all these replies I believe it's standard to drop it at 14 as most kids at this point are self managed to a degree however if your daughter still needs you to check on her in the night I'm sure you will be able to argue against the decision
 
On another note the amount of parents not testing in the night is astounding, I'm currently checking my 16 month old 3 times a night and will always at least once, must be nice not to have the worry of night time hypos
 
All parents are different, I am pretty sure most parents will be checking overnight until they reach double figures or even if they are happy their levels will stay steady overnight...which is possible, even with the unpredictable growth and hormones...

the worry of night time hypos will always be there, regardless of the number of times you test unfortunately...
 
shivles said:
On another note the amount of parents not testing in the night is astounding, I'm currently checking my 16 month old 3 times a night and will always at least once, must be nice not to have the worry of night time hypos
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I agree Shivles. This week has been bloody awful at night time. I finally got to sleep at 5am after correction after correction trying to get my sons bg down from 17. I feel so guilty he was high all night aswell. Hoping for a better night tonight and some sleep
 
shivles said:
On another note the amount of parents not testing in the night is astounding, I'm currently checking my 16 month old 3 times a night and will always at least once, must be nice not to have the worry of night time hypos
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Many parents of 16 month olds have disturbed nights, even without a recent diagnosis of type 1 diabetes, but for the sake of parent and child, reducing number of night time tests is a wise aim. Comparison with a child who doesn't have the condition is part of the assessment process for DLA. Obviously, frequency of tests needs to increase during periods of illness, but that's not "most of the time", so an end of Higher Rate Care of DLA within a couple of years of diagnosis, or when child is able to test themselves. Of course, this often happens during teenage years, when hormones and rebellion tend to happen.
 
Just a reminder to anyone having trouble that the CAB can help with benefits forms. Also, another reminder that every child is different and their needs may vary
 
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