diva19871987
Well-Known Member
- Messages
- 74
- Location
- Nottingham
shop said:Hi Diva,
Sorry for my late reply too, anyway glad to hear from you. I hope that your appt with the Drs goes ok today. I agree you don't need any more bad stuff to have to deal with. However I think you can see that we are concerned for you and I agree with Carbsrok in saying that the lack of care you have recieved is unacceptable!! We are always here as a supprort and are looking forward to some positive feedback however little it may be. 1 step at a timeIt does seem that the fact that you are not under the hospital had been severely detremental to your care and support! BDEC is a atart and the books that have been recommended! I have had slip ups but isnt that how we learn! Let us know how you get on. We are really behind you
shop said:Hi Diva sorry for the late reply but had probs accessing the site.
No wonder you've been having hypos. I started my endocrine journey with an overactive thyroid. I am pretty sure that would have made you have more hypos as everything speeds up. I was on 15mgs of carbimazole and propranalol aswell to treat it. I bet you've been exhausted!!! I do agree tho that you are probably on too much insulin. I was on medication for my overative thyroid for about a year, then it was ok for a year then came back which is why I had radio iodine treatment. Then went underactive. I was under an endocrinologist at the hosp for thyroid as was told its more tricky than an underctive one. Maybe if you are taken care of by the hosp they will be able to sort both Thyroid and T1. I definately think you need to be under a consultant who will probably give you the care and support that you need. I still think the level of care has been poor as as soon as i was told i had an overactive thyroid I was refered to the hosp straight way...........Hope that you get it all sorted soon. Take care ..
shop said:Hi Diva,
The swelling in the neck ...a goitre. I didn't have it. The bulging eyes.... I didnt have them. My consultant tested me for Graves Disease and he said I didnt have the antibody. My Mother in law didnt have a goitre but did get slightly bulging eyes and has been left with eye problems. She had double vision. She wears special glasses for this. TBH every case is different and there are different severities. I remember my consultant telling me that overactive thyroid is not an exact science. Treatment is also dependant on the individual and thier symptoms. I am aware of 3 Carbimazole, partial or complete removal of the thyroid and radioactive iodine treatment. I had carbimazole on 2 seperate attempts ( over a total of a 2 yr period .) Then radio iodine which I was warned may make me go underactive, which it did. Although once on thyroxine is easier to control. You friend is very ignorant about the condition. My pulse without medication was well over 120. I felt exhausted anxious, and had the most uncontrollable diorreah......I have to go little one woken up will cont later...xxx
shop said:Not at all matey. Im still a lttle confused about that to. I was told that I didnt have the antibody for graves disease but I still had an overactive thyroid. The main thing is that I got treated. Yes the propranalol was my betablocker. Some people can be so ignorant about both diabetes and thyroid. One tip though dont just stop taking the beta blockers without your GP advice on if you need to do it gradually. Just before starting radio iodine my Consultant said that a week before treatment to stp both carbimazole and propranalol. I had a funny turn at work and my gp said I shouldnt have just stopped it like that! It was horrid being overactive. It is much more easy the way I am now. Hope this helps...
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