Do UK paramedics not leave copy of treatment information?

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Forgot to add my latest HBA1C was 4.9 which I am told is far too low for a type 1. What was you lowest HBA1C and did it result from lots of hypos?

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Sid Bonkers- My GP has told me i should run a little higher to try to get the hypo signs back but to be honest the fear of making my complications worse has always put me off. If I see a sugar level of lets say 10 i panic like mad and have loads of insulin. When I think of all the highs I had as a teenager I dread it ever happening again because I wouldnt want to make my complications more severe. At only 25 this probably wouldnt happen but there is always that risk. How long would I have to run my sugar levels higher for? Weeks? Months? YEARS?!! :shock:

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

I am on a wating list for DAFNE since I had my children so hopefully will be soon!

 

[shop]

Re: Do UK paramedics not leave copy of treatment information

Hi diva I think DAFNE will help alot aa it will show you how to adjust you insulin gradually and within limits so you don't get major lows. I had been running them too high, but when I lost weight i was still injecting the amounts for when i was heavier but scared to mess with it. BDEC course has given me the confidence and information to do it properly which I think is what you need. Hope you get on a DAFNE course soon...

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Hi, Shop, I really am hoping I can get on it soon because just getting bit and bobs about what they teach over the internet is not enough at the moment. I was told they teach you things like sick day rules, and what to do when you excercise. Is this correct because it just seems like every think I need right now. I walk to the park with my twins and am hypo when I get there! :? I just need information on how to live a normal life whilst still being under control because at the moment im neither living a normal life or under control. I do beat myself up about it because there its lots of things I would like to do with my children but fear what may happen with my diabetes. All i seem to be doing at the mo is fighting to keep sugars down but not living life as a result. I would absolutely love to start driving and I am probably the only 25 year old who hasnt got a licence so I am desperately hoping DAFNE will change my life, well sort of!

 

[serendipity]

Re: Do UK paramedics not leave copy of treatment information

The compter systems came in about 18 months to 2 years ago to replace PRF's
Patient report forms.
You are entitled to see the report.

 

[iHs]

Re: Do UK paramedics not leave copy of treatment information

Diva

An a1c of 4.9% is DANGEROUSLY VERY LOW for a type 1. Its no wonder that you are having so many hypos. I know that you dont want to make your complications worse but controlling your blood sugar levels the way you are doing it is not good either. Ive been type 1 for 46 years and the vast majority of my a1c levels have all been around 7%. Yes I have had carpal tunnel syndrome which was operated on and yes frozen shoulders which lasted a while and also a touch of background retinopathy but other than that my life with diabetes is quite good. The lowest a1c that I ever got just one time was 6.4% but that also resulted in lots of lows of 2.?mmol and majority of bg levels being 4mmol and 8mmol. I've now got an insulin pump after my consultant gave me a friendly but firm telling off asking me why I was trying to compete with someone who didn't have diabetes.

If you look at BDEC it will give you a good idea on how to go about using correction doses of insulin and also although many people will need an inbetween insulin to carb ratio (like 1.2u to 10g) this can still be worked out by altering the amount of carb that you eat.

Just be well ok

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Diva

An a1c of 4.9% is DANGEROUSLY VERY LOW for a type 1. Its no wonder that you are having so many hypos. I know that you dont want to make your complications worse but controlling your blood sugar levels the way you are doing it is not good either. Ive been type 1 for 46 years and the vast majority of my a1c levels have all been around 7%. Yes I have had carpal tunnel syndrome which was operated on and yes frozen shoulders which lasted a while and also a touch of background retinopathy but other than that my life with diabetes is quite good. The lowest a1c that I ever got just one time was 6.4% but that also resulted in lots of lows of 2.?mmol and majority of bg levels being 4mmol and 8mmol. I've now got an insulin pump after my consultant gave me a friendly but firm telling off asking me why I was trying to compete with someone who didn't have diabetes.

If you look at BDEC it will give you a good idea on how to go about using correction doses of insulin and also although many people will need an inbetween insulin to carb ratio (like 1.2u to 10g) this can still be worked out by altering the amount of carb that you eat.

Just be well ok

Hi, I have been told be my GP it should be higher but I have always thought I was aiming for glucose levels near non diabetics levels and the more close the better? I want to eventually be in control and avoid the hypos but it is such a tight balancing act to follow to prevent diabetes. I must admit Ive had type 1 for 12 years and only when I found out i was pregnant did i really take any care with it. I also had carpel tunnel which was operated on and thank god it hasnt come back! I do hope one day I will be able to control my levels with ease and cut chances of any mre complications without the need for help from others.

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Diva

An a1c of 4.9% is DANGEROUSLY VERY LOW for a type 1. Its no wonder that you are having so many hypos. I know that you dont want to make your complications worse but controlling your blood sugar levels the way you are doing it is not good either. Ive been type 1 for 46 years and the vast majority of my a1c levels have all been around 7%. Yes I have had carpal tunnel syndrome which was operated on and yes frozen shoulders which lasted a while and also a touch of background retinopathy but other than that my life with diabetes is quite good. The lowest a1c that I ever got just one time was 6.4% but that also resulted in lots of lows of 2.?mmol and majority of bg levels being 4mmol and 8mmol. I've now got an insulin pump after my consultant gave me a friendly but firm telling off asking me why I was trying to compete with someone who didn't have diabetes.

If you look at BDEC it will give you a good idea on how to go about using correction doses of insulin and also although many people will need an inbetween insulin to carb ratio (like 1.2u to 10g) this can still be worked out by altering the amount of carb that you eat.

Just be well ok

Hi, I have been told be my GP it should be higher but I have always thought I was aiming for glucose levels near non diabetics levels and the more close the better? I want to eventually be in control and avoid the hypos but it is such a tight balancing act to follow to prevent diabetes complications. I must admit Ive had type 1 for 12 years and only when I found out i was pregnant did i really take any care with it. I also had carpel tunnel which was operated on and thank god it hasnt come back! I do hope one day I will be able to control my levels with ease and cut chances of any mre complications without the need for help from others.

I have had many many hypos where my sugar has gone off the scale of my tester and only shown LO which I have been told is under 1.0. :shock:

 

[iHs]

Re: Do UK paramedics not leave copy of treatment information

Hi

If you look at the NICE criteria for getting an insulin pump, you will easily qualify for one on 3 points, complications, hypos and anxiety over trying to keep your bg levels ok. If you are not under a hospital consultant ask your GP to refer to you one.

Insulin pumps take a while to get used to but most people who use them do say that hypos are a lot less or much easier to manage. Many will work with cgm as that is where the future is heading with pumps.

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Hi

If you look at the NICE criteria for getting an insulin pump, you will easily qualify for one on 3 points, complications, hypos and anxiety over trying to keep your bg levels ok. If you are not under a hospital consultant ask your GP to refer to you one.

Insulin pumps take a while to get used to but most people who use them do say that hypos are a lot less or much easier to manage. Many will work with cgm as that is where the future is heading with pumps.[/quote
I have akways thought the criteria to a pump would be sereious health problms like bliness, If I have considereable time sepending to correct sugars counly i ask for this.

 

[jopar]

Re: Do UK paramedics not leave copy of treatment information

My ambulance service hasn't dispensed with paper yet! As had them out for hubby last Tuesday morning and got the normal paper copy, as to how quick a report gets to his GP couldn't say... As to what his doctors says about hypo's, well as we'll both T1's and tend to see our surgery DSN at the same time I pretty good at dobbing him in, so she's never had to say oh I've seen you had the paramedic's out for an hypo!

A 4.9% HbAc I'm not surprised that you suffer lots of hypo's, your hypo awareness must be pretty well trashed...

The actual non-diabetic range for HbA1c is is anything from just under 4% to 5,7%, 6.5% is given as a good range to be in for the diabetic, because when all our different HbA1c's are plotted on a chart they produce a U shape with 6.5% at the bottom, if then plot complications from hypo awareness through to long term complications there is little to gain from pushing control levels too fair below the 6.5% as not only does hypo's increase, the severity of the hypo, and hypo unawareness is more likely which all impact on quality of life of the diabetic... So it's a kind of balancing act we play...

But for the T1 diabetic the HbA1c is isn't always the best indicator to what sort of control we have, because what ever the figure is we really need to look at day to day control, what sort of hypo's and Highs are being suffered... So it's important to have a standard division to give the range of control... I've got an HbA1c of 5.7% and an SD of 1,2mmol/ml so I've got a pretty tight range of control, but I do have an insulin pump...

Can I ask are you just under a GP for your diabetic treatment or do you also go to a consultant at the hospital?

Because if you are just under your GP care, I think that you should request to be referred to the hospital consultant, as then you can discuss your treatment, what's going on and perhaps discuss whether a insulin pump might be more suitable and more helpful for your control

 

[jopar]

Re: Do UK paramedics not leave copy of treatment information

Diva seen your last post after I posted...

No insulin pumps are just given to those who have serious health problems...

I've got my pump because insulin pens can't deliver the small does or in the manner that I need insulin to be delivered, only a pump can...

I have Dawn P, Evening P, which even splitting my background insulin fails to resolve, I also pretty sensitive to insulin so with a insulin pen that either doses in 0.5 or 1 unit is often means I shot over.. Not good.

 

[CarbsRok]

Re: Do UK paramedics not leave copy of treatment information

Diva,
reading your posts I am shocked The idea of control is a healthy balance. What it boils down to is you have no control. You are a danger to yourself and your children.

Start by testing your basal. Which means skipping meals and testing your blood sugars if you are going hypo then far to much insulin is being given.

http://www.diatribe.us/issues/13/learning-curve.php here is a link to help you out. You wont gain control unless you sort your basal out. The link is aimed at pumpers but works just as well for MDI
BDEC http://www.bdec-e-learning.com/ will teach you carb counting.
As already stated buy yourself the books using insulin and think like a pancreas.
The secret to gaining control is making one change at a time, waiting to see the result then taking further action. You wont get control overnight, Rome wasn't built in a day

As an aside BP also pays a very important role in keeping eye damage at bay not just blood sugar control.

 

[shop]

Re: Do UK paramedics not leave copy of treatment information

Hiya Diva,

Firstly I agree with what Jopar said as a T1 ( for 6 yrs ) I go to the hosp every 6 mnths and even before I found the carb counting BDEC my Dr would go through bg readings and if too many hypos ( I was having nocturnal ones at one point ) she would immediately address it and tell me to reduce insulin by however much. The difference being I now have the tools to make and informed decision and follow the correct proceedure to adress it myself. :clap: Also its never too late and as carbsrok says just take it a bit ata a time but you do need to sort your basal out asap ...............Look on the link that carbsrok put on and go for it...

 

[shop]

Re: Do UK paramedics not leave copy of treatment information

Hey Diva,

Not heard from you for a while, hope you are OK. Hopefully just making the most of the Easter break.

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

Shop-sorry for the late reply. I am seeing my gp tomorrow becasue they pick something up on a blood test, im not sure whats wrong but my gp did not want t apeak on the phone and needed to see me in person. I am very worried something serious may be wrong and I dont think i could take bad news at this moment in time and trying to get my levels right. I will post more when i know excatly what it is. :? I will also ask if i would be eligible for a pump and i am hoping i get the pump to help me control better. I think i need to seriously talk with my gp about the amounts of insulin i am on and try to avoid hypos at the same time. Thank you all for your advice!

 

[diva19871987]

Re: Do UK paramedics not leave copy of treatment information

My ambulance service hasn't dispensed with paper yet! As had them out for hubby last Tuesday morning and got the normal paper copy, as to how quick a report gets to his GP couldn't say... As to what his doctors says about hypo's, well as we'll both T1's and tend to see our surgery DSN at the same time I pretty good at dobbing him in, so she's never had to say oh I've seen you had the paramedic's out for an hypo!

A 4.9% HbAc I'm not surprised that you suffer lots of hypo's, your hypo awareness must be pretty well trashed...

The actual non-diabetic range for HbA1c is is anything from just under 4% to 5,7%, 6.5% is given as a good range to be in for the diabetic, because when all our different HbA1c's are plotted on a chart they produce a U shape with 6.5% at the bottom, if then plot complications from hypo awareness through to long term complications there is little to gain from pushing control levels too fair below the 6.5% as not only does hypo's increase, the severity of the hypo, and hypo unawareness is more likely which all impact on quality of life of the diabetic... So it's a kind of balancing act we play...

But for the T1 diabetic the HbA1c is isn't always the best indicator to what sort of control we have, because what ever the figure is we really need to look at day to day control, what sort of hypo's and Highs are being suffered... So it's important to have a standard division to give the range of control... I've got an HbA1c of 5.7% and an SD of 1,2mmol/ml so I've got a pretty tight range of control, but I do have an insulin pump...

Can I ask are you just under a GP for your diabetic treatment or do you also go to a consultant at the hospital?

Because if you are just under your GP care, I think that you should request to be referred to the hospital consultant, as then you can discuss your treatment, what's going on and perhaps discuss whether a insulin pump might be more suitable and more helpful for your control

I am under my gp surgery not a hospital. There is only 1 doctor that specialises in diabetes at the moment. How would you think being under a hospital for my diabetes would help? Do they have better facilites? Thank you

 

[CarbsRok]

Re: Do UK paramedics not leave copy of treatment information

Shop-sorry for the late reply. I am seeing my gp tomorrow becasue they pick something up on a blood test, im not sure whats wrong but my gp did not want t apeak on the phone and needed to see me in person. I am very worried something serious may be wrong and I dont think i could take bad news at this moment in time and trying to get my levels right. I will post more when i know excatly what it is. :? I will also ask if i would be eligible for a pump and i am hoping i get the pump to help me control better. I think i need to seriously talk with my gp about the amounts of insulin i am on and try to avoid hypos at the same time. Thank you all for your advice!

Hi Diva,
hope things are ok blood test wise for you.
As to a pump I would say not a chance in h*ll until you have the basic understanding on how to use insulin properly. The pump only does what you tell it. As I have already said order the books I told you about and do the bdec course so you can help yourself. Learn to walk before you run

I am under my gp surgery not a hospital. There is only 1 doctor that specialises in diabetes at the moment. How would you think being under a hospital for my diabetes would help? Do they have better facilites? Thank you

With your control or lack of as is the case, your GP is negligent in not transfering you to consultant and DSN care so that you can and should have been educated in diabetes management.
The last I heard there is only one person in the UK who has a pump via a GP, as a norm they come via consultants.
Gp's have very little knowledge regarding diabetes, some have an interest but their education in the subject is probaly no more than a day in 5 years of training. (They just can not have the time to do any more) Practice nurses have half a day's training to gain a certificate and that's it.

Please note I am not having a go at you, just trying to help as I am so frustrated with the lack of care/education you have been given.

 

[shop]

Re: Do UK paramedics not leave copy of treatment information

Hi Diva,

Sorry for my late reply too, anyway glad to hear from you. I hope that your appt with the Drs goes ok today. I agree you don't need any more bad stuff to have to deal with. However I think you can see that we are concerned for you and I agree with Carbsrok in saying that the lack of care you have recieved is unacceptable!! We are always here as a supprort and are looking forward to some positive feedback however little it may be. 1 step at a time It does seem that the fact that you are not under the hospital had been severely detremental to your care and support! BDEC is a atart and the books that have been recommended! I have had slip ups but isnt that how we learn! Let us know how you get on. We are really behind you