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Doctor Refusing to give me insulin prescription, options?

Marsupites

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
Hi,
I should appreciate advice. I have had type 1 for 40 years. I do not get on with my current surgery and do not attend unless I can't help it. They have written to me telling me I have attend a check-up appointment, if not they will refuse to give me a prescription for insulin. They have told me that this is the only way I can get any insulin. Please don't tell me to go to the appointment as that is not an option for me. Are they right or is my only option to change doctor or is there anything else I can do?
 
Why wouldn't you just change doctors if you're not getting on with your current one?
 
Yes, I suppose I should. It was just I wondered if there was anything else I could do as the whole family is with the surgery
 
My regular diabetes care is undertaken by the local hospital diabetes clinic. The GP receives a report on my progress since my last hospital attendance. My diabetic prescriptions are the responsibility of my GP surgery. Once a year I have to attend the GP surgery for a review of my medication. If my diabetic care was not at the hospital clinic, I would be obliged to attend the diabetic clinic at the surgery at least once per year. I believe that is the situation for most of us.
 
Are you under the care of a hospital diabetic team? If so, it would certainly be worth raising it with them.

It seems pretty unacceptable to be threatening to cut off insulin to a type 1. So much so that I wonder if it is simply a prescribing clerk operating on a bit of a tick-box/computer-says-no approach. Unfortunatey, the only way around that is you either going to see or speaking to a doctor at the surgery.

A letter to the practice manager might work - explaining that barring never before seen medical miracle you are not going to be cured & will continue to need insulin to stay alive whether or not you attend the check up.

But realistically, the best option would be to find a doctor you are content to actually have contact with - transfer to a different surgery.

Do you mind me asking why you have such issues with going to the appointment? It will just be a blood test & the standard diabetic checks, checking feet etc, probably with the nurse rather than the doctor.
 
Are they right or is my only option to change doctor or is there anything else I can do?

I'm sure they are right, insulin is a prescription drug and the surgery have every right to know that it's been taken correctly and without issues, therefore they do request regular check-ups or prescription reviews (probably to cover their own back if nothing else).

If you have a issue with a particular Dr ask to see another one, failing that do see if a change in practice is possible.
 
I'm sure they are right, insulin is a prescription drug and the surgery have every right to know that it's been taken correctly and without issues, therefore they do request regular check-ups or prescription reviews (probably to cover their own back if nothing else).

That was my first thought too, but then I thought hang on, they know that a type 1 without insulin could quite quickly deteriorate to DKA so cutting off the repeats would do more harm than continuing without the review. So wouldn't that breach the oath?

I'd be interested to find out the actual answer. @noblehead , as a mod, can you direct a HCP to the thread?
 
That was my first thought too, but then I thought hang on, they know that a type 1 without insulin could quite quickly deteriorate to DKA so cutting off the repeats would do more harm than continuing without the review. So wouldn't that breach the oath?

I'd be interested to find out the actual answer. @noblehead , as a mod, can you direct a HCP to the thread?

The surgery would be negligent if they stopped handing out prescriptions for insulin and perhaps this is more of a threat to get patients to comply, never been in the position to speak from experience, I don't know any HCP's that would come on a forum and give a definite answer @catapillar so you'd have to ask around yourself.
 
The surgery would be negligent if they stopped handing out prescriptions for insulin and perhaps this is more of a threat to get patients to comply, never been in the position to speak from experience, I don't know any HCP's that would come on a forum and give a definite answer @catapillar so you'd have to ask around yourself.

Sorry, thought you might know of "friendly" GPs on the forum! :)

Yeah, my feeling is it is probably more of a threat & they are unlikely to actually cut off the repeats. But, obviously, it's not a theory I have tested, or would want to.
 
Can I ask when you last attended the surgery for a check up?
 
Hi. Your surgery is right and you shouldn't be playing games with them. They have a right to not renew any prescription without you seeing a nurse or GP at a point shown on your prescription. My renewal for all my drugs is typically 6 months but last time it was extended to 1 year as I'm stable.
 
Ok, another longish post from me - I seem to be excelling in them recently. Anyway..

I'm type 2 so not in the same situation regarding insulin, but have severe and at times life threatening asthma, which has landed me on life support in intensive care a few times. For reasons I won't go into, my relationship with all medics broke down - I didn't want to see them, didn't trust them and avoided them - I was bitter at the fact that my control over my body was being taken out of my hands. Basically, my psychological thinking was a bit flawed (still is actually, but not as badly) and I took it to the extreme, avoiding all check ups for asthma, diabetes and all the other stuff they seemed to come up with. I also felt they had let me down badly in the past but that's irrelevant.
I agreed to go on anti-depressant medication, although I hated every second of the consultation. I was told I needed to come in every month, to discuss how I was - and I was having none of that, talk about treating me like an incompetent fool! In my defence, if I had felt worse, I would have gone back, but I didn't feel worse, so I didn't go back. A year down the line, I got a call from the surgery telling me they were withholding my prescription. Not just for the anti-depressants, but my inhalers and medication for my nebuliser too, until I came in and saw them. I was outraged - my inhalers had ****** all to do with anti-depressants and I felt bitter that they would try and blackmail me like this.
My mind was so bitter towards them at this time, I told them to shove it and that I would buy my Ventolin online. My own GP tried to talk to me the next day and calm me down but I'd gone past the point of no return - and I bought my inhalers online.
This refusal to see any medical staff at all, and be non-compliant lasted for the next two years (during which I started to feel very unwell indeed) until the pain that I had been suffering forced me to register with a gp and be seen (I had moved house by then), I was fast tracked and diagnosed with an advanced rare cancer which had spread into surrounding lymph nodes.
And even with this, I STILL struggled to deal with medics, didn't want to deal with them - but had no choice. I mean really no choice, and believe me, I felt trapped, cornered, bitter but I would die in pain without treatment.

I can tolerate dealings with doctors now, I don't like it and avoid it if I can get away with it - but I do it. It's over in half an hour. I loathe scans etc and want to be anywhere but there, but I face it, and it's over. Your doctor (I believe) is within their rights to refuse you medication, even life saving medication, if you refuse to attend, but they would be answerable to a higher authority if they did. What they can do however, is to remove you from their books with a minimal supply of medication to cover you - and this is what may happen with you. I urge you, no matter what your feelings, to put it to one side for half an hour and go. You can make it clear that you don't want to be there and wish to attend as minimally as possible. If you're non-compliant, they probably don't want to see too much of you anyway! I'm not going to nag you, or give you a hard time, I would be a hypocrite. But this action will rebound on you, and you will be the one that suffers for it, they have hundreds, maybe thousands of patients and don't think about you until your name flashes up on their list. Go, get it over with, then it will be done - or switch surgeries. You can't buy insulin online and like it or not, you are reliant on them for medication to keep you alive. Face it, and it will be over soon. You have a family to think of too.

Best wishes.
 
Perhaps ask for a referral to a specialist for the 'check up.' I don't see how they can refuse this? Then your care would be looked after by the hospital and just prescriptions at the GPs. It's probably due to pressure for them to have met targets on a tick-box thing by stating they have checked X, Y and Z.

I had a similar issue with refusal of blood sticks as I was apparently testing too much (testing as per NICE guidelines) but my lovely consultant wrote a strong letter and I've not been refused since.

I think it's always good to see a specialist anyway, you never know when you might need them, even if you are the real specialist with 40 years of experience and knowledge of your individual condition! Good luck
 
The GPs have a performance target based on seeing patients with long term conditions regularly so they should be encouraging you to go - I can't really see this as "encouragement" though!

Even if this issue is resolved I really think you need to change to a different doctor - what if you have another health problem? You need to have a GP that you are happy to go to, otherwise if you need help you will end up having to go to A&E and that's not appropriate use of the service
 
Yes, I suppose I should. It was just I wondered if there was anything else I could do as the whole family is with the surgery

If the whole family are at the surgery, (unsure it you all have the same GP) are they having problems too ? You could ask a family member to go along with you. Or change to another GP at the surgery?
Best wishes RRB
 
Doctors are required to conduct medication reviews at regular intervals.

Unless these reviews are carried out (with the patient's participation) then they are not allowed to continue to prescribe.

At my surgery the computer blocks the production of a new prescription if the review is overdue.
 
I've not been to any of the prescribing checks in two years. Instead I have called the surgery and asked them to review the hospital letters that I know they've been sent. On doing so, they were happy to continue prescribing and seemed quite happy to not have to arrange an appointment. Worth a try if you are under a hospital consultant.
 
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