Type 1 Does anyone else have multiple health problems along with diabetes

[Lucyturner]

Hi everyone,

I am wondering if anyone else has multiple health problems along with diabetes and how you cope.
At age 19 I was diagnosed with premature menopause so I have a lot of problems with my hormones. Luckily I have an amazing sister who donated eggs for me and I have a beautiful daughter through IVF. I got diagnosed type 1 2 years ago. I have since then been diagnosed with left temporal lobe nocturnal epilepsy and non epileptic attack disorder which causes daytime seizures, I have been told I have serious depression. I have to see 4 different doctors,3 different nurses and have regular vitamin b12 injections. I am really struggling to cope is there anyone who can help.

Lucy

 

[Lucyturner]

Also just to add I still cannot get my sugars under control and my last hba1c was around 85 (9) could this be sure to the other health issues.

Lucy

 

[collectingrocks]

Hi Lucy

Thank you for telling us your story...your sister is really, truly amazing!

Whilst I can't help specifically, you will get lots of help and advice from the T1's on this forum. I do have first hand experience however of petit mal epilepsy and really should not be in this world (I had seizures in the swimming pool when I was younger).

Is your HbA1c 85mmol/mol in new money (i.e. 9.9% in old money)? If so, you know this is really high and will put you at risk of serious complications. The only advice I can give you is to get your blood sugar levels down which will in turn reduce the risk of other health issues.

 

[PaulinaB]

Hi Lucy!
Wow, thanks for sharing! I always thought I have a lot of issues (hypo thyroid, type 1, pcos, prone to kidney stones, depression) but reading what you've been through really gives me hope! You're really amazing!

About your question, I've seen around the forum that it's not unusual for people to have multiple health issues along with diabetes.


Wish you all the best!

 

[totsy]

Hi and welcome,
i started off with asthma,then underactive thyroid,depression,anxiety,agoraphobia(not no longer), type 1 diabetes, menieres disease, m.e,fibromyalgia last yr and so far this yr I've athritis...watch this space as im being tested for swallowing/choking probs

 

[Lucyturner]

Hi collectingrocks,
That's right about my hba1c, it is insanely high, I just can't seem to get it down I am still seeing my diabetes specialist nurses and even they seem to run out of ideas.
I had a similar issue with the seizures I fell in front of a bus, they swerved but no-one stopped they just left me there. But hey they probably thought I was drunk.

Thanks everyone for your messages although it's rubbish that we all have these issues at least I don't feel alone.

Lucy

 

[patjenkins1]

Keep positive. I am type 2 and I have ischemic heart disease even though I follow a low day diet. They told me I was unlucky. I also have the only type is COPD not caused by smoking, bronchiectasis , arthritis asthma and I have been treated for high blood pressure for over 30 years and high cholesterol. I have just found out that all if this and the diabetes could have been due to the fact I was very low birth weight at full term . I seems I was destined to be unwell. Look after yourself and I hope you get your seizures under control


Sent from the Diabetes Forum App

 

[patjenkins1]

That should say low fat diet


Sent from the Diabetes Forum App

 

[ok1982]

I have pre diabetes (runs in family dad was type 2 diabetes) , epilepsy (runs in family), hypothyroidism, depression, anxiety, NAFLD, cholecystectomy ( due to Gallstones), raised cholesterol (also runs in the family), carrier of choroideremia( a genetic eye condition that affects males).

 

[Bash_]

Hi everyone,

I am wondering if anyone else has multiple health problems along with diabetes and how you cope.
At age 19 I was diagnosed with premature menopause so I have a lot of problems with my hormones. Luckily I have an amazing sister who donated eggs for me and I have a beautiful daughter through IVF. I got diagnosed type 1 2 years ago. I have since then been diagnosed with left temporal lobe nocturnal epilepsy and non epileptic attack disorder which causes daytime seizures, I have been told I have serious depression. I have to see 4 different doctors,3 different nurses and have regular vitamin b12 injections. I am really struggling to cope is there anyone who can help.

Lucy

Hi Lucy

Can I assume you have the Libre 2 system only from experience it will assist and take the stress out of low and highs every day, but of most benefit at night / during sleep (set to pre hypo and hyper symptoms and you get the heads up before you need to take action. I developed Ceoliac 4 years ago as a long term complication but does have the benefit of teaching me to eat better rather than junk food. Your health and complications can only improve if you take care of the small details as everything then falls back into place over time. Wishing you all the very best for the future.

 

[Antje77]

Hi all, it's perfectly fine to reply to this thread, but keep in mind that the last messages before today were written 9 years ago so there may not be many responses.

It's also worth keeping an eye on the subject, the title specifies it's about type 1.

 

[Mrs Price]

I was born 1965 with epilepsy & Todd’s paralysis due to anoxic brain damage in second stage of labour, since which I have been diagnosed with executive dysfunction, Bells Palsy, Diabetes type 2, Diabetic Neuropathy, Partial deafness in both ears right inner ear damage due to childhood trauma, Ischaemic heart disease, irregular heart beat, Asthma, PTSD. High Blood pressure, Gastric Reflux, NAFLD, Muscle wastage and weakness in left side non stroke related,
A double prolapse affects bladder & bowel, early background retinopathy wear glasses for distance & reading nw showing signs of glaucoma in right eye, lactose and gluten intolerant and broke my right leg falling due to dyspraxia in 2019 so have rod plate and pins in the lower Tibia and Fibia! So far! And I am only 57 in June

 

[TriciaWs]

I have multiple conditions, the congenital ones (ie born with) are refractive amblyopia and dyslexia.
I have complex PTSD, which was diagnosed for years as just depression but finally treatment started in my 60s.
The most recent diagnosis is reflex syncope.
I have 12 items on repeat prescription - one reason I didn't want to add any more when I was diagnosed with T2.
Every added-on condition needs a period of adjustment, and if a condition changes or becomes more of a problem again we need time to adjust.
People talk about it being similar to the grief cycle but we can skip backwards or start again, so more of a maze?

Surprisingly I've added on new voluntary roles since turning 70, with even more requests than I can take on - some days I feel I'm back in full-time work. So now that everyone is used to doing meetings and training online instead of fading into depression, I'm in demand. (I've recently become a safeguarding tutor, running an online training course once a month.)

The first few weeks on a low carb diet were exhausting, but it is just the way I eat now.
On days I know I'll be more exhausted than usual I buy the low carb chicken curries to eat with frozen cauliflower rice and packs of microwaveable green veg or have ready prepped hard-boiled eggs, plus cheese with lettuce.