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Due to start pump therapy.... five days to go!
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<blockquote data-quote="loafhead" data-source="post: 1141077" data-attributes="member: 25824"><p>Hi Rich</p><p></p><p>You have my sympathy. I've had diabetes 25 years and have last week been referred for a pump. The only advice I can give is as the above post, find a good consultant and build a case. My situation if that helps you build a case: I do not fit NICE criteria. I have a hba1c of 5.5 in old money. I am on multi dose injections, I eat whatever I want, I drink booze and have learnt over the years how to correct for that, but last year I grew angry my average was not inline with reality (of daily highs and lows) but my hospital were just happy with what result not the reality.I went to my local hospital and they dismissed my need of a pump (due to NICE and funding) I changed my GP and asked for a referral to a different hospital in a different CCG. I now attend Wythenshawe which I have noticed has a patient first view and not blanket T1 diabetic. I did DAFNE (which I'd never heard of) and have the same hba1c as before but my daily range is now tighter. I bought a LIBRE to do continuous monitoring and used this to document my daily life of unpredictable lows and highs, as I travel a lot for work and eat at irregular intervals and snack, shared this with the DSN that good control doesn't mean an easier life or less worries. She agreed, so gave me some tips and when I met the consultant last week the first thing he said is, I think you tick the nice boxes. So now I have to wait for a pump course(evening) to pick and a further few months (late summer) before I get one but I am looking forward to it. This is a long way of explaining it, but my point is don't get angry, use facts and evidence to support why you need one, can it improve you life, do you get embarrassed injecting in public, do you not change needles because you travel, do you have unpredictable hypos. Make a list and use it. If they say no, find out which hospitals will support you, you can call and speak to them without being a patient and then you are in control of your destiny. Good luck.</p></blockquote><p></p>
[QUOTE="loafhead, post: 1141077, member: 25824"] Hi Rich You have my sympathy. I've had diabetes 25 years and have last week been referred for a pump. The only advice I can give is as the above post, find a good consultant and build a case. My situation if that helps you build a case: I do not fit NICE criteria. I have a hba1c of 5.5 in old money. I am on multi dose injections, I eat whatever I want, I drink booze and have learnt over the years how to correct for that, but last year I grew angry my average was not inline with reality (of daily highs and lows) but my hospital were just happy with what result not the reality.I went to my local hospital and they dismissed my need of a pump (due to NICE and funding) I changed my GP and asked for a referral to a different hospital in a different CCG. I now attend Wythenshawe which I have noticed has a patient first view and not blanket T1 diabetic. I did DAFNE (which I'd never heard of) and have the same hba1c as before but my daily range is now tighter. I bought a LIBRE to do continuous monitoring and used this to document my daily life of unpredictable lows and highs, as I travel a lot for work and eat at irregular intervals and snack, shared this with the DSN that good control doesn't mean an easier life or less worries. She agreed, so gave me some tips and when I met the consultant last week the first thing he said is, I think you tick the nice boxes. So now I have to wait for a pump course(evening) to pick and a further few months (late summer) before I get one but I am looking forward to it. This is a long way of explaining it, but my point is don't get angry, use facts and evidence to support why you need one, can it improve you life, do you get embarrassed injecting in public, do you not change needles because you travel, do you have unpredictable hypos. Make a list and use it. If they say no, find out which hospitals will support you, you can call and speak to them without being a patient and then you are in control of your destiny. Good luck. [/QUOTE]
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