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Due to start pump therapy.... five days to go!

Discussion in 'Insulin Pump Forum' started by Jubblyjo1601, Apr 27, 2016.

  1. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    Hello all,

    I have been a T1 for almost 22 years, diagnosed at 7 years old. I am due to start on an insulin pump on Tuesday after a couple of years of wanting one. I can't quite believe it's finally happening! I am hoping this will be the tool I've needed for a long time to finally get my sugar levels stable. My latest Hba1c is 62 mmol which, believe it or not, is the best reading I have had in years! I also suffer from Dawn Phenomenon. I am hoping that once established on the pump, I can start thinking about having a family.

    I am getting the Medtronic Minimed 640g. Does anyone have any advice for a pump newbie? I have a couple of friends who have different pumps (Animas and Accucheck) and they said it has changed their lives for the better. The nerves are starting to kick in a little now that I am only days away! :confused:

    Any advice will be much appreciated and rewarded with virtual hugs! :happy:

    Thanks in advance,

    Jo
     
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  2. himtoo

    himtoo Type 1 · Well-Known Member
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    Hi Jo
    that is great news !!:) really pleased for you.

    my advice is to keep in constant contact with your DSN -
    over the first few weeks as she will be assisting with rate changes and reviewing settings.
    I spoke with my nurse 2 times a week for the first 4 weeks -- long phone calls reviewing all BG results.

    ( i am thrilled with my 6 months on my pump ) an omnipod !
     
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  3. paulliljeros

    paulliljeros Other · Well-Known Member

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    Hi there, congratulations and good luck in advance! I got my pump a couple of months ago and it has been life changing. I wouldn't go back to MDI for anything!
    Personally, I bought the book "Pumping Insulin" (5th ed.) and read a large chunk before hand as it gave me quite a few things to think about before getting the pump. Whilst by no means a pre-requisite, pairing the pump with continuous or flash Glucose Monitoring is absolutely amazing and well worth consideration, if at all possible.
    I was up to 6 or 7 injections per day, and still can't believe I haven't had a single injection since starting!
     
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    #3 paulliljeros, Apr 27, 2016 at 4:02 PM
    Last edited by a moderator: Apr 27, 2016
  4. CarbsRok

    CarbsRok Type 1 · Well-Known Member

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    Hi Jo good luck,
    do buy the book pumping insulin by John Walsh it can be found on Amazon. Oh and take a pen and note pad when you go for the pump setting up.
     
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  5. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    Thanks so much! Hugs for all!

    Did it feel weird at first having something 'on you' the whole time? I know it's a silly concern to have, it just crossed my mind!

    xx
     
  6. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    I am definitely going to have a look for this book now. Fortunately I work just down the corridor from my Diabetes Team so I am feeling quite comfortable in the knowledge that help is very much at hand should I need it. And available on here from my lovely fellow diabetics! I love this forum :)
     
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  7. Mrsass

    Mrsass Type 1 · Well-Known Member

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    Good luck Jo I have no doubt at all that you will love it!

    I got mine just over 2 years ago and cannot imagine life without it, I won't lie, there can be days when you want to throw it out the **** window but those days are extremely rare!

    I'm with Medtronic and their customer services are spot on if you ever have problems and can't speak to your diabetes team!

    It is very odd at first, personally I felt like i shouldn't move around too much as I imagined I had some kind of giant needle inside of me so didn't dare bend over lol you get used to it in no time.

    make sure the cannula's are suited to you, some people get given a few to try, I didn't and was just given the most popular but mine kinked constantly which ended up in some very high bg readings - hence the wanting to throw it out the window - so ended up changing to the sure t steel cannula's rather than the plastic, but all problems can be solved so don't worry :)
     
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  8. noblehead

    noblehead Type 1 · Guru
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    Well I can concur with your friends there @Jubblyjo1601 :)

    I've been using a pump for the last 14 months and would be reluctant to go back to MDI, you may here that pumps are hard work and this is true to some extent, but from my own experience they are hard work to begin with when you trying to get work out basal rates and such but once you've been on one for a while they are pretty straight forward enough.

    I'd go along with the recommended reading of Pumping Insulin, it's a great book but there's also some good information and advice on insulin pumps in the book Think Like a Pancreas.

    Good luck and hope it all goes well, keep the thread updated on your progress.
     
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  9. CarbsRok

    CarbsRok Type 1 · Well-Known Member

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    I had been on injections for about 42 years before starting to pump and after half a day I kept checking to make sure the pump was still there.
    Do invest in the book though as it's invaluable as your nurses aren't on call 24/7 365 days of the year. :)
     
  10. tim2000s

    tim2000s Type 1 · Expert
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    I get my 640 a week tomorrow. The advice I was given by the DSN was bring a big bag!
     
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  11. Gaz-M

    Gaz-M Type 1 · Well-Known Member

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    good luck @Jubblyjo1601 but doubt you will need it, the first few weeks are test test test but it is worth it
     
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  12. iHs

    iHs · Well-Known Member

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    Take a suitcase lol there's loads of stuff all in boxes
    Call a taxi to get you home
     
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  13. groucho74

    groucho74 Type 1 · Member

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    Hi Jo,
    The book is a must for anyone with a pump. I have problems with the Dawn Phenomenon also (usually getting a HbA1c of 80mmol) within a few months of being on the pump I was down to 50mmol.
    Get the over night basal sorted and you'll be laughing.
    Within a few months you'll wonder how you ever coped without it!
     
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  14. Gaz-M

    Gaz-M Type 1 · Well-Known Member

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    I only got a box which was not that big with everything in :( but I did get a free accu-chek bag hahaha
     
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  15. Medusa41

    Medusa41 Type 1 · Well-Known Member

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    Hi @Jubblyjo1601 - that's great news. I thought it would be weird having it attached to me but only had it 2 weeks & it's been fine. I'm really pleased with it. I have the Accu Chek Insight. Hope all goes well
     
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  16. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    Thank you so much to everyone for your comments! Was anyone given an 'pre pump' advice? Like do I still carry on as normal on Tuesday morning with injecting my levemir etc? Hoping to catch the Nurse at some point today to check too, but not always possible. x
     
  17. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    I look forward to hearing how you get on! We can compare notes! Thanks for the advice re: the big bag! Noone here has told me anything yet!
     
  18. paulliljeros

    paulliljeros Other · Well-Known Member

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    I was sent a preparation pack of "things to bring" on the day ... ketostix, bg testing kit, insulin for filling the pump etc. It depends if you split your basal. If you don't then the standard advice is to take 50% of the dose on the evening before the pump start. If you split, then take normal dose the evening before, then do not take any on the morning HOWEVER please take advice from your DN, as only they can know what the course of action should be!
     
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  19. Jubblyjo1601

    Jubblyjo1601 Type 1 · Well-Known Member

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    Thanks so much! I've sent her an email. Hopefully I will get a reply by Tuesday..... :woot:
     
  20. noblehead

    noblehead Type 1 · Guru
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    Good advice from @paulliljeros above :)

    I had two pre-pump session before the actual starting day, was told to be prepared to stay the whole day but I was only there just over 3 hours and came away around lunch-time with a fully functional pump.

    A little bit of advice, if you have any questions or concerns now then write them all down so that on Tuesday you won't forget to mention them, but whatever you do don't come away unless your happy and confident that you can manage on your own. Good luck.
     
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