education

[muggle666]

hello everyone, i got diagnosed in feb this year as type 1, the consultant i am seeing has stated that i have been diabetic for a number of years and should not have been discharged from the hospital for a previous illness. i have several things wrong with me and have been let down quite badly by the health professionals and this has left me feeling quite angry and frustrated.i have since changed diabetes nurse and this one is very helpful, i have explained that i know very little about the condition and have just been told to keep putting my insulin up, well it went past 300 units of insulin and still didn't work, now on a new one and this appears to be doing something although my sugars are still either in the late 20's or hi most of the time. i have requested as much education and information as possible as its my body and i feel that this is what i need, to be told this is now what you are, there's your insulin, don't eat this or that now get on with it is no good to anyone, but the new one i am seeing hasn't done this and she has said that they need to re-look at how people are treat when they are new to it. since this all started i have now other complications because of being left untreated for so long, i now like so many others have to live with a body that is breaking down all the time and eating away at itself, i worked in the health and care sector for years and never treated the people that i looked after the way that i have been treat. people are not just numbers. i have been explained to that my sugars have to come down very slowly as my body has got used to them being so high that my body could go into shock otherwise, but then am going to need more tests to see the damage that has been done, my heart is now damaged and i have angina attacks all the time, overall i feel so angry and frustrated about it all, i know there are probably alot of people feeling the same way as i do. i don't want to sound woe is me just wanted to vent really and to see if other people feel the same way, thankyou if you read/ respond to this in advance

 

[ButtterflyLady]

I hear you. I was let down by doctors when it came to diagnosing endometriosis, sleep apnoea, a structural blockage in my nose, and many other things. Years of preventable suffering and some permanent damage too. It makes a person angry, for sure.

These days I try to do my best with the medical conditions I have and I try not to dwell on the past. Venting helps, and so does knowing that others have been through similar things. I get huge pleasure from being able to let others know if they might have a condition that doctors have missed. And I am grateful to those doctors who noticed what was wrong and did something about it.

I am sure you will be able to get your BGs down, and I look forward to seeing how you are doing. Are you now on a basal/bolus MDI carb counting insulin regime? There is info about this here:
http://www.phlaunt.com/diabetes/15478720.php

 

[muggle666]

thankyou for your reply, no im not on a carb counting as i dont eat enough carbs or food in general, i am at the moment trying to get my eating under control/ trying to eat more but i find this a struggle, have been advised to drink fruit juice as this has carbs in it or smoothies or banana milk shake as these have carbs and are a type of food so i can take some quick acting, have been told at the moment to just try and eat and then when i have it under control they will then do carb counting with me, i have type 1 from chronic pancreatitis and this is harder to control, i finally found 3 people on here with the same type and was so happy as this does help, i have a good dn now and she has been so easy to talk to about things but this has only happened recently so have struggled for a while, but am hoping now that maybe things will be on the up, thankyou for your understanding