Eliminator
Well-Known Member
Hi to everyone,
I first joined this site around june 2008 since then have lost my details so have rejoined with a different name.
My story is this...
I was diagnosed with type2 in May 2008, a week later I tested my 13yr old son with my meter and he was off the scale at 38. something then we spend 2 days and nights in hospital with him. Neither of us ever suffered with any symptoms of diabetes, not had it ever been in the family.
I was told by my GP to go and see the practise nurse who happens to be the diabetes nurse at our practise, she also happens to be the heart nurse too.
Anyway, she said " you have type 2 diabetes so stops eathing sugery things and go on diet control for 3 months then come back" that was it. I did'nt know what diet control was so stopped sugar in drinks and changed to sweener and started eathing salad every day. ( I thought that was the healthy **** she wanted )
I joined this forum and was told all sorts of healthy things to eat ( I didn't like any of them ), I started to lose weight from 17.5 stone, I started loseing half a stone per WEEK. I was very worried about this and phoned my nurse, she told me over the phone to start taking metformin and left me a script at reception, I wend and collected it and got the tablets, After talking to a few people and reading the label on the tabs, I got the impression that metformin help you lose weight, so phoned the Docs again. I was told to just take them. So I did, then after a few weeks I was told to up them to 3 tabs a day then 4 a day. My bloods were still in the teen's and 20's, So I phoned to make a second appointment to see the nurse. She then phoned me back and said I don't need an appointment and should try taking Gliclizide as it works in a different way and should help get my bloods down. So I went and collected the script and started taking one of them per day for a couple of weeks, but my bloods were still very high, the only way I could get them down to a normal level was to starve thoughout the day and by teatime I would be normal. so I would eat then and maybe something before bed if I was hungry.
Another couple of weeks went by and I was at the doctors again and that is when I discovered I was supposed to still be taking the metformin & Gliclizide, but I wasnt told that in the begining and had stopped the metformin.
So for the next couple of months I stayed on 4 metformin and 1 gliclizide a day and had learned about what foods I could eat and things I should avoid, I decided to stop doing bloods all the time and ignore it for a while, do in my brain they would be at a normal level.
While all this is going on, we had to learn all about type 1 diabetes for my son, we were having 2 or 3 meeting a week, and learning loads of stuff and were getting confused with it all.
Then just before Christmas, we were at the monthly meeting for my son and the dietition specialist for childrens diabetes was giving a talk about type 1 kids and what they could have over Christmas. She said they should be treated as normal kids and if family normaly buy them selection boxes then they still shoud, and they were ok for them to eat provided they checked the bloods more often and used insulin if needed, also if they were allowed a small amount of alcohol as a treat with Christmas dinner, then that was fine to as Alcohol is not a fast acting sugar drink and will actualy help lower the blood count. Well my ears pricked up at this news and 30 mins later was in Asda buying myself 3 cases of lager ( as I had not drunk in years ) So over the Christmas and new year I would have a couple of cans per night and a bit of Chocolate ( as ya do ).
The other thing was just before Christmas I forgot to order my monthly script for medication, so phoned and got the script just before they closed for the holidays, but they forgot to put the gliclizide on the script, so I had to do without.
January and I thought I better start getting this sorted as I have never had my bloods in control since the day I was diagnosed. I phone the nurse and said I had just did my bloods and was 29.9
I did not have gliclizide over the holidays as it was not on my script, I was feeling very hot and I was worried, she told me it was all my fault for not telling them they forgot to perscribe it and I said they were shut by the time I had realised. She then said that I was the one with the disease and I should have sorted it out sooner. she did not say if there was anything I could do about the 29.9 she also said it was not worth me going to my appointment the following week as she did not have any hba1c results back, I told here that was due to the fact I had not been to get any blood taken over Christmas, she said that I should have and said she would see me in another 3 months.
It was only after I had put the phone down I realised that she had not given me the paperwork needed to get a blood test done anyway.
So 3 weeks ago, my son had his check up at the childrens hospital were they can do his hba1c in the machines they have in the clininc and you get the results in 5 mins. Me being a cheeky sod and after spotting they had 2 machines, asked if they could possibly do my hba1c, so they did. it came back at +14 She told me that is as high as the machine could go and my hba1c is very high, and printed out the result for me.
I phoned and managed to get a cancelation with my own nurse and I went and showed here my hba1c result and asked again could I have a test for type 1 as I am convinced I am the same as my son. But she again said no there is no such test. ( now when my son was first diagnosed he had bloods sent somewere on the south coast that proved he was type 1)
My nurse just told me to increase the gliclizide to 2 per day for 2 weeks and if no improvement take 3 per day.
I also asked if I could up the metformin and was told that 4 tabs per day is the max dose anyone is allowed, (but my sister in law and my mate both take 6 per day)
So I am now on 4 metformin = 2000mg & 3 Gliclazide = 90mg per day oh and another thing for cholesterol.
My normal random BM's are about the mid teens before meals, so still too high.
I had lost a lot of weight and stopped at 14 stone for a few months, but last night found I had lost another stone in the last couple of weeks, I was also T-cutting my car all monday afternoon then lost all power to my arm and the rest of my body, I had to sit down on the driveway for a couple of mins, then thought maybe this is my first ever "low" so went indoors and did a BM, it was 6.3 that was my lowest reading EVER.
My upper leg muscles have been hurting for the last 2 days and I am now getting up in the morning and it takes me 30 mins to wake up, I used to be up and ready to go in under 10mins.
So I still do not know were I stand with this diabetes type 2 or type 1 ?
I have lost a total of 4 stone now since may 2008 my energy and physical strengh have gone from very strong to less than half the strengh I used to have and burn out in half the time.
I have closed down my own business and moved into a council house.
The only thing I am actualy happy about in all of this is from the day I was diagnosed up until 3 weeks ago, I was convinced that I was only gona live around 12 months or have fingers or toes drop off. but I told my doctor about this worry 3 weeks ago, and he told me that even if that was going to happen it would be 15 to 20 years off, as nothing happens in 12 months.
Oh well I have lost the plot and drifted off the subject quite a lot now and my fingers hurt.
So does this sound like your story or would you say I was type 1 or type 2 ?
I would like to hear what anyone who has been through the same has to say.
thanks
Mark
I first joined this site around june 2008 since then have lost my details so have rejoined with a different name.
My story is this...
I was diagnosed with type2 in May 2008, a week later I tested my 13yr old son with my meter and he was off the scale at 38. something then we spend 2 days and nights in hospital with him. Neither of us ever suffered with any symptoms of diabetes, not had it ever been in the family.
I was told by my GP to go and see the practise nurse who happens to be the diabetes nurse at our practise, she also happens to be the heart nurse too.
Anyway, she said " you have type 2 diabetes so stops eathing sugery things and go on diet control for 3 months then come back" that was it. I did'nt know what diet control was so stopped sugar in drinks and changed to sweener and started eathing salad every day. ( I thought that was the healthy **** she wanted )
I joined this forum and was told all sorts of healthy things to eat ( I didn't like any of them ), I started to lose weight from 17.5 stone, I started loseing half a stone per WEEK. I was very worried about this and phoned my nurse, she told me over the phone to start taking metformin and left me a script at reception, I wend and collected it and got the tablets, After talking to a few people and reading the label on the tabs, I got the impression that metformin help you lose weight, so phoned the Docs again. I was told to just take them. So I did, then after a few weeks I was told to up them to 3 tabs a day then 4 a day. My bloods were still in the teen's and 20's, So I phoned to make a second appointment to see the nurse. She then phoned me back and said I don't need an appointment and should try taking Gliclizide as it works in a different way and should help get my bloods down. So I went and collected the script and started taking one of them per day for a couple of weeks, but my bloods were still very high, the only way I could get them down to a normal level was to starve thoughout the day and by teatime I would be normal. so I would eat then and maybe something before bed if I was hungry.
Another couple of weeks went by and I was at the doctors again and that is when I discovered I was supposed to still be taking the metformin & Gliclizide, but I wasnt told that in the begining and had stopped the metformin.
So for the next couple of months I stayed on 4 metformin and 1 gliclizide a day and had learned about what foods I could eat and things I should avoid, I decided to stop doing bloods all the time and ignore it for a while, do in my brain they would be at a normal level.
While all this is going on, we had to learn all about type 1 diabetes for my son, we were having 2 or 3 meeting a week, and learning loads of stuff and were getting confused with it all.
Then just before Christmas, we were at the monthly meeting for my son and the dietition specialist for childrens diabetes was giving a talk about type 1 kids and what they could have over Christmas. She said they should be treated as normal kids and if family normaly buy them selection boxes then they still shoud, and they were ok for them to eat provided they checked the bloods more often and used insulin if needed, also if they were allowed a small amount of alcohol as a treat with Christmas dinner, then that was fine to as Alcohol is not a fast acting sugar drink and will actualy help lower the blood count. Well my ears pricked up at this news and 30 mins later was in Asda buying myself 3 cases of lager ( as I had not drunk in years ) So over the Christmas and new year I would have a couple of cans per night and a bit of Chocolate ( as ya do ).
The other thing was just before Christmas I forgot to order my monthly script for medication, so phoned and got the script just before they closed for the holidays, but they forgot to put the gliclizide on the script, so I had to do without.
January and I thought I better start getting this sorted as I have never had my bloods in control since the day I was diagnosed. I phone the nurse and said I had just did my bloods and was 29.9
I did not have gliclizide over the holidays as it was not on my script, I was feeling very hot and I was worried, she told me it was all my fault for not telling them they forgot to perscribe it and I said they were shut by the time I had realised. She then said that I was the one with the disease and I should have sorted it out sooner. she did not say if there was anything I could do about the 29.9 she also said it was not worth me going to my appointment the following week as she did not have any hba1c results back, I told here that was due to the fact I had not been to get any blood taken over Christmas, she said that I should have and said she would see me in another 3 months.
It was only after I had put the phone down I realised that she had not given me the paperwork needed to get a blood test done anyway.
So 3 weeks ago, my son had his check up at the childrens hospital were they can do his hba1c in the machines they have in the clininc and you get the results in 5 mins. Me being a cheeky sod and after spotting they had 2 machines, asked if they could possibly do my hba1c, so they did. it came back at +14 She told me that is as high as the machine could go and my hba1c is very high, and printed out the result for me.
I phoned and managed to get a cancelation with my own nurse and I went and showed here my hba1c result and asked again could I have a test for type 1 as I am convinced I am the same as my son. But she again said no there is no such test. ( now when my son was first diagnosed he had bloods sent somewere on the south coast that proved he was type 1)
My nurse just told me to increase the gliclizide to 2 per day for 2 weeks and if no improvement take 3 per day.
I also asked if I could up the metformin and was told that 4 tabs per day is the max dose anyone is allowed, (but my sister in law and my mate both take 6 per day)
So I am now on 4 metformin = 2000mg & 3 Gliclazide = 90mg per day oh and another thing for cholesterol.
My normal random BM's are about the mid teens before meals, so still too high.
I had lost a lot of weight and stopped at 14 stone for a few months, but last night found I had lost another stone in the last couple of weeks, I was also T-cutting my car all monday afternoon then lost all power to my arm and the rest of my body, I had to sit down on the driveway for a couple of mins, then thought maybe this is my first ever "low" so went indoors and did a BM, it was 6.3 that was my lowest reading EVER.
My upper leg muscles have been hurting for the last 2 days and I am now getting up in the morning and it takes me 30 mins to wake up, I used to be up and ready to go in under 10mins.
So I still do not know were I stand with this diabetes type 2 or type 1 ?
I have lost a total of 4 stone now since may 2008 my energy and physical strengh have gone from very strong to less than half the strengh I used to have and burn out in half the time.
I have closed down my own business and moved into a council house.
The only thing I am actualy happy about in all of this is from the day I was diagnosed up until 3 weeks ago, I was convinced that I was only gona live around 12 months or have fingers or toes drop off. but I told my doctor about this worry 3 weeks ago, and he told me that even if that was going to happen it would be 15 to 20 years off, as nothing happens in 12 months.
Oh well I have lost the plot and drifted off the subject quite a lot now and my fingers hurt.
So does this sound like your story or would you say I was type 1 or type 2 ?
I would like to hear what anyone who has been through the same has to say.
thanks
Mark
