An update
I was originally referred to St Marys Hospital Paddington London for a Pancreas only Transplant in !996 by my now retired Diabetic Consultant at the Royal Free Hospital London as he had concerns about my deteriorating health.
It was not an easy journey initially as I had serious life threatening complications post surgery and endured other health problems over the following years not necessarily Transplant related. I have had CMV, Shingles, Pneumonia, Fractured Heel, Frozen shoulders, Hypothyroid, Microscopic colitis, Rheumatoid Arthritis, Complete Heart Block, Pacemaker, Heart Stents, Cardiac Autonomic Neuropathy, that's just a few that I can think of. So you can see I attend quite a few different departments in about 4 different Hospitals/ Trusts so its not easy, especially when they don't communicate with each other.
I will eventually see a Consultant whom I've known for some years and a Surgeon to discuss another Transplant but because I had so many problems immediately after the first one I am cautious, however my Renal function is now stage 3b/4 so if it comes to the crunch I may need to think again about my options. I have never seen a Transplant Co-ordinator pre or post.
As far as the Type 1 Diabetes we don't know how much if any function I have in my Transplanted Pancreas it's a bit of a guessing game at the moment and I've just had my second Diabetic appointment cancelled to August??? But I am going to a "Freesyle Libre" course next week but apparently although I might get one I probably wont be eligible for the equipment.
On a positive note I have just started working part time after a break of 10 years having been sole carer to darling Mummy who sadly lost her battle with COPD Emphysema in November 2017.