• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Type 1.5 Er Visit After Extreme Hypo (toujeo Malfunction)

JonathanVII

JonathanVII

Member
Messages
6
Location
Los Angeles, CA
Type of diabetes
Type 2
Treatment type
Diet only
I was hospitalized after an extreme hypoglycemic incident last Friday. It occurred a few minutes after dosing 13 units of Toujeo and quickly led to unconsciousness. we're not sure how long I was out but my Apple watch showed little/no movement for around an hour. When I was up I had no idea where I was (or WHO I was!) My wife found me standing in our kids bathroom with puddles of sweat around me. Needless to say, the whole experience was terrifying.

Doctors are baffled, said I'd need 7-10 times that dose to achieve that result and would have been easily noticed. They don't believe the solution became concentrated either since the new formulas prevent that (or DO they.) At any rate, I'm saving the pen for analysis if needed and getting a CGM!

Some background on me: I was diagnosed LADA 5 years ago and was diet/exercise controlled till last December when I began using Toujeo. I'm very fit and eat a low carb balanced diet. My previous levels have been between 80-110 mg/dl on a regular basis (for most of the past year.)

Anyone with similar experiences or insight I'd love to hear from you. Thanks from a now extremely paranoid type 1.5

J
 
Classic experience for me. Iccured to me last winter but I injected into a vein or muscle accidentally some Lantus. Didn't fall unconscious but it dropped massively from 283 to 157 in 15 minutes.. started eating sugar then dropped to 106 then up to 120s then 150s then 190s then 300s
 
JonathanVII said:
I was hospitalized after an extreme hypoglycemic incident last Friday. It occurred a few minutes after dosing 13 units of Toujeo and quickly led to unconsciousness. we're not sure how long I was out but my Apple watch showed little/no movement for around an hour. When I was up I had no idea where I was (or WHO I was!) My wife found me standing in our kids bathroom with puddles of sweat around me. Needless to say, the whole experience was terrifying.

Doctors are baffled, said I'd need 7-10 times that dose to achieve that result and would have been easily noticed. They don't believe the solution became concentrated either since the new formulas prevent that (or DO they.) At any rate, I'm saving the pen for analysis if needed and getting a CGM!

Some background on me: I was diagnosed LADA 5 years ago and was diet/exercise controlled till last December when I began using Toujeo. I'm very fit and eat a low carb balanced diet. My previous levels have been between 80-110 mg/dl on a regular basis (for most of the past year.)

Anyone with similar experiences or insight I'd love to hear from you. Thanks from a now extremely paranoid type 1.5

J
Click to expand...
Switch to Levemir or Tresiba. It's not a new formula, it's a more concentrated form or Lantus that was likely created because the Lantus patent expired.
 
Very pleased to hear you're ok. I had an experience with Lantus where my blood sugar fell very rapidly, and I just didn't want to take it any more.

Hopefully you can switch soon.

There was a thread recently, about freestyle libre, and a rash, by @becca59 in which she advised people, who got a rash to report it to MHRA, this is about safety of medical products.

Here's a link to the MHRA yellow card scheme

https://yellowcard.mhra.gov.uk/the-yellow-card-scheme/

After my experience with Lantus, I've been wondering about Toujeo, so you might want to think about that. I've never considered doing that before, but that thread made me think about the importance of it, and as an early user of Toujeo, your feedback is important.
 
I'm in the US so not sure that yellow card website is something I should file on. My Dr. is filing an incident report (who knows what that's for) so we'll see.

13 units doesn't seem like enough to take me from 90-100 to < 20mg/dl in under 10 minutes even if I shot it directly into a vein but perhaps I'm incorrect. I couldn't find a calculator to determine it.
 
JonathanVII said:
I'm in the US so not sure that yellow card website is something I should file on. My Dr. is filing an incident report (who knows what that's for) so we'll see.

13 units doesn't seem like enough to take me from 90-100 to < 20mg/dl in under 10 minutes even if I shot it directly into a vein but perhaps I'm incorrect. I couldn't find a calculator to determine it.
Click to expand...

At least a complaint will be made, I don't mind by what process.

As I understand it Toujeo is 3 times as strong as normal insulins, because it's supposed to be very slow release. So if it did start acting like a fast acting insulin, it could have been more powerful

I dunno, I inject about 4 units of novorapid for a meal, so to me it's terrifying.

But anyway, you survived, which is good news.
 
JonathanVII said:
I'm in the US so not sure that yellow card website is something I should file on. My Dr. is filing an incident report (who knows what that's for) so we'll see.

13 units doesn't seem like enough to take me from 90-100 to < 20mg/dl in under 10 minutes even if I shot it directly into a vein but perhaps I'm incorrect. I couldn't find a calculator to determine it.
Click to expand...

I think you have the FDA that you report incidents of side effects or troubles with medicines or gadgets related to health..
 
JonathanVII said:
Scratch that, looks like Tresiba might be a better fit.
Click to expand...

It depends on your need for flexibility. If you need to adjust basal on a daily basis then it won't be a good fit since its long duration means dose changes can take days to take effect. It also isn't useful if your basal needs differ between night and day.
 
Back
Top