SORRY LONG VENT POST - please skip if you don’t want to read my grumbles…
Hi all,
I’m new to pump life but so far I’m really finding the adjustment from MDI very difficult.
I really thought that moving to a pump would make my life easier. However, I’m finding myself more frustrated, exhausted and burnt out than ever.
I have been using the t-slim x2 pump with fiasp. I know that I’m not getting on with the infusion sets the hospital recommend (autosoft 90) but my hospital have been really slow in changing me over to new sets so they are all I have at the moment.
Tonight I’ve been awake since 2am (it’s now 5.30am). I was woken by a high glucose alarm so I assumed that this must have been a misjudgment of mealtime insulin on my part ( I ate late tonight). I corrected and waited to see if my readings would come down. It took from 2am -4.45am for me to hit 11mmol. At that stage, I knew I was on the way down and tried to drift off to sleep. 15mins later - high glucose alert 16mmol (the 11.4 must have been a bad reading).
At this stage I assume that the infusion site has failed so here i am, post 5am pump site change waiting to see if this one is going to work. Changed the site and it looks fine, no kinked cannula, no leakage (***?). At this point, I’ll be up until 6.30 to check if this site works, at which stage there’s no point going back to sleep as I get up at 7.
This seems to happen with the pump, multiple times per week and I’m just so tired of dealing with it. On MDI a high reading at night would mean taking a correction and going back to sleep, knowing that it had been successfully delivered and that even if I had misjudged the dose, I’d have my basal to keep me out of trouble.
With the pump I’m in constant fear of going into dka overnight if the pump fails, as I’d have no insulin in my system. I’m up for hours of the night, multiple nights per week just waiting to see if the pump is even giving me insulin.
Is this what pump life is like?? When I mentioned it to the dsn she tried to reassure me (?) that she had been contacted the same day by someone who had been using a pump for 15 years, who had to change their infusion set four times during the previous night. I don’t know if this is something I’ll just need to get used to or if she was trying to suggest that there’s some issue with the infusion sets.
Sorry for the looong vent - it’s been a month and I just don’t feel like I’ve fallen into a rhythm with the pump yet. I’ve been so excited to get started with it, but so far it hasn’t been an easy road.
Hi all,
I’m new to pump life but so far I’m really finding the adjustment from MDI very difficult.
I really thought that moving to a pump would make my life easier. However, I’m finding myself more frustrated, exhausted and burnt out than ever.
I have been using the t-slim x2 pump with fiasp. I know that I’m not getting on with the infusion sets the hospital recommend (autosoft 90) but my hospital have been really slow in changing me over to new sets so they are all I have at the moment.
Tonight I’ve been awake since 2am (it’s now 5.30am). I was woken by a high glucose alarm so I assumed that this must have been a misjudgment of mealtime insulin on my part ( I ate late tonight). I corrected and waited to see if my readings would come down. It took from 2am -4.45am for me to hit 11mmol. At that stage, I knew I was on the way down and tried to drift off to sleep. 15mins later - high glucose alert 16mmol (the 11.4 must have been a bad reading).
At this stage I assume that the infusion site has failed so here i am, post 5am pump site change waiting to see if this one is going to work. Changed the site and it looks fine, no kinked cannula, no leakage (***?). At this point, I’ll be up until 6.30 to check if this site works, at which stage there’s no point going back to sleep as I get up at 7.
This seems to happen with the pump, multiple times per week and I’m just so tired of dealing with it. On MDI a high reading at night would mean taking a correction and going back to sleep, knowing that it had been successfully delivered and that even if I had misjudged the dose, I’d have my basal to keep me out of trouble.
With the pump I’m in constant fear of going into dka overnight if the pump fails, as I’d have no insulin in my system. I’m up for hours of the night, multiple nights per week just waiting to see if the pump is even giving me insulin.
Is this what pump life is like?? When I mentioned it to the dsn she tried to reassure me (?) that she had been contacted the same day by someone who had been using a pump for 15 years, who had to change their infusion set four times during the previous night. I don’t know if this is something I’ll just need to get used to or if she was trying to suggest that there’s some issue with the infusion sets.
Sorry for the looong vent - it’s been a month and I just don’t feel like I’ve fallen into a rhythm with the pump yet. I’ve been so excited to get started with it, but so far it hasn’t been an easy road.