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Experts with type 1!

MrsDMiles

Well-Known Member
Messages
90
Hi
Sorry wasn't sure how to head this!!
My little boy Oscar is 4 in June diagnosed in February. And I'm completely heart broken.
Was just wanting some reassurance really that he can live a happy, hethu long life from anyone who as been diagnosed a long time.
Thank you Danielle x


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Hi there.
There are many people on here who have had t1 for many years. I have had it only 3 years and I planning being around for my children. Education is the way forward stick on here there will be lots if support and advice. Good luck I'm sure you will be fine. Oh and don't forget to ask for support yourself its as much Your child's illness as your well at least until he is self efficient. Hope this helps.
 
I was on an American forum a couple of years ago and one member was 83 and had diabetes for 80 years. No complications. I found him to be quite an inspiration.

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Hello Danielle,

I have been a type 1 diabetic for 30 years this month. And I certainly have expertise as far my own control is concerned, which could scarcely be better.

As far as the reassurance you seek is concerned, I should say I feel some ambivalence. (Don't let your heart drop yet.) I think you - and in due course, your son - have to take control: the reassurance you seek must come from within, not from others.

Please have a look at some of the postings I've made recently: you may note that I have a bee in my bonnet about orthodox control.

My own control comes from two main factors: 1. what I eat, and when I eat it (rye bread is crucial for me); 2. from testing my blood-sugar a lot (not so much the meter-read strips, mostly the simpler visually read testing strips, and never using the nasty spring-loaded gadgets to get the blood-sample). Er, that's it.

As for the future, I wouldn't be at all surprised if things were to change radically in not so many years. But I have no expert knowledge in this regard.

I'd be very happy to respond to any questions you may have.

Michael

Ps. I hope it wasn't an error of judgement to write the above when I was tired - as I was last night. (I didn't even notice that you'd written your first name at the bottom of your posting.) But if I did make such an error, then to a significant extent it would serve to illustrate the reasoning behind the feeling of ambivalence I mentioned.

After all, you don't really know who I am, or who anyone else is who might respond to your request for reassurance. And I believe the fact that you're reduced to making such a desperate plea does not reflect well on the professional help that you're likely to be receiving.

And that brings me to a third, overall main factor I should have mentioned in regard to my diabetic control: simplicity.

Diabetic control is aided by keeping things as simple as possible. And orthodox diabetic control is anything but simple.

I hope you managed to sleep okay.
 
I am coming up to my 49th diaversary. It is only in the last few years I have had any issues and I have now been diagnosed with PAD (peripheral arterial disease). However in the sixties/seventies/early eighties there was no home BG testing and you had to rely on relatively crude urine testing. With the advances in treatment your son should live a long and healthy life if he respects his diabetes. The one thing to bear in mind is that diabetes does not stop you getting other illnesses so good genes and long lived parents are a good starter. I feel for your son as being diagnosed so young is earth shattering! And it is not easy for parents either!
 
50 years plus with T1
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Running across the US with T1
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MrsDMiles said:
Hi
S

orry wasn't sure how to head this!!
My little boy Oscar is 4 in June diagnosed in February. And I'm completely heart broken.
Was just wanting some reassurance really that he can live a happy, hethu long life from anyone who as been diagnosed a long time.
Thank you Danielle x


Sent from the Diabetes Forum App

I'm sure Oscar will grow up into a wonderful human being and not let his diabetes control him and get in his way.

Can I leave you with this

"What lies behind us and what lies before us, is nothing compared to what lies within us"

With best wishes RRB :)
 
Hi Danielle
Please don't worry, I was young when diagnosed and remember hating injections until my dad said he would time me to load syringe, take blood test and do injection. Have had diabetes type 1 over forty years now and I'm still learning. Am sure your son will learn his own way and being young , just accept it as being special! Am sure he'll be fine.


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I don’t think you need to worry anything, I think you need to do something as follows:

Tell Oscar don’t fear it
Teach Oscar to use insulin in the right way
Test blood sugar in according with test result

And I can told you one good thing for insulin, old insulin have some side effect: Hypoglycemia, produce insulin antibody easy, insulin antibody will lead you to inject more insulin, but now some people is busy for new insulin, they want use amino acid and albumin to produce new insulin, the new insulin can avoid those side effect
 
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