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Explaining type 1

PG1759

PG1759

Well-Known Member
Messages
128
Type of diabetes
Type 1
Treatment type
Insulin
Anyone else find there is a complete lack of understanding about type 1 diabetes ? No one understands what it's like to live with and everyone thinks it's something you've bought on yourself and confuses it with the diabetes there mom, dad and uncle have got ! Bloody frustrating !
 
There's a lack of understanding about diabetes per se, I honestly think it's difficult to understand what it's like to live with diabetes until you develop the condition, but much could be said about any other medical condition I suppose.
 
PG1759 said:
Anyone else find there is a complete lack of understanding about type 1 diabetes ? No one understands what it's like to live with and everyone thinks it's something you've bought on yourself and confuses it with the diabetes there mom, dad and uncle have got ! Bloody frustrating !
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When i wad newly diagnosed - my friends kept on asking me if it's because i like sugar.... :-P
 
So true and totally frustrating. So easy to lose it with people since diagnosed type 1..........
I used to be so chilled and laid back..........
These days I don't suffer fools gladly!!!
Have to stay strong to not let people get you down.......
 
Someone please help me I haven't been taking my insulin for days and I haven't tested either and I'm getting so bad I pretend I don't have diabetes I need to be inspired to look after myself and this horrible illness
 
PG1759 said:
Anyone else find there is a complete lack of understanding about type 1 diabetes ? No one understands what it's like to live with and everyone thinks it's something you've bought on yourself and confuses it with the diabetes there mom, dad and uncle have got ! Bloody frustrating !
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I would say there's definitely a lack of understanding, I wouldn't agree with the rest of the sttament though.

The reaction I've had is that people just know very little about it but are happy to have it explained to them.
 
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
 
Bazzza said:
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
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I don't walk around with a chip on my shoulder about it but it is frustrating for some people when (especially newly diagnosed) type 1 has taken over your whole life and a lot of people don't truly understand what it's like to live with ( in the same way I didn't 8 months ago) even when explained
 
Bazzza said:
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
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Possibly because if they're newly diagnosed and scared the last thing they want to be told by an instant expert is that it's their own fault because they eat too much sugar or because they're too fat? Or because one of the side effects of wonky diabetic blood sugars can be irritability, and (again!) if they're scared or frustrated the last thing that they want is to be misunderstood? I think it sort of comes into the same category as treating a deaf person like an imbecile when they've not heard you the first time... One doesn't imply the other.

@Bazzza, perhaps you could come and live with my husband for a while, and get treated like a bad tempered imbecile simply because you're occasionally slightly deaf, and (at the moment ) an often very frustrated diabetic? :D:D:D Does wonders for your self image....

Robbity
(Posting from a type 2 point of view)
 
Bazzza said:
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
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When I was in A & E in August and had to give my medical conditions and medication I said I had diabetes, the nurse asked if I was type 2, she didn't appear to know there was a type1 !!! and no, I didn't manage to explain what type 1 was, as I had another thing going on at the time. This was in an NHS hospital, but hey ho o_O

Best wishes RRB
 
haylz2002 said:
Someone please help me I haven't been taking my insulin for days and I haven't tested either and I'm getting so bad I pretend I don't have diabetes I need to be inspired to look after myself and this horrible illness
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I pretend I'm rich and have girls chasing me, but that's not getting me anywhere either. Lucky you are still in honeymoon, it gives you a buffer with your BG, or you could be in hospital by now with DKA.

my only advice from what you wrote is to take it one day at a time and your meter just gives you a number to work with..there is no pass fail. some days BG's ok, some days BG's schite
 
Bazzza said:
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
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Do agree with you Bazza, it only takes a few moments to explain the difference between the two and what living with diabetes entails, there are so many conditions that we know little about.
 
haylz2002 said:
Someone please help me I haven't been taking my insulin for days and I haven't tested either and I'm getting so bad I pretend I don't have diabetes I need to be inspired to look after myself and this horrible illness
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Not good haylz, you have diabetes and you have to learn to accept it, if your struggling emotionally with the condition then you should seek help from your diabetes care team.

By not taking your insulin and refusing to test your bg levels will only lead to harm in the long term, if you Google Diabetic Ketoacidosis you will see the potential life threatening condition that can develop from not taking insulin and not monitoring bg levels.

Do seek help as it sounds like you are in denial about your condition.
 
haylz2002 said:
Someone please help me I haven't been taking my insulin for days and I haven't tested either and I'm getting so bad I pretend I don't have diabetes I need to be inspired to look after myself and this horrible illness
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@haylz2002 This is understandable and we all feel like ignoring it but if you do there are consequences.
Please talk to someone - we all (at certain times) feel 'why me'.
I very often think just after it at least it's treatable and I should really count my blessing lost a friend through MND a few years ago.
We are all on your side try not to forget that we'll do whatever we can to help.
 
I think I may have come up with an analogy feel free to call me a crackpot:-
OK so BG is like a fuel tank in a car (Bear with)!
And the engine is your muscles and heart and brain
The Insulin is a fuel pump gets the fuel (BG) to the engine.
In a type 1 the pump is manual (apart from those with automated pumps) although constant monitoring is required!
In a type 2 the pump working but the engine won't run properly and so needs bit of help (tablets/diet to make it work).
Ok feel free to criticize.
 
Haha only an engineer, mechanic or petrol head can come up with that analogy ! I like it !
 
Bazzza said:
Had to laugh at a few posts on here at people losing it and being frustrated by other peoples lack of understanding of their condition. The day I get annoyed about having to tell someone how T1 & T2 are different is the day I eat my hat. Why do people get annoyed in the first place? Why not take the opportunity to give someone some enlightenment about something they don't know and be happy your sharing awareness of your condition, instead of going around with a chip on there shoulder's ready to chew the ******** off someone, dare they get the two mixed up.
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No you have that totally wrong, I always have time to explain.........unfortunately some people just don't listen / understand..... That's what upsets me........Perhaps I am just no good at explaining, I am not perfect.....

Being constantly upset by others ignorance of what Type 1 can be like to live with at times, when you work at it / live with it twenty four seven, train hard, eat well, consistently achieve hbA1c's sub 6% and after just a few years diagnosis find out you have changes occurring on retina screening, that is upsetting...... People think you inject a few times a day and all is well, or if you get complication you don't look after yourself.....unfortunately some people just have bad luck !!!

Comments like "god I thought you were the fittest person I new" HURT....I probably am the fittest person they know....... I loved my sport pre diabetes and I am certainly not going to let diabetes stop me doing anything I want to do, I enjoy the additional challenges it brings, but it would be nice if people understood that.......I certainly don't have a chip on my shoulder and am a very happy bubbly person, the difference is I don't go around judging others about things I know nothing about.........That's why I do't suffer fools gladly!! :)
 
emm2012 said:
No you have that totally wrong, I always have time to explain.........unfortunately some people just don't listen / understand..... That's what upsets me........Perhaps I am just no good at explaining, I am not perfect.....

Being constantly upset by others ignorance of what Type 1 can be like to live with at times, when you work at it / live with it twenty four seven, train hard, eat well, consistently achieve hbA1c's sub 6% and after just a few years diagnosis find out you have changes occurring on retina screening, that is upsetting...... People think you inject a few times a day and all is well, or if you get complication you don't look after yourself.....unfortunately some people just have bad luck !!!

Comments like "god I thought you were the fittest person I new" HURT....I probably am the fittest person they know....... I loved my sport pre diabetes and I am certainly not going to let diabetes stop me doing anything I want to do, I enjoy the additional challenges it brings, but it would be nice if people understood that.......I certainly don't have a chip on my shoulder and am a very happy bubbly person, the difference is I don't go around judging others about things I know nothing about.........That's why I do't suffer fools gladly!! :)
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Good post emm2012,:) Have good day RRB
 
noblehead said:
There's a lack of understanding about diabetes per se, I honestly think it's difficult to understand what it's like to live with diabetes until you develop the condition, but much could be said about any other medical condition I suppose.
Click to expand...

Unfortunately it seems a lot of people always have to have an opinion on something that they actually know nothing about and a lot of it gets posted on line.(especially on social network sites) !
At the end of the day it's best to ignore it or come up with an ingenious new science technique that enables certain people to experience it for a week or so, warts n' all :eek:;).

Best wishes RRB :)
 
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