A
Ive had diabetes for 42 years,my memory is shot to hell but i didnt realise it could be related to diabetes.Could it be the amount of severe hypis over the years? I suppose your brain is affected more than you realise.I did read somewhere that diabetics have a higher risk of developing dementia.Scary.
???@Grant_Vicat. Brother I went through a Hypo while writing on here. I thought that the disheveled mindset would be a class lesson in this subject. WRONG. As I look back on the. Experience people just had every answer in the book long after it was over with. This is whey too much for me. People cared. People were idiots and I will just read from now on. There knowledge is good here but I have had it with the experts. I am not going to accept anything unless it is from you. Thanks mate.
Wouldn't allow this section! As promised, my experience of hypos in general terms
Yet another Greek concoction, where hypo means “beneath” or “under”. At least for a comparably large range of readings Hyperglycaemia does not impair brain function whereas the NHS rates all readings of 4mmol/L and below as hypo. It is illegal for anyone to drive with a reading of 3.5mmol/L (more recently 5.0mmol/L) or under. Amazingly the lowest reading I have had while still able to make decisions (sluggishly) is 1.3mmol/L and yet on other occasions I have passed out at 3.9mmol/L. I am convinced this is because of variable glucose tolerance. In my early teens I had a very high HbA1c, which is a three month average read out. In other words the body becomes accustomed to functioning incorrectly and tries to compensate, e.g. by passing large amounts of urine. Hospitals encourage diabetics to achieve an HbA1c of about 53mmol/mol. I have achieved 38mmol/mol, which is as near as dammit normal for anybody. But this means my glose tolerance has drastically lowered and therefore the body tolerates much lower readings before shutting shop. This could be devastating behind the wheel of a vehicle. I have been strongly advised to raise the level and test before driving. I have personally driven a diabetic passenger who had been banned from driving because he had a hypo at the wheel and he and the cockpit were found ten feet up a tree in Norfolk. We are closely monitored and have to submit a medical declaration at least every three years, if not each year. It is therefore more than slightly galling when a drunken halfwit plunges into the back of a car, killing three vicars and is only banned for three years. But since when was life fair?
Hypos fascinate me. After all, they occur because the brain is starved of energy and therefore the body shuts down. Yet I am able to recall many of the topical and visual details and even the state of mind at the time. The shut- down of the brain can begin subtly. Many times my wife Helen has asked me to do a test because my speech has slowed down, not necessarily perceptibly to others. I might insist that I don’t need to. Difficulty in making choices or decisions is also a giveaway. Visibly the face takes on a deathly pallor because what little glucose there is has been distributed to the brain and heart. Vague staring is common, as is slurred speech. The problem is that these are all recognisable symptoms in a drunk. Similar to a drunk, a diabetic can become violent when accosted. This is because the brain translates well-intended actions into attack. When faced with a semi-conscious person it is unwise to offer questions or statements which require reasoning or choice. Do not say “Do you think you ought to have some sugar?” The sheer effort of making a judgement is enough to cause unpredictable reactions. In my 40s I burst into tears (a rare occurrence) when in a hypoglycaemic condition, simply because I was expected to make rational responses. Instead you should say something like “You need sugar, here is some.” Personally I hate sugar, and as I have said, solid glucose. They leave an unpleasant metallic taste in the mouth. If I were to go to the famous Desert Island, I would take something savoury, preferably involving bacon. I once said to a Catholic Headmaster: “If there’s no bacon in Heaven, then I ain’t going there. I probably won’t anyway” I have apparently punched well-meaning people who have tried to administer sweet tea. I am not, however, aware that Lucozade has resulted in violence.
I have a whole battery of warning signs when I am low, sugar-wise. The most obvious is sudden excessive yawning. Many times in public I have been tempted to ask total strangers whether they are diabetic, simply because they yawn incessantly. Is this because the brain thinks it needs bucketfuls of Oxygen to create unattainable energy? I can also feel unnaturally depressed. Red stars can dance within my eyes and if I walk into a darker area, what look like giant sunflower heads blot out my vision. Tingling affects all my mouth my hands shake, and I have a raging headache. I have often been alerted to low readings because I am unable to make decisions. Ironically this is often at lunchtime, in a food shop, when I am trying to work out what adds up to 60g of Carbohydrate.
Many thanks Sam, it's very kind of you to put your thoughts on the thread. All the very best, GrantDear Grant_Vicat, Since my Famous on board Hypo Experience I remember that very profound that made you stand out from your previous writing. These Hypos are indeed very very strange. This May be a very simple question to you but you have really stirred me thinking up about Hypos since the last Article of inspiration that earned Kudos from me. I went for a 7 Kilometre walk to my bank today and I did it in low gear. Ever since my Chemotherapy In fall of of, 2014 in the Southern Hemisphere around June of that year this alleged Chemobrain is as real as a Hypo but not in the same terms. Amnesia and “where are the car Keys” is very much different than the unreality is reality syndrome. Of the 30 some odd Neurotransmitters in the Human Brain, I think as I read some of your work that Sugar has a profound effect of nothing even close to Chemobrain. Now the brain shutting down as our result of starvation as you said it well, has really got me thinking. This puts me in the thinking of Hypoxia as those symptoms replicate those of what I just experienced 2 days ago and the exact thinking that you are conveying right now.
@Grant_Vicat. I am emdebted to you not to back off but to understand the concept of exactly what a concept of a Hypo really and truly is.
Brother Sam.
Hi @Bluemarine Josephine I haven't written a 150 page thesis, but I have written 118 pages (if you include 14 pages of Index) of living with Type1 from the age of 11 months till 4 days before my 55th birthday - all wrapped up in the book in the picture! Hope you succeed!Good morning my beautiful friend! I hope that you are very well today!
You do know that I am going to write a whole thesis on this topic... I can visualize the full 150 pages dissertation project already...
Regards
Josephine
So did I, in the picture! What's yours called?I got asked so many times what is like to live with diabetes I ended up writing a book!
With no pump and no continuous glucose monitor, they simply weren't invented when I was diagnosed, I had to manage it old-school style. Being trained as a scientist I documented all my failures and successes, thankfully more success than failure.
Way back in this thread someone mentioned using the side of the thumb was least painful. I also found the side of my little finger end. Hope all goes as well as possible.I'm newly diagnosed type 1 and all anyone asks me these days is 'how are the injections going'. They are the easy bit! The blurry eyesight causing me headaches and stopping me driving is a nightmare. Trying to work out how much insulin to have is stressful. Working out which sore finger to prick is tiresome. Oh - and I'll never be able to go out with a small handbag ever again!!
Hi @evj95 Interesting comments on high readings. Here are some excerpts from the book I'm holding:@Smsquire90 I know the feeling of friends dictating what to eat or not! I still get that too, but now I either just tell them to fob off, or if its a friend that has just known and don't know much about T1D, I will explain to them very briefly and quite harshly to be honest that I can eat what I want as long as I'm careful.
I also hate it when I have the stupid feelings that I have when I'm too high - Headache that just makes me want to crawl into a hole and die, feeling so god **** tired I could sleep all day. These are not good combination when I'm trying to do stuff at work before I finish because jesus christ if I sit down for five minutes I'll be asleep!.
Then an hour later I could be having a hypo and can't think properly, can't get my words out right and shaking like hell.
There is no perfect number for this, no bullseye to hit.
A friend has described it to me as a tightrope that I am walking and everyday its trying to balance right to not fall off, knowing how fast or slow I can walk that tightrope before I lose balance altogether.
I am into my 5th month of Type 1 Diabetes.
...
So when Type 2 came into my life 3.5 years ago
I've always felt that! Greetings DownundaAustralia 1 and Real Life Type 1 Living with @Grant_ Vicat. Dear Forum. I am into my 5th month of Type 1 Diabetes. I wrote a thread or tried to write through a Hypoglycemia event. Much like me new friend Grant, if that is indeed his name I become very very interested the same subject matter that happens in the starvartion of
the Brain of Glucose nourishment.
So when Type 2 came into my life 3.5 years ago it was told to me by my ocologist to brings and aging factor. So I came to this forum incognito. I read and read and read at this forum and the American one with an Australian section all to itself. Getting back to Type 1 Hypos I must say that Grant_Vicat has the mind of an Aerospace engineer as his research is easy to feed on. It was in the last six months that life to me was not going to be good at all. Different doctors that cost real money were making me very angry. Did my Endocrinologist really Understand hypoglycemia or was it a joke. Not I am not implying that doctors are fakes and phonies and anytime Grant wrote to anybody about anything involving glucose indulgence I sat up and took notice of what He wrote. And now I understand and I ruin things for Newbies because I have to say what is real. My life is now terrible. I struggle with Mathematics and Carb counting and insulin measurements to the Tee. But millions in the world today are born Type 1 Diabetic,s. I go to the Scriptures to try to make sense out of the book of Job to make sense of suffering. Hard Questions? Yes indeed. Next week I am setting down with a new team that understands oncology and there Specialty is Diabectic conditions of all kinds. I have used that tight rope analogy many times about life, but oh does it so apply to a diabetic of any type. The Straight and narrow way. Too much of this chemical starts this. Too much of that starts something else. I guess Grant_Vicat that we should be very graceful for all that we have and encourage one another. What do ya think mate!!
Sam Danner.
Quote :- Australia 1, post: 1672241, member: 468233"]The List of things you have are not what I thought which was Cancer. Avascular Necrosis, Total Memory loss, yep. How many years did I have Diabetes, just how many years did I have Type 2 and now Type 1.
Thanks, I've gotta be honest though, that quote doesn't really make things much clearer. As we know, type 2 doesn't turn into type 1. It sound to me, from what little sense I can make of @Australia 1 's postings that he has type 2 diabetes treated with insulin and, wrongly, thinks the insulin treatment makes it type 1. But as I say, I do find a lot of his postings a bit difficult to interpret, which is why I asked him to clarify.
Thank you....!!!!You are both amazing people and an example to others X
A bit like my gp who seems to think that my type 1 has turned into type 2 now that I am in my 65th year.....!!! She tells me I have hypos if I eat anything sweet because it promotes the production of more insulin from my pancreas. Never quite know what to say to that---I can hardly correct her, can I? Not as young and brash as I once was.......!!!!!!Thanks, I've gotta be honest though, that quote doesn't really make things much clearer. As we know, type 2 doesn't turn into type 1. It sound to me, from what little sense I can make of @Australia 1 's postings that he has type 2 diabetes treated with insulin and, wrongly, thinks the insulin treatment makes it type 1. But as I say, I do find a lot of his postings a bit difficult to interpret, which is why I asked him to clarify.
* Blessings. I too have trodden a hard path from the days of red and black lines, weighing food, metal and glass syringes kept in surgical spirit and boiled once week.. I went to Reading Festival when I was seventeen and people in the Red Cross tent where I went to rinse my syringe and inject were suspicious....
The insulin pen and bolus with long-lasting insulin regime and (breakthrough!) blood testing meant freedom from eating at set times, test tubes and fizzy pills to test your urine (highly approximate as it was an average over the last however-long-since -you last-peed). Diagnosed November 1958 after going into a coma, oxygen tent, last rights at the age of two, I worked hard to manage my condition once I was old enough - 9 to 10 years old. I envy anyone on a pump and blood glucose reader, as diabetes has had to be in the background of my mind all my adult life. Bless my mum (God rest her) for looking after me so well early on. I had a teenage denial, but came round after the said pen/blood testing meant control was more flexible. My only problem has been arterial disease, particularly blood supply to my legs, but then I smoked for some years. (Risks not so well known or understood then.) Brilliant NHS treatment for this. I am also highly gluten intolerant now - brother and sister both T1 and both coeliac.
What am I saying? Some of us, with the same self-care, may be genetically luckier than others. I am relatively lucky, though with 63% blood supply, after surgery, to my legs, I don't walk so far these days. Age 60, I still work three days a week, and I still have to keep testing my blood, calculating by eye or experience the number of units I should take at a meal. It's always there, and it's always highly experienced guess-work. (Does sex bring your blood glucose down? Exercise does!) A certain spontaneity is sometimes missing, but in my case, I deal with expected things with a suitable dose of insulin or unexpected things slightly retrospectively with minor adjustments to insulin levels or some glucose tablets. As experience of yourself and how your body and diabetes tick along in tandem grows, maybe you just grow accustomed. It can always throw up nasty surprises - an infection, cold, flu, operation - and yes, it's more difficult when you have to give over your control to someone else, and it can be scary. But mostly, for me, I am now still enjoying life, 57 years diabetic T1 and still getting better at playing this game of diabetes management. I don't think we know all the rules or have been given all the counters yet, but goodness me, we're better off than we were.
Good luck and best wishes to you.
* Blessings. I too have trodden a hard path from the days of red and black lines, weighing food, metal and glass syringes kept in surgical spirit and boiled once week.. I went to Reading Festival when I was seventeen and people in the Red Cross tent where I went to rinse my syringe and inject were suspicious....
The insulin pen and bolus with long-lasting insulin regime and (breakthrough!) blood testing meant freedom from eating at set times, test tubes and fizzy pills to test your urine (highly approximate as it was an average over the last however-long-since -you last-peed). Diagnosed November 1958 after going into a coma, oxygen tent, last rights at the age of two, I worked hard to manage my condition once I was old enough - 9 to 10 years old. I envy anyone on a pump and blood glucose reader, as diabetes has had to be in the background of my mind all my adult life. Bless my mum (God rest her) for looking after me so well early on. I had a teenage denial, but came round after the said pen/blood testing meant control was more flexible. My only problem has been arterial disease, particularly blood supply to my legs, but then I smoked for some years. (Risks not so well known or understood then.) Brilliant NHS treatment for this. I am also highly gluten intolerant now - brother and sister both T1 and both coeliac.
What am I saying? Some of us, with the same self-care, may be genetically luckier than others. I am relatively lucky, though with 63% blood supply, after surgery, to my legs, I don't walk so far these days. Age 60, I still work three days a week, and I still have to keep testing my blood, calculating by eye or experience the number of units I should take at a meal. It's always there, and it's always highly experienced guess-work. (Does sex bring your blood glucose down? Exercise does!) A certain spontaneity is sometimes missing, but in my case, I deal with expected things with a suitable dose of insulin or unexpected things slightly retrospectively with minor adjustments to insulin levels or some glucose tablets. As experience of yourself and how your body and diabetes tick along in tandem grows, maybe you just grow accustomed. It can always throw up nasty surprises - an infection, cold, flu, operation - and yes, it's more difficult when you have to give over your control to someone else, and it can be scary. But mostly, for me, I am now still enjoying life, 57 years diabetic T1 and still getting better at playing this game of diabetes management. I don't think we know all the rules or have been given all the counters yet, but goodness me, we're better off than we were.
Good luck and best wishes to you.
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