That's what the wearenotwaiting movement is all about. If we cant' find the answers, get out and do it ourselves. The medical establishment isn't going to, and as 50% of T1s are female, and probably 80% of the T1 researchers are male, it's probably the only way.It's hard not to come to the conclusion that if menopause happened to men, someone would have bothered to investigate.
I was diagnosed T1 when I was 4 - nearly 40 years ago. In my youth I was terrible - I don't know anyone who wasn't. Had lots of scares late 20's with retinopathy, had vitrectomy and now have a dodgy left eye but fab right one.
As a T1 you do think about everything - what am I doing for lunch, can I have that drink, I want to go to the gym in 3 hours so should I eat...
BUT it keeps us heathy, because of our lifestyle we know how to look after ourselves and listen to our body.
I run and own a company with 30 staff - that can be stressful and run havoc with my sugars. If I'm high I can't be grumpy as people rely on me, if I'm in a meeting and low I need food. I've started working abroad in last 6 months - time zones, 3 hour meetings - crazy on my sugars! Stress is a major factor - food, exercise can both be managed, stress raises sugar and is hard to cope with - especially when you are a stress junkie like me!!
My best advice - listen to your body and your gut, do tests when you can and eat properly. I've always struggled a bit with my weight - but lots of people do! Being T1 is sometimes a pain in the backside but with a positive outlook & healthy lifestyle it can be easily managed.
I read about young people who are scared when they are first diagnosed with type 1. They think their lives, dreams and aspirations are over. Some families wrap their type 1 diabetes children in cotton wool. Thankfully, this is not true for all but it definitely happens.I was diagnosed T1 when I was 4 - nearly 40 years ago. In my youth I was terrible - I don't know anyone who wasn't. Had lots of scares late 20's with retinopathy, had vitrectomy and now have a dodgy left eye but fab right one.
As a T1 you do think about everything - what am I doing for lunch, can I have that drink, I want to go to the gym in 3 hours so should I eat...
BUT it keeps us heathy, because of our lifestyle we know how to look after ourselves and listen to our body.
I run and own a company with 30 staff - that can be stressful and run havoc with my sugars. If I'm high I can't be grumpy as people rely on me, if I'm in a meeting and low I need food. I've started working abroad in last 6 months - time zones, 3 hour meetings - crazy on my sugars! Stress is a major factor - food, exercise can both be managed, stress raises sugar and is hard to cope with - especially when you are a stress junkie like me!!
My best advice - listen to your body and your gut, do tests when you can and eat properly. I've always struggled a bit with my weight - but lots of people do! Being T1 is sometimes a pain in the backside but with a positive outlook & healthy lifestyle it can be easily managed.
Yeah, I had a grenade today. Though my insulin was rotten. LOL.I've looked at this thread title a lot. Read many of the posts. I think to myself 'Yeah! I totally get that' and ponder contributing.
T1 is a frustrating, worrying, time consuming, upsetting war. You fight a battle every single day. Sometimes you win, sometimes you lose but the next day the war carries on. You can't stop fighting because you will lose the war against an enemy which is relentless and 24/7. As with all tough and sad situations, you find a way to cope. The mind and body are very strong. Once you accept the battles, the enemy always throwing grenades at you on a daily basis, it becomes life. You can find enjoyment in the little victories and maybe share humour about it with others. Us battle hardened soldiers keep the hopes of a cure locked away at the back of our minds, after being let down so many times before. Maybe one day we'll have peace in our time. Until then, the fight continues.
Just love that you said, "fab". Made me smile.I was diagnosed T1 when I was 4 - nearly 40 years ago. In my youth I was terrible - I don't know anyone who wasn't. Had lots of scares late 20's with retinopathy, had vitrectomy and now have a dodgy left eye but fab right one.
As a T1 you do think about everything - what am I doing for lunch, can I have that drink, I want to go to the gym in 3 hours so should I eat...
BUT it keeps us heathy, because of our lifestyle we know how to look after ourselves and listen to our body.
I run and own a company with 30 staff - that can be stressful and run havoc with my sugars. If I'm high I can't be grumpy as people rely on me, if I'm in a meeting and low I need food. I've started working abroad in last 6 months - time zones, 3 hour meetings - crazy on my sugars! Stress is a major factor - food, exercise can both be managed, stress raises sugar and is hard to cope with - especially when you are a stress junkie like me!!
My best advice - listen to your body and your gut, do tests when you can and eat properly. I've always struggled a bit with my weight - but lots of people do! Being T1 is sometimes a pain in the backside but with a positive outlook & healthy lifestyle it can be easily managed.
The problem with focusing on hbA1c results is that, as you say, they reflect average bg - so ignoring the (potentially) damaging and hard-to-manage spikes and lows. I'd be happier with a (slightly) higher HbA1c if it was a result of a more consistent bg.A few points
Testing on the side of the thumb is less painful than fingers; especially finger tips
I never test anywhere else and don't find it too painful.
The 4 and 7 targets if I recall correctly are carried forward from old guidelines about pre meal testing; post food readings are often higher; diagnostic criteria for diabetes include post meal level of greater than 11, on more than one occasion.
It is more relevant to pay attention to HbA1c readings, which reflect average blood glucose levels over previous 12 weeks.
If you ask your professional advisers for suggestions re post meal target levels you might find that helpful.
Best wishes to all