1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Eye problems

Discussion in 'Ask A Question' started by smithyg17, May 11, 2021.

  1. smithyg17

    smithyg17 · Member

    Messages:
    5
    Likes Received:
    1
    Trophy Points:
    23
    Hi everyone

    Apologies in advance for this long post.

    Just looking for a bit advice and hoping I can put my mind at ease.

    Last year around April time, I was referred to the Ophthalmology dept at my local hospital as there was blood vessels in my left eye starting to bleed and form new ones.

    I felt really down and worried about this as although my control hasn’t been great (85hba1c) I thought I had started to gain a better control of my diabetes.

    I attended my first app in April 2020 and got my 1st laser treatment and the doctor said that I may only need one more session.
    I attended my 2nd app and was seen by a different doctor who completed another course of laser treatment and said that I will need more session.

    I then attended my 3rd app and was seen by the same doctor as last time who done another course of laser treatment (3rd by this point) and then said that my right eye will now need done.

    This got me very worried and more anxious as I was under the impression that my right eye was fine. I questioned the doctor at the time about this and the fact that he kept telling me that I will only need one more session and he said that he will get another doctor to have a look at my next app.

    My 4th app comes (approx August 2020) and I am seen by the same doctor who also had another doctor with him having a look at both eyes who agreed that I need more treatment done on my left eye and also my right eye could benefit from getting done

    I could not get any treatment done on the 4th app as I drove to the app ans had no one with me to drive me home.

    I walked away from the 4th appointment very confused/annoyed/frustrated and even more anxious.

    By this point I had my hba1c heckled by my doctor and to my shock and delight this had went down to 55 which was the lowest it has been in years!

    I got more appointments sent to me from Ophthalmology which I did not attend due to being worried and confused about the whole treatment and why I was constantly being told that “one more session should do it” and being contradicted each time I went to the following appointment.

    Onto this year and my eyes have been fine until last Saturday where I started to see a small line of black dots or one black dot on vision from my left eye.
    My eye isn’t sore but constantly seeing this black dot in my line of vision is annoying and adding more worry to my mind.
    I have attended my optician appointment today who took pictures of my eyes and showed my a small black patch on my left eye which she said that this will be what I’m seeing.

    She has referred me back to the ophthalmologist but she could not say what if this would go away or not or if more treatment will sort the problem out.

    I just need to wait in the referral from the ophthalmologist to come through but I’m worried sick now and so scared!
    It has really got me down recently as I try so hard to look after myself. I’m worried that this will never go away and my eyes will get worst.:(:(:(

    Has anyone experienced anything similar?

    Any help or advice would be greatly appreciated!

    Thanks

    Graeme
     
    • Hug Hug x 2
  2. Dark Horse

    Dark Horse · Well-Known Member

    Messages:
    1,673
    Likes Received:
    923
    Trophy Points:
    133
    Sorry to hear about your situation. When the doctor says 'one more treatment should do it', that is an estimate based on what happens with the average patient. Some individuals don't respond as well to treatment as others and may need more treatments. It's not something that can be predicted exactly - at each appointment the doctors have to review the situation and make a fresh decision about whether further treatment is needed.

    It's possible that you didn't have enough treatment and that new vessels have grown and are bleeding but you need to attend your ophthalmology appointment and be examined to find out. I would urge you to attend all your appointments and follow the advice of the ophthalmologists - they are the experts and are doing their best to help preserve your sight.
     
    • Agree Agree x 2
    • Like Like x 1
    • Friendly Friendly x 1
  3. Grant_Vicat

    Grant_Vicat Don't have diabetes · Well-Known Member

    Messages:
    792
    Likes Received:
    1,108
    Trophy Points:
    178
    Hi Graeme, you won't get better advice than that of @Dark Horse . I was exatly in your shoes from 1979-1983. Had both eyes lasered several times. Good control stopped further rot, but I am also aware that any extreme aerobic exercise could cause bleeds even now. Some years ago an ophthalmologist, on looking at both my eyes, said "Blimey, it's like looking at a street map of London!" I only need reading glasses even now. There is light at the end of the tunnel. Very good luck!
     
    • Like Like x 1
    • Friendly Friendly x 1
  4. Helen40

    Helen40 · Active Member

    Messages:
    31
    Likes Received:
    9
    Trophy Points:
    8
    I was diagnosed with prolific diabetic retinopathy in 2019, I had 2 lots of laser in each eye and have been getting eye I jections every 8 weeks since then, my swelling is gone and I gave a review in 2 weeks to decide whether I need more injections. I have black dots and squiggly lines in my eue and my consultant thinks a vitreoctamy may further benefit this to clear out the 'gunk' and remove the abnormal vessels that keep bleeding. Any more laser would affect my ability to drive. Please keep all your spots, so much can be done to slow or even halt further progression. Treatments today are pretty awesome too! I'm still scared for the future and frustrated when I struggle with computer screens and reading subtitles is pretty impossible but I'm grateful for the sight I have and know this is down to the excellent treatment and care I've received from my eye clinic. Keep in touch with us on updates!
     
    • Like Like x 2
    • Friendly Friendly x 1
  5. smithyg17

    smithyg17 · Member

    Messages:
    5
    Likes Received:
    1
    Trophy Points:
    23
    Thank you to everyone so far for the replies and encouragement :)
    I will be sticking to my appointments when I get them from now on.
    My biggest fear is losing my sight and also losing the ability to be able to drive as I depend on being able to drive the car to get to work and go to the gym and play football.

    @Helen40 That sound’s scary! What does the injections do for eyes? Do you know if the vitreoctamy surgery will help improve your sight if you were to get that done?
     
    • Like Like x 1
  6. Helen40

    Helen40 · Active Member

    Messages:
    31
    Likes Received:
    9
    Trophy Points:
    8
    Hello! The Injections are not something I look forward to, but they have helped tremendously, they help to stop the abnormal vessels from leaking, my eyes were very swollen and the swelling has now all gone and flattened out, they're called anti vegf which reduces the substance vegf we all have from over producing these abnormal vessels 'tryibg' to fix our eyes. My next appt is on the 26th to find out about the surgery, I'll let you know. From a lot of support on here I've heard many positive things about it, one lady eho had numerous prolonged bleeds regained her licence after having the victrectomy. I have so much gunk floating around my eyes I'm hoping that scooping that away and taking away the naughty vessels will help me too!!
     
    • Like Like x 2
  7. Helen40

    Helen40 · Active Member

    Messages:
    31
    Likes Received:
    9
    Trophy Points:
    8
    1 positive thing I keep in my head, my consultant said to me that he has not had a diabetic patient totally lose their sight in over 10 years, good words to remember when I'm low about it all!
     
    • Like Like x 1
  8. Lynneco

    Lynneco Type 2 · Newbie

    Messages:
    3
    Likes Received:
    4
    Trophy Points:
    43
    Hi Graeme. You have my sympathies on this. I have been going to the excellent eye treatment centre at my local hospital for similar problems for the past 9 years. I have had frightening experiences too - but they are less scary when you ask questions and ask them to explain things to you and go through scans and eye pictures. Ask to see them and have them explained. To date I have had both cataracts removed, several vitrectomies - sounds scarier than it is - numerous injections into the eye (no it doesn't hurt) and laser sessions. My eyes have improved tremendously and my sight is good. I have also made good friends with several of the nurses and doctors. Everybody has been so helpful and encouraging. I have just been discharged from one clinic completely, have a phone follow-up next year and am left with one clinic ongoing.

    I know how frightening it is to have bleeds, black squiggles which expand and then cloud your vision. Sometimes they spontaneously resolve after around a month. At other times they need to be removed. These will eventually stop. Vitrectomy replaces the jelly in the eye which is pulling and degrading as you get older. All I can say is to hang in there. You are not alone - it just feels like ti at times. Always take someone with you to drive you home, especially if you're not sure what you're having done. I wish you good luck and success.
     
    • Like Like x 3
  9. Dexterdobe

    Dexterdobe Type 2 · Well-Known Member

    Messages:
    305
    Likes Received:
    202
    Trophy Points:
    83
    I have had similar problems in one eye only. I've had 24 injections and two laser treatments. It's taken three four years, but my vision is now stable. I've been lucky as I even my bad eye is good enough for me to drive.
    Treatment for this family of eye problems is improving all the time. Injections are effective and generally cause less damage to the retina than lasers. Eye drops are being developed which will do away with the need for injections and remarkable new treatments are in the early stage of development. By the way, anyone reading this who has rejected eye injections because the whole idea sounds terrifying, take note. It is nowhere near as bad as it sounds. to be honest I would rather have an eye injection than the one they give you to numb teeth at the dentist.
     
    • Like Like x 1
  10. Lynneco

    Lynneco Type 2 · Newbie

    Messages:
    3
    Likes Received:
    4
    Trophy Points:
    43
     
  11. Lynneco

    Lynneco Type 2 · Newbie

    Messages:
    3
    Likes Received:
    4
    Trophy Points:
    43
    Well said! The idea is far worse than. the reality. For the first few injections I had a lovely nurse to hold my hand and reassure me.
     
    • Like Like x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook