Wish me luck. I suspect the steroids will increase
It is for the MG which seems to be deteriorating, big time, but I suspect that I will be back on the insulin sometime soon.
Stay safe everyone.
Glad it wasn't quite so bad and steroids not upped yet hopefully the other meds will work for you, chairs are difficult I know and getting stuck in the bath can be embarrassing and worrying I know, one way I have found to deal with stairs is to crawl up them or sit on the first step then shift yourself up to the next step aided by pushing down with arms quite often go down stairs on my bum a step at a time.Thanks for all the good wishes. The wheelchair was a godsend. It was the first outing for it. I had to. Be dumped at the main entrance whilst hubby found parking. Was able to get in and make my way to the apt all by myself!
Myasthenia gravis is deteriorating. Reintroduced some tablets and if no improvement will have to double the steroids.
Will have a phone consultation end of October. I am only the second patient he has seen face to face since lockdown started.
I feel a bit more optimistic now. The stairs are becoming more difficult. I can't get out of a chair
If it doesn't have arms. Got stuck in the bath. All sorts go through your mind. Hopefully things will improve.
Absolutely not! The ideas are tickling the back of my mind, but I am not ready to give in just yet.What a downer!
Impressed you got the actual appointment though. Perhaps we should re-name you HRHxfieldok.
is this the time you start looking at stair lifts and one of those chairs that can stand you up?
We have been looking at a stair lift for me (knee deterioration) and recently organised a superchair for my mother. V impressed with the chair. She finds it great.
if and when you go through a better phase, you wouldn't need to use the motorised part, but you would still have a v nice reclining armchair.
Absolutely not! The ideas are tickling the back of my mind, but I am not ready to give in just yet.
I have hat a total of 3 episodes where I suddenly felt really good. It didn't last long but it gave me hope that something was trying to work. Very occasionally I allow myself to wallow a bit, but I am incredibly lucky compared to some.