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Fed up with hospital

Lemonie

Well-Known Member
Messages
244
Location
Fylde Coast
Type of diabetes
Type 2
Treatment type
Diet only
About a year and a half ago I was referred to the hospital for my diabetic treatment which I thought was a step forward. Big mistake. I was at the time on Levemir but the hospital started me on Victoza and then the Levemir was pushing me towards hypos so they stopped it. Victoza is not licensed for use on it's own but why let the law get in the way! I have had increasingly bad side effects on the Victoza with bad discomfort in my stomach, vomiting, eggy burps and after the worst episode on Nov 5th where I thought I was going to have to call out the doctor in the night (have never ever had to do this for anything before) I felt so bad I stopped the Victoza. I rang the DN at my practice but as I had an appointment at the hospital in 2 weeks she said to keep that as she didn't want me to discharge myself as it would look as though she was over riding what the hospital said which I understood.

So another appointment, yet another new specialist who doesn't seem to know what's going on. Told me I had not given Victoza much of a chance only being on it 3 months .. erm I've been on it over a year! My Hba1c was 54 which he said was quite good and he wasn't going to give me any medication at the moment!!!!!!! Well it was quite good as up until 2 weeks ago my control was not good, but not bad but I have just told you I have stopped my medication and my bloods just now were 16.5? Yes but your Hba1c was ok. He was seriously going to leave me with no meds and then when I go back in 3 months, if my bloods haven't hit double figures by then, my Hba1c will be through the roof and they will be trowing all sorts at me which will push me to hypos.

I have come away with absolutely no confidence in my specialist but after a strop a script for Levemir at 4 units a day which is better than nothing but last time I was on 10 which controlled it. Why can he not see that after stopping my meds I need something to replace it and not to treat me based on what has passed .. I don't get it.
 
I don't blame you for being upset and personally I don't think and hba1c is good enough at at 54 to come off of medication but after years of being diagnosed diabetic I still don't know what my DN wants my hba1c to be. I just know what I would like my hba1c to be but apparently an hba1c of 45 means I don't have diabetes any more and am no longer on tablets for the next two months? Like you I don't want to see readings of 16.00 mmol/l. This sort of thing seems to be happening to people at the moment and I am not sure what is going on?
 
jenrose said:
I don't blame you for being upset and personally I don't think and hba1c is good enough at at 54 to come off of medication but after years of being diagnosed diabetic I still don't know what my DN wants my hba1c to be. I just know what I would like my hba1c to be but apparently an hba1c of 45 means I don't have diabetes any more and am no longer on tablets for the next two months? Like you I don't want to see readings of 16.00 mmol/l. This sort of thing seems to be happening to people at the moment and I am not sure what is going on?

That's odd. With an HbA1c of 46, I've just been confirmed as diabetic (T2). When I began testing, immediately following that diagnosis a few weeks ago, my levels were yo-yoing between 4.2-14. A significant change of lifestyle and metformin now seems to have helped stabilise that, but I can't see how I'd be OK to come off the meds AND lead a non-diabetic life.
 
i dont see whats the problem with putting you back on levemir if that was working? madness :(
 
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