Alexandra100
Well-Known Member
No wonder GPs don't like prescribing it! I'd love to have this test, but in a way it would be idle curiosity, as I can't see what I could change in response to the result.
No wonder GPs don't like prescribing it! I'd love to have this test, but in a way it would be idle curiosity, as I can't see what I could change in response to the result.£225.00 last year at rivers hospital in Hertfordshire
https://www.rivershospital.co.uk/treatments/ct-calcium-scoring
My GP is very good in some areas but let's himself down in other areas. He is very old school.
That is what puzzled me, I have reduced my cholesterol in the past. My GP says that because it has reached 7.5 that it is now FH genetic and when it gets back to normal levels I will be kept on a lower dose 10mg statins for the rest of my life.
I was puzzled myself with what the doctor said, and when I read into further extra testing was advised.He isn't really correct. It is an indicator of FH but not a reason to diagnose. Further investigations have to be done.
The NICE guidelines says:
1.3.7 Consider the possibility of familial hypercholesterolaemia and investigate as described in familial hypercholesterolaemia (NICE guideline CG71) if they have:
https://www.nice.org.uk/guidance/cg71
- a total cholesterol concentration more than 7.5 mmol/litre and
- a family history of premature coronary heart disease. [new 2014]
https://www.nice.org.uk/guidance/cg...d-assessing-cardiovascular-disease-cvd-risk-2
So your doctor should not have diagnosed FH but should be investigating it further.
No, not pathetic at all. I used to take my Mum shopping on Fridays. One day she asked to go on Thursday instead because Friday was the 13th. I wish I hadn't listened to her, I had a car accident on Thursday 12th!She reminded me the other day about our return flight from Crete and we did laugh about it because our gate number had changed from 10 to 13 it sent me over the edge into panic mode. The reason behind the panic is because I see number 13 as an unlucky number and panicked for 4.5 hours back to the UK. (Pathetic I know)
Does that mean you have a genetic condition which comes and goes? Seems more than a little strange. Were you referred to a lipid specialist?That is what puzzled me, I have reduced my cholesterol in the past. My GP says that because it has reached 7.5 that it is now FH genetic and when it gets back to normal levels I will be kept on a lower dose 10mg statins for the rest of my life.
Doctor's seem to be confused about this.My latest Total cholesterol was 9.8 but nothing has been mentioned to me abut FH.
No didn't get a referralDoes that mean you have a genetic condition which comes and goes? Seems more than a little strange. Were you referred to a lipid specialist?
Thank youI felt less like a powerless victim of circumstance and genes when I took control of my type 2 and cholesterol through a high fat, low carb diet... I'm off statins now and eat bacon, sometimes 3 times a day. Cholesterol's fine, HbA1c 34, no meds. Some need a little medicinal help, but both metformin and statins had so many extremely unpleasant sude effects for me, I'm still thankful for a LCHF/keto alternative that does work for me. Good luck, and enjoy your vacation!
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