- Messages
- 12
Hi,
I was on Rybelsus and doing very well on it - I started on 3mg and gradually, over 6 months titrated up to 14mg. My A1c went from 79 and it slipped all the way down to 51 - usual readings of between 6-8 - then the shortage happened! Diabetics could not get the meds they needed because of unscrupulous doctors prescribing off licence for weight loss. I am very intolerant to Metformin and Metformin SR. So, was given Lyxumia as an alternative - this made me so sick
. Hence being put on Rybelsus. As an alternative when the shortage happened I was given Sitagliptin which was not helping much, so Jardiance was added to the mix. This worked and sugar levels began to fall again - then the thrush started. Absolutely horrendous! Spoke to Diabetic Nurse who advised to stop taking it for a few days until the thrush cleared up. Did this, back on it for less tan 2 weeks and the thrush was back . My life was bloody miserable, blood sugars creeping up, thrush causing great distress and generally feeling rubbish. Rang Docs surgery asked for a call back to discuss options, was basically told, there isn't any alternative and more or less just to suck it up buttercup. I would be added to the list for a new drug/alternative of a once per week injection (which isn't available yet) and no timescale given. I have never felt so let down as I did after that phone call. Ten days or more passed and I was really feeling awful - blood sugars constantly above 15 . Spoke to Docs again (GP) who really wasn't interested and palmed me off with a follow-up call from the DN. After 8 days, still no contact from DN - I eventually filled in an Online Consult form and some 15 days after a promised follow-up I am to have a phone call tomorrow from the Diabetic Nurse. I have since found out from my Pharmacist that Rybelsus is back in stock again - all doses available and in good stock - I am awaiting the fobbing off and excuses tomorrow about being re-prescribed. I am doing my part but being ignored by my healthcare professionals. I do not want my health to deteriorate so much that I cannot pull it back. Right now I am feeling so disheartened and failed by ignorance. Sorry for the long read, now my mental health is starting to suffer as I feel so rotten most of the time.
I was on Rybelsus and doing very well on it - I started on 3mg and gradually, over 6 months titrated up to 14mg. My A1c went from 79 and it slipped all the way down to 51 - usual readings of between 6-8 - then the shortage happened! Diabetics could not get the meds they needed because of unscrupulous doctors prescribing off licence for weight loss. I am very intolerant to Metformin and Metformin SR. So, was given Lyxumia as an alternative - this made me so sick
. Hence being put on Rybelsus. As an alternative when the shortage happened I was given Sitagliptin which was not helping much, so Jardiance was added to the mix. This worked and sugar levels began to fall again - then the thrush started. Absolutely horrendous! Spoke to Diabetic Nurse who advised to stop taking it for a few days until the thrush cleared up. Did this, back on it for less tan 2 weeks and the thrush was back . My life was bloody miserable, blood sugars creeping up, thrush causing great distress and generally feeling rubbish. Rang Docs surgery asked for a call back to discuss options, was basically told, there isn't any alternative and more or less just to suck it up buttercup. I would be added to the list for a new drug/alternative of a once per week injection (which isn't available yet) and no timescale given. I have never felt so let down as I did after that phone call. Ten days or more passed and I was really feeling awful - blood sugars constantly above 15 . Spoke to Docs again (GP) who really wasn't interested and palmed me off with a follow-up call from the DN. After 8 days, still no contact from DN - I eventually filled in an Online Consult form and some 15 days after a promised follow-up I am to have a phone call tomorrow from the Diabetic Nurse. I have since found out from my Pharmacist that Rybelsus is back in stock again - all doses available and in good stock - I am awaiting the fobbing off and excuses tomorrow about being re-prescribed. I am doing my part but being ignored by my healthcare professionals. I do not want my health to deteriorate so much that I cannot pull it back. Right now I am feeling so disheartened and failed by ignorance. Sorry for the long read, now my mental health is starting to suffer as I feel so rotten most of the time.
