Flip74
Member
Hi,
I was hoping you could please give me advice regarding the following.
On the 24th of September 2020, I was rushed in to hospital for a blood transfusion due to what the GP said was "life threateningly low haemoglobin". I was also found to be deficient in various vitamin and minerals, mainly Vitamin B12 and diagnosed with pernicious anaemia. I was started on Hydroxocobalamin injections, and referred to Gastroenterology as I have had issues since birth with digestive system issues. Following tests arranged by Gastroenterology, I was found to have NAFLD, Barrett’s Oesophagus, and a Hiatus Hernia.
My HbA1c, at the time, was 44 mmol/mol (<48 mmol/mol), with anything between 42 and 47 mmol/mol requiring annual checkups.
On the 28th of September 2021, my HbA1c was still 44 mmol/mol.
After my appointment with a gastroenterologist on the 25th of October, last year, more blood samples were taken. A couple of days later, I received a telephone call from the Pharmacy department of the hospital saying a prescription was waiting for me. This was for Magnesium and Phosphorus, as I was deficient in both. Later that day, I also received a letter from the gastroenterologist I’d seen a few days earlier asking me to repeat some blood tests within a fortnight, but no detail what for.
Unfortunately, I didn’t manage to get the sample taken until the 25th of January, this year; I am agoraphobic and find it hard to go out. I’d heard nothing else from the hospital, or the GP, so didn’t think it was that important, and, if there was anything, they’d contact me regarding the latter test as I was sure nothing had changed in the way I feel.
As I’d not heard anything by 8th of February, I requested copies of the last two blood test results.
On the 25th of October 2021 it says:
HbA1c (IFCC Traceable) = 82 mmol/mol (<48 mmol/mol)
For monitoring known diabetic patients, please follow NICE guidelines.
If not a known diabetic and the patient is asymptomatic, a second confirmatory sample is required within 2 weeks (WEDS Guidance).
So I guess this why I should have repeated the test sooner. The thing is, I’ve not been asked about any symptoms I’m having, which I am. According to the WEDS (Welsh Endocrine and Diabetic Society) Guidance, I found out that a second test wouldn’t have been required if I’d been asked about symptoms.
For the test taken on the 25th January 2023, it says:
HbA1c (IFCC Traceable) = 97 mmol/mol (<48 mmol/mol)
For monitoring known diabetic patients, please follow NICE guidelines.
If not a known diabetic and the patient is asymptomatic, a second confirmatory sample is required within 2 weeks (WEDS Guidance).
Also this time,
Glucose (Fasting) 16.7 mmol/L (3.0 - 6.0 mmol/L)
I’ve heard nothing, and don’t have an appointment with a Gastroenterologist until April. I really thought they’d ask me to repeat the test within 2 weeks again, at least?
I’m really lost on what to do next. I’ve not heard from a G.P. since I was admitted in September 2020 (my G.P. surgery merged with 3 others, and we were moved to a different practice). They knew about the low B12 & folate, and that there were signs of liver damage in 2007, but never notified me - I only found this out last year when I obtained my records. I’m under the mental health team for depression, and have previously been told I’m a hypochondriac by the CMHT even though these things were flagged up in blood tests and not imagined. It’s because of this that I feel I cannot go to a doctor about this, or any other issues. I’m feeling pretty rough.
Thank you,
Phillip.
I was hoping you could please give me advice regarding the following.
On the 24th of September 2020, I was rushed in to hospital for a blood transfusion due to what the GP said was "life threateningly low haemoglobin". I was also found to be deficient in various vitamin and minerals, mainly Vitamin B12 and diagnosed with pernicious anaemia. I was started on Hydroxocobalamin injections, and referred to Gastroenterology as I have had issues since birth with digestive system issues. Following tests arranged by Gastroenterology, I was found to have NAFLD, Barrett’s Oesophagus, and a Hiatus Hernia.
My HbA1c, at the time, was 44 mmol/mol (<48 mmol/mol), with anything between 42 and 47 mmol/mol requiring annual checkups.
On the 28th of September 2021, my HbA1c was still 44 mmol/mol.
After my appointment with a gastroenterologist on the 25th of October, last year, more blood samples were taken. A couple of days later, I received a telephone call from the Pharmacy department of the hospital saying a prescription was waiting for me. This was for Magnesium and Phosphorus, as I was deficient in both. Later that day, I also received a letter from the gastroenterologist I’d seen a few days earlier asking me to repeat some blood tests within a fortnight, but no detail what for.
Unfortunately, I didn’t manage to get the sample taken until the 25th of January, this year; I am agoraphobic and find it hard to go out. I’d heard nothing else from the hospital, or the GP, so didn’t think it was that important, and, if there was anything, they’d contact me regarding the latter test as I was sure nothing had changed in the way I feel.
As I’d not heard anything by 8th of February, I requested copies of the last two blood test results.
On the 25th of October 2021 it says:
HbA1c (IFCC Traceable) = 82 mmol/mol (<48 mmol/mol)
For monitoring known diabetic patients, please follow NICE guidelines.
If not a known diabetic and the patient is asymptomatic, a second confirmatory sample is required within 2 weeks (WEDS Guidance).
So I guess this why I should have repeated the test sooner. The thing is, I’ve not been asked about any symptoms I’m having, which I am. According to the WEDS (Welsh Endocrine and Diabetic Society) Guidance, I found out that a second test wouldn’t have been required if I’d been asked about symptoms.
For the test taken on the 25th January 2023, it says:
HbA1c (IFCC Traceable) = 97 mmol/mol (<48 mmol/mol)
For monitoring known diabetic patients, please follow NICE guidelines.
If not a known diabetic and the patient is asymptomatic, a second confirmatory sample is required within 2 weeks (WEDS Guidance).
Also this time,
Glucose (Fasting) 16.7 mmol/L (3.0 - 6.0 mmol/L)
I’ve heard nothing, and don’t have an appointment with a Gastroenterologist until April. I really thought they’d ask me to repeat the test within 2 weeks again, at least?
I’m really lost on what to do next. I’ve not heard from a G.P. since I was admitted in September 2020 (my G.P. surgery merged with 3 others, and we were moved to a different practice). They knew about the low B12 & folate, and that there were signs of liver damage in 2007, but never notified me - I only found this out last year when I obtained my records. I’m under the mental health team for depression, and have previously been told I’m a hypochondriac by the CMHT even though these things were flagged up in blood tests and not imagined. It’s because of this that I feel I cannot go to a doctor about this, or any other issues. I’m feeling pretty rough.
Thank you,
Phillip.
