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Fibromyalgia

MissMJ73

MissMJ73

Well-Known Member
Messages
50
Type of diabetes
Type 1
Treatment type
Insulin
So I’ve found out today I may have fibromyalgia. Dr wants to do a couple of blood tests just to rule out a few other things but he’s pretty certain what it is. After being in constant pain from my neck down to my toes for about a year now I’m finally glad to have a diagnosis and hopefully on the way to getting some pain relief.
 
MissMJ73 said:
So I’ve found out today I may have fibromyalgia. Dr wants to do a couple of blood tests just to rule out a few other things but he’s pretty certain what it is. After being in constant pain from my neck down to my toes for about a year now I’m finally glad to have a diagnosis and hopefully on the way to getting some pain relief.
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well apparently, a low carb diet can help with that.
 
Sorry to hear this @MissMJ73 it’s good that they are ruling out other causes.
 
Hate to tell you but there is no pain relief, control maybe but if you truly have fibromyalgia then welcome to living hockey stick. Because there is no one treatment for it, it is a junk catch all of medical when they can't find another root cause. To explain your pain, or do not care to look further or get other specialists involved.

Was told I have fibromyalgia 5 years ago, didnt believe the doc sounded wrong n fishy. Yep it was he never put down in my official medical records that diagnosis, he actually put insufferable pain (which is a completely separate condition) and sent me on my way. To live in pain, my gp took his word at face value and nothing more.

Fast forwars new gp one who sides with ne that there is something wrong and to get to the bottom of it, three neurologists later and many MRIs, CT/PET scans and several nerve conduction tests and I get dianosed with Dystonia (which is a condition that can cause insufferable pain).

I'm not saying fibromyalgia doesn't exist but it has become for many a catch all instead of continuing to search. Or so it does seem from all the people I've talked to who say that they have fibromyalgia and who havent kept searching for answers when lifestyle changes are made and what not.

Good luck on your journey and dont let them white wash things because it doesnt dit into a tidy whole.
 
Nyxks said:
Hate to tell you but there is no pain relief, control maybe but if you truly have fibromyalgia then welcome to living hockey stick. Because there is no one treatment for it, it is a junk catch all of medical when they can't find another root cause. To explain your pain, or do not care to look further or get other specialists involved.

Was told I have fibromyalgia 5 years ago, didnt believe the doc sounded wrong n fishy. Yep it was he never put down in my official medical records that diagnosis, he actually put insufferable pain (which is a completely separate condition) and sent me on my way. To live in pain, my gp took his word at face value and nothing more.

Fast forwars new gp one who sides with ne that there is something wrong and to get to the bottom of it, three neurologists later and many MRIs, CT/PET scans and several nerve conduction tests and I get dianosed with Dystonia (which is a condition that can cause insufferable pain).

I'm not saying fibromyalgia doesn't exist but it has become for many a catch all instead of continuing to search. Or so it does seem from all the people I've talked to who say that they have fibromyalgia and who havent kept searching for answers when lifestyle changes are made and what not.

Good luck on your journey and dont let them white wash things because it doesnt dit into a tidy whole.
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Yes, fibro is the diagnosis they give when they have exhausted everything else. There is no definitive test for it other than unexplained pain in one or more joints for , if I remember correctly, 3months.

Interestingly I read that intestinal yeast infections can be related to it, and I wouldn't be surprised if oxolate toxicity may be involved as well, as that can cause unexplained joint pain and similar symptoms to fibro.

Intestinal yeast infection is related to leaky gut and is like SIBO only it's a yeast overgrowth in the small intestine. People can have the infection for years without knowing, becoming increasingly more miserable as time goes on.

Treatment is a diet designed to starve out the yeast, similar to keto diet, but different. Probably why low carb diets help fibro.
 
Antechinus said:
Yes, fibro is the diagnosis they give when they have exhausted everything else. There is no definitive test for it other than unexplained pain in one or more joints for , if I remember correctly, 3months.

Interestingly I read that intestinal yeast infections can be related to it, and I wouldn't be surprised if oxolate toxicity may be involved as well, as that can cause unexplained joint pain and similar symptoms to fibro.

Intestinal yeast infection is related to leaky gut and is like SIBO only it's a yeast overgrowth in the small intestine. People can have the infection for years without knowing, becoming increasingly more miserable as time goes on.

Treatment is a diet designed to starve out the yeast, similar to keto diet, but different. Probably why low carb diets help fibro.
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Just to say I had my vitamin D3 measured and it was low. (No Sun)
And was given supplement from the Dr and I feel a little better. Vitamin D was put into cereal and bad oils by govn expert as we don't eat these any more as part of low carb diet . Maybe worth checking?? Dr Ken Berry has a utub e video about it and tells you where to find these vitamins in real food. He has a link to Zoe Harcome talk 10 years ago.
 
I was tentatively diagnosed by a GP, then eventually referred to the local pain clinic were it was confirmed. Note this is not a generic pain 'course' but a hospital clinic with a consultant and specially trained nurses and physios.
They lent me a tens machine for 4 weeks to see if that would help as I also have osteoarthritis. Then put me on pregabalin and upped the dose of my opioid painkiller. A letter to my GP confirmed the max codeine dose I can have and the programme to increase the pregabalin over a few weeks.
Try to get a referral as it does help to confirm the diagnosis, finds the best treatment for you, and prevents most medical staff telling you it's nothing.

Recently a neurologist told my GP that I probably have CFS (ME) as well. Other than confirming I need to rest more when symptoms flare up there is no further treatment.
I went low carb last year, and while I've seen others post low carb helped, and it got my diabetes into remission, it made no difference to my pain or exhaustion.
 
I was diagnosed with fibromyalgia 10 years ago. Meds after meds and nothing worked, 3 separate specialists, rheumatologist, and every one of them came to the conclusion it was fibro.
Thing is they don’t know what it is precisely or how to treat it, so there really isn’t much help out there, and to add insult to injury, if you go to the doctors for anything else, they blame the fibro.
One doc tried me on steroids (injection) sent me into an anaphalytic shock but hey it worked. They refused that again, for obvious reasons.
It hurts, it’s painful and it sucks but you can’t let it beat you.
I blame mine on having glandular fever almost 18 years ago and I’ve never been well since. I’ve tried normal diets, lost 3 stone, it helps a little. Now I’m on a low carb diet to try to combat prediabetes so here’s hoping that will help both
Fingers crossed you find something to make the pain bearable for you xx
 
I have fibromyalgia as well as type 2 diabetes its awful to be in so much pain I too went to a rheumatologist who diagnosed me then to the pain clinic where I was started on gabapentin and amitriptyline I'm also vitamin D deficient so am taking a supplement as well as propranolol for migraines, hence trying to get my diabetes under control so that medication is not needed for this as well....I will be rattling if i take any more.
 
@MissMJ73 - within all the tests you have
MissMJ73 said:
So I’ve found out today I may have fibromyalgia. Dr wants to do a couple of blood tests just to rule out a few other things but he’s pretty certain what it is. After being in constant pain from my neck down to my toes for about a year now I’m finally glad to have a diagnosis and hopefully on the way to getting some pain relief.
Click to expand...

Hi there - your new diagnosis must be a bit of a blow.

In all the tests your Doc has done, has he checked out your thyroid? There is considered, by some, to be a connection between under-treated hypothyroidism and fibromyalgia.

The sad reality is fibromyalgia is a definition of default, and best guess, when other causes are ruled out.

Good luck with it all.
 
DCUKMod said:
@MissMJ73 - within all the tests you have


Hi there - your new diagnosis must be a bit of a blow.

In all the tests your Doc has done, has he checked out your thyroid? There is considered, by some, to be a connection between under-treated hypothyroidism and fibromyalgia.

The sad reality is fibromyalgia is a definition of default, and best guess, when other causes are ruled out.

Good luck with it all.
Click to expand...
A couple of years on and everybody is talking menopause. It can be one of the symptoms as well. And tinnitus.
 
Fibromyalgia can be a symptom of menopause. But I hope you've solved it by now. x
 
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