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First HbA1c

BekkiG74

BekkiG74

Well-Known Member
Messages
63
Type of diabetes
Type 1
Treatment type
Insulin
So today was my little girls first clinic appointment since dx. Really pleased with HbA1c it was 51mmol and 6.8% I'm really not too sure exactly what that means but dsn told me that it was brilliant and they were really happy but it would be unrealistic to expect it to be that good in the future not really sure why and when I asked they said everything will change once we are out of the honeymoon period. Has anyone else experienced this?

Not sure whether to be happy about today or worry more about the next time
 
I'll bump your post up so that a Type1 can explain about the honeymoon period.
Well done that girl on her results.
 
hi bekki
51 or 6.8 in old terms is a fantastic start. perhaps the nurse is just starting off being pessimistic so as not to create too much expectation for you and your daughter. in the honeymoon period the body still produces some of its own insulin meaning it can be harder to prevent unexpected lows and making things more unpredictable generally. honeymoon period can last for quite some time too.( many months or up to a year )
at this point i would just be thrilled with the great work you both have accomplished and continue 1 day at a time and certainly don't worry.
( and prove the nurse wrong hopefully :) next time )

have tagged @noblehead for his great advice
 
Thanks @himtoo I do understand why the nurses were saying that , more now I've had time to reflect and also after having had a really strange week of levels. Since we gained control after dx we had been really stable but this week we have had highs of 30.6 and a low of 2.4. Has just made me realise how unpredictable this condition is!

Thanks again for your comment :-)
 
Bekki,

It's a great HbA1c, and all power to you. As you get more experienced and confident in diabetes, you'll be able to decide for yourself what sort of targets to aim for for your daughter, and discuss with your team how to get there. If it's affordable for you guys at all, a great tool in managing your daughter's diabetes would be the freestyle Libre. It costs about £100 a month, but you can do it for one or two months at a time, and no startup cost. It means you can keep an eye on her BG without pricking all the time, and in her sleep. Also, you can experiment with how far ahead to inject and what the effect of that is on cutting spikes/keeping BG even and low.

For me, that knowledge has made a real difference. I got control at last.

All power to you as a caring parent. Such a hard job.
 
Thank you! @LucySW I will definitely look into the libra option! Sounds like it would be really helpful for us :-)
 
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