Hi guys, I’m new on this forum and fairly new to the diabetes community. I am 19, weighing 52kg and I was diagnosed in August 2015, meaning I’ve had type 1 diabetes for 2 years and 8 months. Since diagnosis, I have had very poor control due to needle phobia making it hard for me to test my sugars and inject. My current hba1c is 18%, glucose levels range between 18-Hi (over 33.3) on a daily basis. Also, I regularly have dka, at least once a month.
I am aware of the complications that can happen and although they do scare me it hasn’t motivated me enough to face my fears. I have people do my injections for me when I have company but when I’m alone I can’t do it. And since this stresses me it has lead to depression, as well as kidney failure scares, and retinopathy fears. (Sometimes my eyes get blurry, not sure if it’s because of diabetes, sometimes my fingers get tingly and I get cramps in my legs a lot).
I have not yet come to terms with it, which definitely contributes to the problem. I have tried therapy, the freestyle libre and the i-port (currently using a TrueYou meter), I’ve also tried counselling, family therapy and dieting. It feels like a dead end, and I’m getting worried.
All advice is appreciated. Thank you
Hi guys, I’m new on this forum and fairly new to the diabetes community. I am 19, weighing 52kg and I was diagnosed in August 2015, meaning I’ve had type 1 diabetes for 2 years and 8 months. Since diagnosis, I have had very poor control due to needle phobia making it hard for me to test my sugars and inject. My current hba1c is 18%, glucose levels range between 18-Hi (over 33.3) on a daily basis. Also, I regularly have dka, at least once a month.
I am aware of the complications that can happen and although they do scare me it hasn’t motivated me enough to face my fears. I have people do my injections for me when I have company but when I’m alone I can’t do it. And since this stresses me it has lead to depression, as well as kidney failure scares, and retinopathy fears. (Sometimes my eyes get blurry, not sure if it’s because of diabetes, sometimes my fingers get tingly and I get cramps in my legs a lot).
I have not yet come to terms with it, which definitely contributes to the problem. I have tried therapy, the freestyle libre and the i-port (currently using a TrueYou meter), I’ve also tried counselling, family therapy and dieting. It feels like a dead end, and I’m getting worried.
All advice is appreciated. Thank you
Hi.
I'm new at this whole forum and type 1 diabetes thing also. This is actually my first time posting something. (I usually just read everything)I'm a mother of a young little man named Dylan.. Hes 3 years old and he got diagnosed almost a year ago. The last year has been the toughest year of my life (I'm 30). My oldest brother growing up had type 1 since he was 7. So I had some knowledge about it all. But I had no clue. And I still don't because my son has it, not myself.
BUT the point of this is I learned a great amount (and still learning more everyday ) and I just wanted to share some things I have learned along the way that might help you.
So when my son got diagnosed he was put in icu for 6 days. This little man, going to the hospital and leaving with a new life that I have to control. So his glucose was so Hi that his body produced keystones. (I'm sure your familiar, if not Google and read as much as you can about it) they couldnt give him insulin for a whole 24 hours because if they dropped his sugars(blood glucose) to quickly his brain would swell and he could have died. (When your glucose is to high for to long these keytones will be produced in anybody).
Now having hi glucose a lot as you know causes damage in the long run which you already know that and if you have a low you could go into a diabetic coma have a stroke ( everybody and every time is different for everyone of course) and so much more.
Its so scary when I sit and think an about how my little guy has to live with this the rest if his life..and I wish that I could take his place everyday. But its okay because hes strong and deals with it pretty well. And we have bad days of course but who doesnt right? I think he deals with it better then I do .
For you.. For yourself, your health physically and mentally please find the best device that can help you control this. Research all your options (a pump maybe would be a good option) .. Less pokes on your figure and injections wise. Dont let this bring you down. You have to take care of your body. You will feel so much better with controlled glucose. You are young and the next few years are only the begining of the rest of your life. You deserve to feel good and be confident and not let this bring you down.
Do it For you. Research everything to know about this, join a community group, just dont give up on this because of the shots. They have so many more options.
Also, My brother is 4 years older then me. At 34 he has 3 beautiful little girls. His youngest being 1 year.. And hes not going to live a long life because he has not taken very good care of him self through out his life with type 1. Everytime I think about it it breaks my heart because it's my brother and I love him.
I could sit here and try to convince you but I don't have it myself. But I do know you have to want to do better. so it's easy to say to do better... Or you have to do better , or you should have done better but I don't know what it's like to live with it everyday and I'm sure that it gets real old and I'm sure that I would get just as sick of it like everybody else that has to do this. ..But the last year has really been a reality check for myself caring for my son because it's in my hands, he depends on me to take care of him so what I do is I research and I read and I want to know how to do this the right way because this is his life and I want to give him the knowledge to care for himself The best way I can because it's really important.
If you need motivation, to talk and share ideas or experiences, I'll help you anytime. I'm new to this also but if I can help, I will. Keep your head up and be strong.
