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FREESTYLE LIBRE - Refused point blank

Discussion in 'Diabetes Soapbox - Have Your Say' started by kazam401, Dec 19, 2018.

  1. Lynne C J

    Lynne C J Type 1 · Well-Known Member

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    From April 2019 all ''eligible' diabetics should be able to have Freestyle Libre. CCG's criteria will vary but they must publish what their criteria are. Could also try writing to your MP to put pressure on your CCG. Don't just accept what the nurse has said, fight your corrner, we'll all be rooting for you!
     
  2. Keith_Simpson

    Keith_Simpson Type 2 · Active Member

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    Having tried the Libre & seen first hand how inaccurate it can be, I would suggest not to fret too much that they wouldn't let you try it because decisions are best made based on accurate glucose readings. Having said that it is worth articulating to your diabetic nurse what you have written above, yes to get a load off your chest but also for the sake of other patients. My GP tried to fob me off with a cheaper test kit than the ones I had bought for myself. You get what you pay for & readings were not in the same ball park as the ones [3 different] I already had. She asked me to take it up with the prescribing authority which I did & in the end they authorised test strips to be prescribed for my test kit.
     
  3. crazyhenlady

    crazyhenlady Type 1 · Member

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    Keep fighting for it. It took me a year of emails to my ccg, gp and dsn at the surgery Basicallt i didnt fit thr criteria for the libre as my control was too good!!!
    I finally got a call from my dsn to say that the criteria had become less stringent and I could have a 6 month trial. I am now 2 months into that trial and enjoying much easier monitoring and better control. Let's hope cgm's become available to all type 1 diabetic without this fight.
    Good luck
     
  4. MicheleJC

    MicheleJC · Member

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    I find the same - in actual fact we no longer have any DSNs at my GPs or in my clinic. Like many of us I do loads of blood tests and think I am losing the hypo awareness that I used to have. My average results when I attend clinic are 'good' but I know I have too many highs, Plus the lows I'm not aware of unless I'm testing constantly. I can't afford to buy the libres any more and don't fit the criteria for free ones where I live.
    Michele (pumper, coeliac, hypo thyroid)
     
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