Oh and another reason she gave me was that the Libre wouldn't talk to my pump.Hi
I'm in Northern Ireland and like a lot of the other UK people Libre isn't being funded by my trust, despite the big announcement of it being available on prescription. It's complicated by the fact the northern Ireland assembly isn't sitting, so nothing has been signed off yet. At my appointment yesterday I was told that even when it is available it will under strict conditions being met and only ever short term. No one will be getting it long term without a significantly serious reason.
I have been allocated 300 strips per month.
Hello!Hello everyone!
I don't have diabetes, but as you can see by my name I am a nursing student and I study in the Netherlands.
Currently, I am in my exam year and I have to do a research project about new innovations in the healthcare.
Since this forum is global I wanted to reach out to a broad group of diabetics to make a world map and mark all the countries it's used in.
My question is:
Do you use the FreeStyle Libre and which country are you from? Also, is your FreeStyle Libre reimbursed or do you pay everything yourself + what do you pay?
In The Netherlands, it's not reimbursed yet because of researches that are still going on. Users have to pay everything theirselves and the sensor costs €60 which you have to get twice a month and €20,- for 50 skintacs which are some sort of adhesives for the sensor to stick on the skin better.
I would really appreciate your help and thank you all so much in advance!
loves!
Hello everyone!
I don't have diabetes, but as you can see by my name I am a nursing student and I study in the Netherlands.
Currently, I am in my exam year and I have to do a research project about new innovations in the healthcare.
Since this forum is global I wanted to reach out to a broad group of diabetics to make a world map and mark all the countries it's used in.
My question is:
Do you use the FreeStyle Libre and which country are you from? Also, is your FreeStyle Libre reimbursed or do you pay everything yourself + what do you pay?
In The Netherlands, it's not reimbursed yet because of researches that are still going on. Users have to pay everything theirselves and the sensor costs €60 which you have to get twice a month and €20,- for 50 skintacs which are some sort of adhesives for the sensor to stick on the skin better.
I would really appreciate your help and thank you all so much in advance!
loves!
First time forum poster I am a 50 year Type 1 diabetic of over 25 years. I started using Freestyle Libre this year and found it very beneficial fo rease of testing and hypo awareness warnings. I pay £104 including P&P for 2 sensors every 5-6 weeks. I tend to go back to my old meter in between to rest my wallet. However my NHS region Forth Valley is one of only two in Scotland that have just agreed to fund the sensors on prescription from 1st November. The rules are that you have to attend a carb counting course first and on completion get a letter sent to your GP enabling him to add the sensor to your script. I actually signed up to a refresher course before I knew about this so I am hoping to be free of Freestyle costs before the end of 2017.Hello everyone!
I don't have diabetes, but as you can see by my name I am a nursing student and I study in the Netherlands.
Currently, I am in my exam year and I have to do a research project about new innovations in the healthcare.
Since this forum is global I wanted to reach out to a broad group of diabetics to make a world map and mark all the countries it's used in.
My question is:
Do you use the FreeStyle Libre and which country are you from? Also, is your FreeStyle Libre reimbursed or do you pay everything yourself + what do you pay?
In The Netherlands, it's not reimbursed yet because of researches that are still going on. Users have to pay everything theirselves and the sensor costs €60 which you have to get twice a month and €20,- for 50 skintacs which are some sort of adhesives for the sensor to stick on the skin better.
I would really appreciate your help and thank you all so much in advance!
loves!
Apparently in the area where I live no prescriptions are issued for anything necessary to use the Libre. Years ago I met NICE criteria for a CGM. GP didn't respond to my request. Recently, when I mentioned than normal BM meter readings were retrospective she told me that was all that was available. Tried to get CGM through hospital consultant who told me they were only used for diagnostic purposes. When I mentioned retrospective BM readings I told him about test results which were normal when I felt hypo but low after I had eaten glucose. He said I needed to test when I felt hypo---wake up doctor, what did I just say? Obviously didn't get a CGM.I live in France. I purchased a Libre when it first became available The cost of sensors for full time use was prohibitive so I restricted their use to times when they would be most useful (walking holidays in particular) At the end of August I was prescribed a Libre and 2 sensors a month and had to undergo 'training' ie talk to my specialist who hadn't know about it when I first acquired it,I'd taught her!. Strips however are now normally restricted to 100 a year . I am about to return to the UK, the area where I will live has said
"
01 November 2017
We recognise there has been increased interest in FreeStyle Libre® sensors since the announcement that they will be listed in the Drug Tariff from 1 November. It is important to note, however that the Drug Tariff is not a list of recommended products and a review process is still required at a national and local level to decide whether FreeStyle Libre® Sensors are included on the pan-Dorset formulary.
In line with evidence received so far, NHS Dorset CCG continues to not support the NHS prescribing of this product until a full cost and clinical effectiveness review is available or further national guidance, such as NICE technology appraisal is issued
(Just to add) This means I won't get sensors funded; as my first task is to persuade them to continue funding my o pump that won't bother me that much.
.
My reasons for not being that concerned at present is that my control is relatively good and I don't think I can justify the use of a Libre full time . It is useful to see daily variations, it helps adjust insulin dosing and timing but that doesn't need to be done every week. There are times such as when I walk 20-30Km a day on a walking holiday when its use is invaluable (as a means to be proactive before glucose levels get too low)
Son says I should complain to NICE--frankly cannot be a****Apparently in the area where I live no prescriptions are issued for anything necessary to use the Libre. Years ago I met NICE criteria for a CGM. GP didn't respond to my request. Recently, when I mentioned than normal BM meter readings were retrospective she told me that was all that was available. Tried to get CGM through hospital consultant who told me they were only used for diagnostic purposes. When I mentioned retrospective BM readings I told him about test results which were normal when I felt hypo but low after I had eaten glucose. He said I needed to test when I felt hypo---wake up doctor, what did I just say? Obviously didn't get a CGM.
Hi There! I've been self-funding my Libre system since March this year - it has made a huge improvement to my BG control. I will be continuing with it - though I am retired and on a pension, I can't contemplate going back to 10 fingerpricks per day - especially as they are not particularly helpful for close control for me. Costs are £48.29 per sensor (diabetics don't pay VAT on these items) plus about £4 postage on each order. I live in W Wales and as others in the UK have noted, there is great hope that they will become a prescription item. The savings from not doing so many fingerpricks are just about equal to the cost of the Libre sensors. Not heard of the skintacs.Hello everyone!
I don't have diabetes, but as you can see by my name I am a nursing student and I study in the Netherlands.
Currently, I am in my exam year and I have to do a research project about new innovations in the healthcare.
Since this forum is global I wanted to reach out to a broad group of diabetics to make a world map and mark all the countries it's used in.
My question is:
Do you use the FreeStyle Libre and which country are you from? Also, is your FreeStyle Libre reimbursed or do you pay everything yourself + what do you pay?
In The Netherlands, it's not reimbursed yet because of researches that are still going on. Users have to pay everything theirselves and the sensor costs €60 which you have to get twice a month and €20,- for 50 skintacs which are some sort of adhesives for the sensor to stick on the skin better.
I would really appreciate your help and thank you all so much in advance!
loves!
Hello what was the point of putting you on a trial then telling you if you continue to use them you must self fund ? That seems cruel in the extreme, I self funded them as I thought they were great, the only issue with them being they fell off frequently then my daughter got diagnosed t1 and I paid for her to get them but the cost became to great, but the benefits of the system are immense just for the removal of the fear, uncertainty, the normality the first time I felt these feelings in 40 odd years.Hello @Nursingstudent_
I live in the UK and have used one Libre sensor on a trial. If I continue using them I will have to fund them but simply cannot afford the price of them right now at around £50 per sensor.
In reference to skin tac I self funded them ( from USA) it’s a adhesive wipe and it’s amazingly strong, some say stronger than a Scotsman holding onto a £10 , but I can’t comment on that as up here we are that poor we only ever have £1 coins.Hi There! I've been self-funding my Libre system since March this year - it has made a huge improvement to my BG control. I will be continuing with it - though I am retired and on a pension, I can't contemplate going back to 10 fingerpricks per day - especially as they are not particularly helpful for close control for me. Costs are £48.29 per sensor (diabetics don't pay VAT on these items) plus about £4 postage on each order. I live in W Wales and as others in the UK have noted, there is great hope that they will become a prescription item. The savings from not doing so many fingerpricks are just about equal to the cost of the Libre sensors. Not heard of the skintacs.
Good luck with your research!
I'm fairly happy as it gave me 2 weeks of useful information so that I could spot patterns in my routine and after eating different meals that I hadn't been able to see before. It also gave me a reader for free so if there comes an odd time I can treat myself to a sensor I will.Hello what was the point of putting you on a trial then telling you if you continue to use them you must self fund ? That seems cruel in the extreme, I self funded them as I thought they were great, the only issue with them being they fell off frequently then my daughter got diagnosed t1 and I paid for her to get them but the cost became to great, but the benefits of the system are immense just for the removal of the fear, uncertainty, the normality the first time I felt these feelings in 40 odd years.
My experience is similar - they stick amazingly well as long as the skin is dry. The removal is quite painful unless I whip it off VERY quickly. (That being said, one did fall off overnight, the sticky patch was still anchored to my arm; it had detached from the sensor. Abbott replaced the sensor, great customer service.) The black octopus ring following detachment (I know...) can be removed with propanol wipes, nothing else I've tried touches it!I'm fairly happy as it gave me 2 weeks of useful information so that I could spot patterns in my routine and after eating different meals that I hadn't been able to see before. It also gave me a reader for free so if there comes an odd time I can treat myself to a sensor I will.
I didn't have any issues with adhesive on mine, it was practically welded to my arm the whole 2 weeks.
Just a follow-up. My latest order for sensors is going to be delayed by about 10 days - "unprecedented demand.." apparently.. So are they actually being prescribed leading to stocks running low?? My current sensor runs out before the delivery so back to fingerpricks... :-(Hi There! I've been self-funding my Libre system since March this year - it has made a huge improvement to my BG control. I will be continuing with it - though I am retired and on a pension, I can't contemplate going back to 10 fingerpricks per day - especially as they are not particularly helpful for close control for me. Costs are £48.29 per sensor (diabetics don't pay VAT on these items) plus about £4 postage on each order. I live in W Wales and as others in the UK have noted, there is great hope that they will become a prescription item. The savings from not doing so many fingerpricks are just about equal to the cost of the Libre sensors. Not heard of the skintacs.
Good luck with your research!
The black octopus ring following detachment (I know...) can be removed with propanol wipes, nothing else I've tried touches it!
Good suggestion - much less expensive then the 'Zoff adhesive remover wipes' that I have been using. Great tip!I use nail polish remover, but I think it is the same thing - acetate.
Do you think the lack of funding where you are is down to the sheer volume of people that would potentially be looking to get one...?
I though London and the surrounding areas would have access to more cash....
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