frustrated

catapillar said:

A cpeptide test can't confirm whether or not you have type 1 or type 2 diabetes. All a cpeptide test tells you is whether or not you are producing your own insulin. A type 2 diabetic may be, but if their pancreas is so exhausted from overworking to deal with insulin resistance it may not be. A type 1 diabetic may not be, but it takes some time for a newly diagnosed type 1 to cease producing insulin altogether. The time when a type 1 retains insulin production is know as the honeymoon period and it can be increased a bit by the breather given when commencing insulin.

So your hypos could be explained by a misdiagnosis with type 2 or by the fact you are a honeymooning type 1. Have you had antibody testing to assist in determining your type of diabetes?

What is the story of your diagnosis that initially got you a type 1 diagnosis?

Is there any pattern to your hypos that might assis in determining whether you need to reduce basal or bolus? Sometimes honeymoon doesn't really have a pattern... Are you carb counting for your Aprida?

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catapillar said:

A cpeptide test can't confirm whether or not you have type 1 or type 2 diabetes. All a cpeptide test tells you is whether or not you are producing your own insulin. A type 2 diabetic may be, but if their pancreas is so exhausted from overworking to deal with insulin resistance it may not be. A type 1 diabetic may not be, but it takes some time for a newly diagnosed type 1 to cease producing insulin altogether. The time when a type 1 retains insulin production is know as the honeymoon period and it can be increased a bit by the breather given when commencing insulin.

So your hypos could be explained by a misdiagnosis with type 2 or by the fact you are a honeymooning type 1. Have you had antibody testing to assist in determining your type of diabetes?

What is the story of your diagnosis that initially got you a type 1 diagnosis?

Is there any pattern to your hypos that might assis in determining whether you need to reduce basal or bolus? Sometimes honeymoon doesn't really have a pattern... Are you carb counting for your Aprida?

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therower said:

Hi @karen8967 . First up welcome to the forum. Perhaps if you could tell us what your blood sugar levels are like we may be able to offer more advice. Is your DSN aware of your struggles?

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karen8967 said:

hj i was diagnosed with type 1 diabetes in april this year had a lot of trouble with my insulin mainly hypos then in may was told i could be a type 2was put on metformin was on this for a couple of weeks but this done nothing for my bg levels i had the c peptide test which came back as tpe 1 diabetes so back on insulin apidra with meals and lantus at bed i just find that im tired all the time have a constant headache and aterrible hunger and dont even get me started on the sweats sorry to go on but just feel so fustrated at the moment .

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therower said:

Hi @karen8967 . First up welcome to the forum. Perhaps if you could tell us what your blood sugar levels are like we may be able to offer more advice. Is your DSN aware of your struggles?

Click to expand...

therower said:

Hi @karen8967 . First up welcome to the forum. Perhaps if you could tell us what your blood sugar levels are like we may be able to offer more advice. Is your DSN aware of your struggles?

Click to expand...

therower said:

Hi @karen8967 . First up welcome to the forum. Perhaps if you could tell us what your blood sugar levels are like we may be able to offer more advice. Is your DSN aware of your struggles?

Click to expand...

karen8967 said:

i had a gad test as well my origanally went to my gp because of thirst and going toilet also sudden weight loss 1an a half stone in 2 weeks without dieting bg was 28 an ketones 6.5 was sen to hospital an thats how it all began ,i have asked to go on a carb counting course just waiting for a place .

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GrantGam said:

That's good progress @karen8967, diabetes is a marathon, not a sprint - so don't go beating yourself up so early on

This will probably be one of the best purchases you make regarding your diabetes management.

https://www.amazon.co.uk/gp/aw/d/B06XCDTPP1/ref=tmm_kin_title_0?ie=UTF8&qid=&sr=

That book and this forum changed things for me massively. As a result, managing my condition is about as good as it can get right now. I've met some wonderful people along the way and learned so much.

Try not to be negative, you're doing something right because you've almost halved your HbA1c already

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karen8967 said:

thanks grantgam x

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db89 said:

Hi @karen8967 and welcome. I thought I'd comment as I'm still fairly newly diagnosed and having a strong honeymoon period. I have low basal needs right now which has nudged me too low on one too many an occasion but seem to have found a level that works for bolus ratios throughout the day.

I had a bit of a 'screw it' moment the other month and didn't take my doses for most of a weekend (spoiler: don't do this!). I'd had a week of presumably some strong endogenous insulin production pushing me low each day and I was getting sick of the shaking hands and horrible feeling. Regretted it as soon as I had highs in the 10s and 20s that wouldn't come down on their own and lesson learned in my case.

I get it's frustrating at this point as numbers can be erratic. Sometimes it seems like 60% maths, 20% intuition and 20% luck when dosing right now but please stick at it as it seems you've made great progress so far. I hope you find Think Like A Pancreas useful, it answered a lot of questions for me and is a great reference.

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