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frustrated!

S

SJS5

Active Member
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This disease never fails to frustate. I have been diagnosed 30 years and still it is often impossible to manage.

Hoping for some ideas.

for 3 years I've eaten low carb which on the whole has done wonders for my control
When I'm at work I can be running along very steady all day between 4.5 - 6mmols, i can sit ar desk , walk around and it stays very stable.

the problem comes at night. I have an evening meal usually by 6pm which may be salmon green veg, butter some mayo
or steak /eggs . I usually take 2.5 - 3units of novorapid with my evening meal . Anymore and I will be down around 3mmols

sometimes it will rise to 7.5 -8 mmols and then go down and settle.

Now I can be sitting downstairs all evening with it stable, but as soon as I go upstairs and get ready for bed up it jumps to 10-12mmols

I then spend many hours trying to get it down.


I have tried giving 1-2 extra units of novorapid before bed but often it still lingers around 9 - 11mmols
It seems any additional insulin makes no difference whatsover.

I may end up giving another extra 1 unit at 3am and then eventually by 6am it may be down to 4-7mmols

2) the other thing I have noticed is with the juggluco app you obviously see your blood sugar continually. iF i'm sitting /lying still ,blood sugar all good, as soon as i get out of bed in the night up it shoots by about 3-4mmols ! does anyone elses readings shoot up with the slightest movement and then settle down if you just wait a few minutes. occasionally this reading then stays up.

where am i going wrong?

I take tresiba of 11.5 units at night..
 
I don't subscribe to the overhyped low carb agenda, in particular for Type 1 diabetes.

That said I have experienced similar issues to yourself re pre bedtime bs increases. I just take more rapid acting insulin. If I take a bit too much then can take in some glucose to counter, but levels usually drop quite rapidly, in particular if I rely on finger prick tests which I understand are more reliable than Libre and have less of a time lag. The latter (which I hear can be up to at least 20 minutes) may explain why you are waiting so long for a lower reading.
 
SJS5 said:
This disease never fails to frustate. I have been diagnosed 30 years and still it is often impossible to manage.

Hoping for some ideas.

for 3 years I've eaten low carb which on the whole has done wonders for my control
When I'm at work I can be running along very steady all day between 4.5 - 6mmols, i can sit ar desk , walk around and it stays very stable.

the problem comes at night. I have an evening meal usually by 6pm which may be salmon green veg, butter some mayo
or steak /eggs . I usually take 2.5 - 3units of novorapid with my evening meal . Anymore and I will be down around 3mmols

sometimes it will rise to 7.5 -8 mmols and then go down and settle.

Now I can be sitting downstairs all evening with it stable, but as soon as I go upstairs and get ready for bed up it jumps to 10-12mmols

I then spend many hours trying to get it down.


I have tried giving 1-2 extra units of novorapid before bed but often it still lingers around 9 - 11mmols
It seems any additional insulin makes no difference whatsover.

I may end up giving another extra 1 unit at 3am and then eventually by 6am it may be down to 4-7mmols

2) the other thing I have noticed is with the juggluco app you obviously see your blood sugar continually. iF i'm sitting /lying still ,blood sugar all good, as soon as i get out of bed in the night up it shoots by about 3-4mmols ! does anyone elses readings shoot up with the slightest movement and then settle down if you just wait a few minutes. occasionally this reading then stays up.

where am i going wrong?

I take tresiba of 11.5 units at night..
Click to expand...
Hi,

If it’s any consolation to you. My BG can scooch up by 3mmol just getting out of bed & prepping for work?
But it rarely settles back down, unless I correct it.
 
Yup, pretty much the same here. Standing up and going to bed results in a spike. For me it comes down reasonably fast when in bed but it is still frustrating yes. Waking up and needing to pee results in a spike. Even during the day whenever I stand up and get a cup of coffee at work it spikes a little. For me the most frustrating is the DP peak that starts between 3-4AM, peaks between 9-10AM at averagely 9-10 mmol and returns to below 6 around 12-1PM. Also using juggluco since about a month and liking it btw.
 
Juggluco. Never heard of it. Better look it up. Hopefully it'll be more accurate and reliable than IMO the vastly overhyped Libre.
 
I do subscribe to the overhyped low carb agenda (when I have the willpower) I often go to 12 when I go to bed but ignore it, if I try to bring it down I’m hypo by 3am, not sure why but I drop at 3am regardless, I do however inject when I wake because I must have an overactive liver, always goes up violently first thing, I did suspect a hot shower but experiments haven’t backed this up, gotta love DB huh.
 
EBe66 said:
Yup, pretty much the same here. Standing up and going to bed results in a spike. For me it comes down reasonably fast when in bed but it is still frustrating yes. Waking up and needing to pee results in a spike. Even during the day whenever I stand up and get a cup of coffee at work it spikes a little. For me the most frustrating is the DP peak that starts between 3-4AM, peaks between 9-10AM at averagely 9-10 mmol and returns to below 6 around 12-1PM. Also using juggluco since about a month and liking it btw.
Click to expand...

Ditto! It drives me up the wall. When I see people talking about going for walks after meals to help with control I feel jealous. The act of moving puts my levels up. Something to do with adrenaline I believe. If I’m up 2/3 times in the night it makes control difficult.
 
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