Have you been told not to test your blood sugars?

creamcat

Newbie
Messages
2
My Dr told me I didn't need to test but could do if I wanted to, as I control my diabetes with diet.
Unfortunately I was told it would be enough to test once a day by my Dr.I'd just come out of hospital where I had been put on Insulin after being really ill on tablets .I have enough strips to test three times but as I need to drive two of these are used for that The remaining one I have been using randomly.
Just had a review and the nurse has ordered more. I hope this gives me the information I need . She said I must have misheard him. I did not mishear but he has said along with some of the nurses some frightening things its so scary.Thankfully I have some knowledgeable diabetics around me and on this forum.
 

Art Of Flowers

Well-Known Member
Messages
1,299
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Dislikes
Statins
My diabetes nurse gave me an Accu-Chek Mobile glucose meter. I found it very useful. when I was diagnosed my blood sugar was over 13 and my HBA1C was 99. I cut out food containing sugar such as Country Crisp breakfast cereal and the fist reading on the meter was around 9.6. I gradually cut out more and more high carb food such as bread, rice, potatoes, pasta, bananas and fruit juice. My blood sugars reduce over the weeks.

A blood glucose meter is essential if you want to reverse type 2 diabetes using diet.
 

5Terry

Active Member
Messages
43
Type of diabetes
Prediabetes
Treatment type
Tablets (oral)
Dislikes
Being alone and having little or no money to enjoy the hobbies I like to do.
I have and I don't understand why not.
 

Taighnamona

Well-Known Member
Messages
56
Type of diabetes
Type 2
Treatment type
Insulin
Unfortunately I was told it would be enough to test once a day by my Dr.I'd just come out of hospital where I had been put on Insulin after being really ill on tablets .I have enough strips to test three times but as I need to drive two of these are used for that The remaining one I have been using randomly.
Just had a review and the nurse has ordered more. I hope this gives me the information I need . She said I must have misheard him. I did not mishear but he has said along with some of the nurses some frightening things its so scary.Thankfully I have some knowledgeable diabetics around me and on this forum.
If you’re going to be on insulin for longer than three months, you are required to let the DVLA know and test glucose levels before and possibly during driving and have two daily recorded meter readings. For driving you must be above 5. My insurance company just wants me to comply with DVLA guidelines but other companies may want additional details.
There’s lots of info on this site if you search both for driving and when to test protocols.
Best wishes.
 

Taighnamona

Well-Known Member
Messages
56
Type of diabetes
Type 2
Treatment type
Insulin
I have and I don't understand why not.
Reading your bio it says you are pre diabetic. I was too many years ago but followed NHS advice not to test and their nutritional advice of eat carbs and low fat. Of course I went onto develop full blown diabetes!!
This is the best time for you to test but it will need to be self funded. I think this is very short sighted of the NHS because if people tested and understood what carbs did to their glucose levels they could make lifestyle changes early enough to avoid developing diabetes.
Hopefully this forum will give you enough pointers and information to help you navigate through. Best wishes
 

Chris24Main

Moderator
Staff Member
Moderator
Messages
569
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Spot on @Taighnamona -

I'm lucky enough to have a somewhat supportive GP. For a while at the start of my treatment, my diagnosis was all over the place, and as a result I had a Glucometer and test strips on my list of prescriptions. With the diagnosis, I also (in the UK) have these paid for by the state. Later on, I had a CGM as well, but as my diagnosis changed to T2, this was removed.

I agreed with my GP, however, to leave the glucose test strips on my list of repeat prescriptions, so I'm able to keep testing as I progress toward remission.

This was a compromise, as I was asking for Ketone strips as well; clearly my argument was that it was cheaper to support dietary change than deal with the result with drugs, and that a years supply of ketone strips were about the same as a month of CGM use.

Also - that testing for glucose doesn't tell you anything about insulin (well, not enough anyway) - and that to fully understand what was going on, I needed to track glucose and ketones (ketones really indicating low insulin).

That didn't fly, and I wasn't pushing it... the GPs have less flexibility than we might think, and I was happy with the compromise, so I fund the ketone measurement, and the NHS funds the glucose.

Your mileage will definitely vary, but I think developing a relationship as much as you can with your GP or support team (and helping to see the result of well directed effort) can only be a good thing, for you and anyone who follows...
 
  • Like
Reactions: MissMuffett

Rodders60

Member
Messages
9
Type of diabetes
Type 2
Treatment type
Diet only
This is not about whether the NHS should, or can afford to, provide test strips on a permanent or temporary basis to non-T1 diabetics. Having read #EveryCloud ’s post, and so many more like it over the years on this forum, I wonder whether we could gather together examples of Healthcare Professionals who have told people that it is either unnecessary or just plain wrong to test their blood sugars. It is a scandal that needs highlighting.
 

Rodders60

Member
Messages
9
Type of diabetes
Type 2
Treatment type
Diet only
I am type 2. Was told 12 months ago not to test. Theough metformin and diet i got my levels really good. A couple of months ago i started feeling poorly at work. I went and tested, and was having a hypo. A few days later i had another one, so phoned my DN. Straight away she said why are you testing? I said to find out why i was feeling so poorly. She reduced my meds by 2/3. I still had problems so spoke to my gp. He said its the metformin and to stop taking it, and also to keep testing to keep my eye on it. I honestly think it depends on whether there are problems. The way the nurse spoke to me was appalling.