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HbA1c result

P

peterb999

Member
Messages
8
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi all,

I was diagnosed a diabetic type 2 in January 2023 with a reading of 110. This really scared the life out of me as apparently 110 is really high.

Within 4 months it was 70 which seemed quite good and I really tried hard. Sadly, it had already affected my eyesight and I've had to have two lots of laser treatment on my left eye and my right eye is showing signs of it as well.

Last year my wife and I split up after 24 years together which was a bit upsetting - she couldn't really cope with me being diabetic and was going through the menopause herself (her dad died a couple of years ago and among other things he was diabetic). It was very sad though fortunately we have a genuinely wonderful daughter who is 20 - though she was hard work as a teenager she is just fantastic now. As you can imagine it's been a bit **** for a while, and finding out about my eyes (the laser surgery was a month ago) and it's been a real struggle to try and eat properly but I've tried my best.

I've read this forum a lot and tried to eat well and exercise etc. I had my diabetes blood test on tuesday and phoned for the results today. My HbA1c reading is now 38 which apparently is really good so that's made me happy.

Apparently my liver reading was a bit high so I have to have another test next week - if it's not one thing, it's another. Has anyone had liver problems after becoming a type 2? I was phoned on the evening of the bloot test and was asked if I had recently been abroad (I haven't), was I yellow (I'm not), was my stool pale (it's not). The woman really worried me and said if I had answered yes to any of them I'd have had to go to A&E immediately. She said I would be phoned back the next day so I didn't sleep that night because of the worry. No-one phoned me back and then I just got a blunt text saying I was booked in for another Liver function test next week. No explanation or anything. I had to phone them up, but I couldn't speak to a doctor, just the receptionist who couldn't tell me why except my results were a "bit high" - but she said as she had no medical training she didn't know anything else. As you can imagine I am pretty worried about this (though surely it can't be that urgent if I have to wait a week for another appointment). I wonder if any forum members have had a problem with their liver since diagnosis? I don't drink at all really, maybe 1 can every two weeks. I feel like my life is totally out of my control at the moment, no matter what I do, something else goes wrong, arrghh.
 
peterb999 said:
Hi all,

I was diagnosed a diabetic type 2 in January 2023 with a reading of 110. This really scared the life out of me as apparently 110 is really high.

I had to phone them up, but I couldn't speak to a doctor, just the receptionist who couldn't tell me why except my results were a "bit high" - but she said as she had no medical training she didn't know anything else. As you can imagine I am pretty worried about this (though surely it can't be that urgent if I have to wait a week for another appointment). I wonder if any forum members have had a problem with their liver since diagnosis? I don't drink at all really, maybe 1 can every two weeks. I feel like my life is totally out of my control at the moment, no matter what I do, something else goes wrong, arrghh.
Click to expand...
Hi @peterb999 ,

Sheesh, you have been through the wringer. I'm sorry. As for the liver, well, my situation was a little different from yours. It was giving me trouble, and I was diagnosed with a fatty liver. I googled reasons why it would be fatty, diabetes was one of them, and I borrowed our diabetic cat's meter to rule it out. You can imagine the ground opened up under my feet when I saw double digits on there, because I knew straight away what it meant. Came out of nowhere for me, T2 did... But there it was, my numbers were worse than the cat's! In the meantime, I was seeing a specialist who tried to send my husband out of the room so I could talk about my closet alcoholism. Nope. Just diabetic. No drinking problem. When we have a lot of glucose floating around, and our bodies can't burn it off or wee enough of it out, it stores it in fat cells. It has to go somewhere, after all, and our organs are prime realestate for storage. Voila, non-alcoholic fatty liver disease. Part of metabolic syndrome, which a lot of T2's have. Any or all of the following are contained therein: Type 2 diabetes, high blood pressure, high cholesterol, obesity and non-alcoholic fatty liver disease.

Now, @Antje77 is right, I got that under control before serious cirrhosis occurred, while the specialist told me there was nothing he could do -I suppose because I kept insisting I did not drink anything other than tea and coke zero- and told me he'd see me again for painkillers when my lived would eventually kill me, in a year or so. Scare me into admitting to my lies, perhaps? That was 10 years ago. Going low carb helped deplete the glucose stored in fat cells, and my liver function is alright. Been a bit problematic again for a while there (perimenopause messes with my blood glucose levels, and my mom's passing two years ago made things go wonky diet-wise for a bit too. Still not a drinker, though!), but I seem to be on the right track again. So low carbing and blood glucose control are important. And if your liver is already taxed, you might want to abstain from that one can every two weeks as well. (Sorry!).

Thing is though... Your blood glucose is now, absolutely beautiful. I don't know how long it's been like that, and it takes a while for a liver to recuperate a little, in so far as it can (depends on whether the fat cells got inflamed and turned to scar tissue; where there's scarring, there's no functioning liver cells), but... If they're asking you now whether your stool and colouring are off, that's a bit concerning. They're asking after jaundice, and that occurs when the liver is failing. So if I were you, I'd ask after the specific numbers, what the range is supposed to be and whatnot (may be available through your practice's app or online enviroment?), and whether it really is something to jump to jaundice over or whether they're just crying wolf, which is entirely possible. Whatever's next, stick with the low carbing, and do not, if you are okay with that, drink alcohol. You don't want to tax an organ that's seemingly had a beating even more, I'd guess.

Get the numbers, and hopefully, with those, some peace of mind. You're right, all of a sudden they're not in a hurry to see you anymore, and that is a good thing... But I think you'd likely sleep better if you had those numbers and their meaning.

Be good to yourself, and don't dispair just yet. After all, you're talking to someone who should've kicked the bucket 9 years ago. At the same time, if you do notice the whites of your eyes or your skin turning yellow, your stool being different than it should be, do call in the cavalry and get thee to a hospital. (I don't think that'll happen, but I have to say it, just in case).

Hang in there eh,
Jo
 
Hi,

Thanks for such a long detailed response. It is appreciated.

I don't fully understand why this would suddenly happen though - I only had my last blood test in January and the liver and kidney etc. was fine then. I was h1abc 49 back then and am now 38 so I don't see how my liver can suddenly be bad.

I am definitely not yellow at all and my stool today was the normal dark colour. I have had no physical symptoms at all and I feel pretty well really (well apart from my eyes) It makes me wonder if the person who phoned me on Tuesday night was actually a nurse practioner who didn't really have any medical knowledge. She wasn't able to answer my questions, just ask me some. It could be that the doctors surgery maybe get the results of that days blood tests and if any are elevated or strange then they get this non-medical person to phone and ask a few questions to see if I needed to go to A&E that night. She said someone would phone me the next day (she said only part of the results had come through from the lab), but they didn't and just sent me a text booking me in for another blood test. I'm really hoping that maybe it was just slightly elevated and that they were just been overly cautious. You would think that if it was really bad they would have told me to either come in straight away or go to the hospital, not just leave it for another blood test in a week.

I have been so lucky for over 50 years of having no illnesses whatsover and I always have really appreciated that. It's a ****** getting old, haha.
 
peterb999 said:
Hi,

Thanks for such a long detailed response. It is appreciated.

I don't fully understand why this would suddenly happen though - I only had my last blood test in January and the liver and kidney etc. was fine then. I was h1abc 49 back then and am now 38 so I don't see how my liver can suddenly be bad.

I am definitely not yellow at all and my stool today was the normal dark colour. I have had no physical symptoms at all and I feel pretty well really (well apart from my eyes) It makes me wonder if the person who phoned me on Tuesday night was actually a nurse practioner who didn't really have any medical knowledge. She wasn't able to answer my questions, just ask me some. It could be that the doctors surgery maybe get the results of that days blood tests and if any are elevated or strange then they get this non-medical person to phone and ask a few questions to see if I needed to go to A&E that night. She said someone would phone me the next day (she said only part of the results had come through from the lab), but they didn't and just sent me a text booking me in for another blood test. I'm really hoping that maybe it was just slightly elevated and that they were just been overly cautious. You would think that if it was really bad they would have told me to either come in straight away or go to the hospital, not just leave it for another blood test in a week.

I have been so lucky for over 50 years of having no illnesses whatsover and I always have really appreciated that. It's a ****** getting old, haha.
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Yeah, getting older isn't for the faint of heart! But I do think you're likely right... If your liver doesn't feel hard or sore to the touch, and you don't notice anything weird, it shouldn't be as bad as all that. And yes, sometimes someone'll call because some measurement is off, without knowing whether it's a bad thing, per se. I mean, I had to calm down a freaking-out assistant because she thought I was about to drop into a coma or just, dead, (diabetic ketoacidosis), while it was just a ketogenic diet that got ketones into my urine, which is perfecty fine. Context matters!

I think it'd be safe to let it go for now, and breathe. If it was that bad, you'd indeed likely be seen sooner.
Off to bed I go... Hopefully you'll sleep well tonight.
G'nite,
Jo
 
Try to calm down and not overthink it, someone saying your results are a “bit high” means nothing. They could be just slightly over. Those are pretty generic questions that they could well be reading from a script, especially if it’s a non medical person.

Having follow up blood tests is pretty normal after any test that’s even a little out of range, they rarely diagnose anything from one test, they could want confirmation of the first tests.
 
Ok, thanks to @JoKalsbeek mentioning about going onto my GPs website I went into the NHS website and have found all my results.

Everything is fine and within normal limits - apart from my Serum alamine aminotransferase level which is 673 and should actually be between 0-45 so it is way way high.

I've looked on AI (totally annoymised though) and given it all the figures from the test. It said that that number is way too high and needs urgent investigation - but it says all the other figures for the liver are fine to very good. I have been taking Vitamin D3 supplements and I think I may have overdone with that. AI says that it is possible so I have completely stopped taking them and AI seems to think there is a possiblilty that the figure could go down in the 8 days between the last blood test and the next.

It reckons that my liver is stressed but not failing and the other figures mean that it could be reversible. I really really hope so.
 
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Glad to hear most of your results were in the normal range @peterb999. As @lovinglife says don't overthink it. There is nothing worst than the unknown for overthinking and worrying. Googling always brings up the worst. As for AI, I don't trust it at all. It's certainly not a HCP. It can in no way diagnose you, in fact, it can send you wrong information and worry you needlessly. That is why we do not allow it on the forum.

Your Dr will, I'm sure, do all the appropriate tests to find out why your ALT numbers are up.
 
Hi Melgar,

Thanks for your words. I am not feeling as stressed as I was now I know that the rest of the results were positive.

The thing about the AI I used is not about trusting it, it's just about using it as a tool. I wasn't getting any answers from my GP and to be honest I was feeling a bit let down that they said they would phone me and they didn't - they just sent a blunt text saying I was booked in for another test.

Feeding all the results into the AI and it explaining everything (obviously, you don't take it all for gospel) was very very good. It's useful that you can spend as long as you like asking the questions and it gives you the answers and explains things very well. After feeding all the results in, it narrowed it down to three likely things that were happening and one of them was supplements. When I checked the bottle of the Vitamin D3 I realised that the IU was more than 4 times that I thought it was (I am so stupid sometimes). It then told me that the amount I was taking was too much and it could be a reason for the elevated level. It's told me to tell my GP exactly how much I've been taking as it could be a factor. It reckons that in the 8 days between the blood tests that if the Vitamin D3 is the reason it could possibly go down about 100 and if it does that would be good news. There is a distinct possibility that within 4-8 weeks it could go below 45 again, but explained that if it does go up the GP will probably order a lot of further tests.

I have worked in IT for over 30 years and have seen so much snakeoil in that time, but the new AI is completely different. I use it every day now for solving IT problems - like everything, it is just a tool that points you in the right direction. It helps with scripts when something doesn't work - it gives you ways to make it work and you just incorporate the bits that work - you don't just use exactly what it gives you. You'll have to give it a go sometime, just for a laugh. Ask it questions that you know the answer to and see if it is right or not (so many times I know things it tells me is wrong, especially in fields I am an expert in. It makes me laugh when I tell it it is wrong and it starts back pedalling - "you are right to question that Peter, I was completely wrong")

However, saying all of that, I totally agree that you guys are right to ban it from the forum - it is not always right and can often send you down the wrong path. It's like using a sat nav, you don't blindly follow everything it tells you - you wouldn't drive the wrong way down a one way street because the sat nav tells you to. You just balance it with common sense.

I will update this thread with what the GP says and if my results go down next week. It would have been nice if someone from the practice had phoned me to explain things but hey ho.

Once again, I am very grateful for all the replies on this thread and they did really help. Without this and the AI I know what I am like and I would have spent the next week not sleeping and constantly worrying.
 
peterb999 said:
Ok, thanks to @JoKalsbeek mentioning about going onto my GPs website I went into the NHS website and have found all my results.

Everything is fine and within normal limits - apart from my Serum alamine aminotransferase level which is 673 and should actually be between 0-45 so it is way way high.

I've looked on AI (totally annoymised though) and given it all the figures from the test. It said that that number is way too high and needs urgent investigation - but it says all the other figures for the liver are fine to very good. I have been taking Vitamin D3 supplements and I think I may have overdone with that. AI says that it is possible so I have completely stopped taking them and AI seems to think there is a possiblilty that the figure could go down in the 8 days between the last blood test and the next.

It reckons that my liver is stressed but not failing and the other figures mean that it could be reversible. I really really hope so.
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Well, with ALT's like that, I'd certainly want answers and further testing done... Vit D toxicity can directly and indirectly cause all sorts of problems, but it doesn't have to be that... So best to get checked out and make sure. Keeping fingers crossed just stopping the supplements will get things sorted for you!
 
becca59 said:
Are you taking statins. I discovered you shouldn’t take vitamin D if on them as it doubles their level.
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Interesting @becca59 . I had a look for some research papers on the subject. Here is an extract quoted from 'Statins and vitamin D'. I have provided the link to the full paper.

"We propose that some statins may be increasing the absorption of vitamin D by stimulating the expressions of cholesterol transporters. This effect, which was shown with atorvastatin, can be studied with rosuvastatin, and may open up a horizon to explain the link between statins and vitamin D."

https://pmc.ncbi.nlm.nih.gov/articles/PMC3408997/
 
I had my blood test yesterday. I told the nurse about me overdosing on Vitamin D3. She didn't really know anything about the doses but I told her that I was taking 8,000 iu a day. She went to see the doctor to see what he said. When she came back, she said I must have misunderstood the dose as there is no way I can have bought tablets that were 4000IU as they are not sold. Obviously it was quite embarrasing telling her that I am not wrong and I am that stupid. She went back and then brought the owner of the practice to talk to me, he is still unconvined that I was taking that much and I must be mistaken and asked me to check again when I got home.

They took the blood and I've got the results today. The surgery hasn't phoned me yet, but I found the results on the NHS app this morning (I love the NHS app, it's so useful). The ALT has gone down from 673 U/L to 167 U/L so that is a lot better I presume, but still far too high. I'm now waiting for the phone call and no doubt the telling off that I am going to get (which I completely deserve). Thanks for all the responses to this thread, it really does help talking about it as I don't fully trust doctors not to sugar coat stuff - I'm the sort of person who needs brutal honesty and I have no problem getting the riot act when I do stupid things.
 
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peterb999 said:
I told the nurse about me overdosing on Vitamin D3. She didn't really know anything about the doses but I told her that I was taking 8,000 iu a day. She went to see the doctor to see what he said. When she came back, she said I must have misunderstood the dose as there is no way I can have bought tablets that were 4000IU as they are not sold.
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Here in the Netherlands they sell those, not quite 4000 IU but very close. I take one every two weeks.

1752753884066.png
 
It's good to hear the numbers are coming down @peterb999 - try not to worry much, as you don't want to elevate your stress levels. From where you were, you've come a long way and have made improvements along the way. Always look at the bigger picture. Be proud. You sound like a fighter, and I am sure you will be fine.
 
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