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Hello from an underweight type 1

ono

Well-Known Member
Messages
145
Hello All,

I am new here, I have been reading the forum from the sideline, always wanting to get involved. I think the time has come for me to do so.

Not sure how many people share my experience of diagnose, i'll be happy to find out:
I am a very thin/lightweight male, mid thirties. When I say thin, i'm about 1.7m and weight 56 k. on a good day.
About a year ago, I was diagnosed with Type 1, it came totally out of the blue for me. My diet is relatively good, I've always had this fast metabolism which made it hard to put on weight, but now I find it even harder, because I often go hungry in order to avoid injecting more insulin, but that might be an issue for another post.

Anyway, I was curious to find out of any other cases of adult onset Type 1 who are naturally underweight.
 
Hi ono

Sorry your orig post was missed.

Welcome to the forum

I'm T2 so can't relate but can certainly say HI

Mary x
 
Hi ono and welcome to the forum :)

I'm sorry you didn't get a reply sooner but there is so much to read on this forum that it's difficult to manage to see it all as you will see :) This is the information that we give to new members. I'm not sure that all of it will be appropriate for you but I'm sure you will find it useful anyway. Ask all the questions you like and someone will help with pleasure.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
----------------------------------------------------------------------------------------------------------------------------------------------------

Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
ono said:
Hello All,

I am new here, I have been reading the forum from the sideline, always wanting to get involved. I think the time has come for me to do so.

Not sure how many people share my experience of diagnose, i'll be happy to find out:
I am a very thin/lightweight male, mid thirties. When I say thin, i'm about 1.7m and weight 56 k. on a good day.
About a year ago, I was diagnosed with Type 1, it came totally out of the blue for me. My diet is relatively good, I've always had this fast metabolism which made it hard to put on weight, but now I find it even harder, because I often go hungry in order to avoid injecting more insulin, but that might be an issue for another post.

Anyway, I was curious to find out of any other cases of adult onset Type 1 who are naturally underweight.

Hi ono,
I was about the same height and weight as you at the beginning of August this year. (At that point I had been a "Type 2" since Nov 2010). I had spent the previous 3 or 4 months eating fewer and fewer carbs until I couldn't eat anything without my levels staying in double figures and I was losing weight constantly. Eventually I was referred to the hospital where an anti GAD test proved positive, thus indicating I was really Type 1. I started insulin and have put back on the weight I lost since earlier this year.

You say you often go hungry to avoid injecting, well that doesn't help you to put on weight for a start, but if you are trying to put on weight injecting more insulin will help as it encourages weight gain.

Regards
Angie
 
Thanks, Daisy for the info.
Angie, was that mis diagnosed in the first place or did you evolve from 2 to 1?

I lost 4 or 5k one year ago when diagnosed, but put back most of it during the year. last couple of months i lost weight again, about 3k, although all my tests inc. thyroid are fine,
If I inject extra insulin because I'm hungry I have to eat quite a bit to pay for the one unit of insulin (25 or 30 gr of carbs).
Also I am trying to keep insulin consumption to a minimum which makes the control easier for me. I really still need to get to grips with how to eat enough food but still keep good levels, so far i'm good on the levels, not so good on the huger front.
 
If I inject extra insulin because I'm hungry I have to eat quite a bit to pay for the one unit of insulin (25 or 30 gr of carbs).
It might help if you got yourself a pen that delivers half units, you wouldn't have to eat what you don't want to.
However, I don't see why you are restricting your insulin though. Don't overeat but if you are underweight I would have thought it would be sensible to eat to your appetite. Your injected insulin is only replacing what your body would have supplied.
Control is easier if you learn how to adjust your insulin to your consumption.

Have you looked at the Bdec course?
http://www.bdec-e-learning.com/
Even better is a face to face course called DAFNE (in some parts of the country there are similar courses under other names)
Talk to your nurse/doc about it. These courses help you to learn about insulin use but they also good because you get to talk to others with similar day to day problems.
http://www.dafne.uk.com/
 
Ono,

I should have been a type 1 from the start as the Consultant said all my initial symptoms were indicative of a type 1 not a 2.

Regards
Angie
 
Hi Phoenix,

Never knew there were such pens, sound like a good idea! i'll look into that.

I do adjust insulin to consumption but i still find that because my insulin to carb ratio is varying ( i am still very much in "honeymoon" period, and so my pancreas is still randomly spitting insulin) it is quite tricky to be precise. And often I find that one unit is too much for a snack when i'm hungry. All in all I really can't complain about my control at the moment, but it is at the expense of my hunger : )

This last year I have done the most basic course at my local hospital, and I am going to attend another one this december, it seems i need to be a diabetic for longer in order to be allowed in the DAFNE, so i can make the most of it (?).
 
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