cypriot_enigma
Newbie
- Messages
- 2
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hi All,
I've recently been diagnosed with type 1 diabetes (awaiting antibody test results but my ketones were 7.3 when I went to A&E and I am 29 and not overweight so the diabetes team are pretty sure it's type 1) following a stay at the hospital and a HbA1c of 171mmol/mol.
My diagnosis story:
I've had symptoms of being overly thirsty and weight loss for a few months, it came after 8 months of me doing at least 100km on a stationery bike each week so I naively assumed that it was a delayed affect of that after I stopped cycling as much in June.
I eventually called the GP and the clinical pharmacist sent me for a blood test on Thursday 23rd Sep, they results came back the same day however no appointment was booked until Monday 27th Sep although I later found out there was a note saying to book a appointment within 48 hours. I'm the meantime my parents and I bought a blood glucose machine where I consistently tested >20 mmol/L. So my family got my to call (I was fairly reluctant at the time labouring under the assumption if it was serious the GP would have scheduled an urgent appointment) decided to ring 111 who advised me to go straight to A&E where I was diagnosed and put on an insulin drip.
Currently:
I'm on Levemir as my long acting insulin and NovoRapid as my rapid acting. I've been told to take 8 units of Levemir twice a day (breakfast and bedtime) and 5 units of NovoRapid before meals. The initial advice was to eat as normal, following my meeting with the dietitian on Monday they said to aim for about 50g of carbs per meal so I don't have to vary my rapid dose. My current assumption is to just do 1 unit per 10g of carbs if I do vary my carbs in a meal but I'll learn more once I go on since courses get more information on how my blood sugar is affected by certain foods
They also have me some targets to aim for:
- Before breakfast: 5.5 - 7.5
- Before lunch: 4.5 - 7.5
- Before dinner: 4.5 - 7.5
- Before bed: 6 - 9
Currently I tend to be outside these ranges however my results recently have generally been below 10. I have had a couple of readings below these values but high enough not to experience hypo symptoms.
Since I was in hospital my eyes have changed, they're better than they were not still bag enough that staring at a monitor for work is difficult and my glasses are unusable.
I've also been tracking my foods using myfitnesspal which has been useful to try and hit my carb goals.
Questions:
• When first diagnosed would the tendency be to have your blood sugar a little high? For instance, my reading before bed last night was 6.7 however I tend to be much higher in the evenings and it comes down a fair bit so I ended up having a piece of toast with peanut butter as I'm not really sure yet how Levemir affects my blood sugar. This morning before breakfast I was 9.3 so it has gone up but not off the scale.
• I've read that it can often take about a month for eyes to revert back to how they were. It's this a gradual thing or will I wake up one day and my eyes have completely reverted back?
• How do you decide how to adjust long acting insulin?
• How did you cope with the lack of data when you were first diagnosed? I'm hoping to get a freestyle libre so I have a clearer picture of what is actually happening rather than just snapshots.
Everything is still a bit new but starting to get my head round it.
I have found it MUCH EASY to adjust my basal with split doses.It's not quite so easy with a split dose but you will find over time that you will inject different amounts in the morning and evening. The job of Basal is to balance the background glucose output from the liver.
It is early days so not surprising your HbA1C is high.Still in a bit of shock especially as my HbA1c was so far out of the normal range but since diagnosis my diet has much improved so I'm hoping that it will drop down to a less frightening level in a few months when I have the next one.
Hi All!
Thank you so much for the advise and reassurance. I'm not sure I'm quite ready for basal testing yet but it is definitely something I am keen to test once everything is more settled and I have more time to process everything. Currently the insulin seems to be controlling the blood sugar levels well although I am a little bit concerned about hypos so I'm generally a little worried if I'm on the lower end of the normal range.
Still in a bit of shock especially as my HbA1c was so far out of the normal range but since diagnosis my diet has much improved so I'm hoping that it will drop down to a less frightening level in a few months when I have the next one.
Hi,I have found it MUCH EASY to adjust my basal with split doses.
Previously, the assumption that my basal needs were the same 24 hours a day made it impossible to get the correct dose.
The flexibility of split doses makes things much easier - you just need to basal test at different times of the day.
Hi All,
I've recently been diagnosed with type 1 diabetes (awaiting antibody test results but my ketones were 7.3 when I went to A&E and I am 29 and not overweight so the diabetes team are pretty sure it's type 1) following a stay at the hospital and a HbA1c of 171mmol/mol.
My diagnosis story:
I've had symptoms of being overly thirsty and weight loss for a few months, it came after 8 months of me doing at least 100km on a stationery bike each week so I naively assumed that it was a delayed affect of that after I stopped cycling as much in June.
I eventually called the GP and the clinical pharmacist sent me for a blood test on Thursday 23rd Sep, they results came back the same day however no appointment was booked until Monday 27th Sep although I later found out there was a note saying to book a appointment within 48 hours. I'm the meantime my parents and I bought a blood glucose machine where I consistently tested >20 mmol/L. So my family got my to call (I was fairly reluctant at the time labouring under the assumption if it was serious the GP would have scheduled an urgent appointment) decided to ring 111 who advised me to go straight to A&E where I was diagnosed and put on an insulin drip.
Currently:
I'm on Levemir as my long acting insulin and NovoRapid as my rapid acting. I've been told to take 8 units of Levemir twice a day (breakfast and bedtime) and 5 units of NovoRapid before meals. The initial advice was to eat as normal, following my meeting with the dietitian on Monday they said to aim for about 50g of carbs per meal so I don't have to vary my rapid dose. My current assumption is to just do 1 unit per 10g of carbs if I do vary my carbs in a meal but I'll learn more once I go on since courses get more information on how my blood sugar is affected by certain foods
They also have me some targets to aim for:
- Before breakfast: 5.5 - 7.5
- Before lunch: 4.5 - 7.5
- Before dinner: 4.5 - 7.5
- Before bed: 6 - 9
Currently I tend to be outside these ranges however my results recently have generally been below 10. I have had a couple of readings below these values but high enough not to experience hypo symptoms.
Since I was in hospital my eyes have changed, they're better than they were not still bag enough that staring at a monitor for work is difficult and my glasses are unusable.
I've also been tracking my foods using myfitnesspal which has been useful to try and hit my carb goals.
Questions:
• When first diagnosed would the tendency be to have your blood sugar a little high? For instance, my reading before bed last night was 6.7 however I tend to be much higher in the evenings and it comes down a fair bit so I ended up having a piece of toast with peanut butter as I'm not really sure yet how Levemir affects my blood sugar. This morning before breakfast I was 9.3 so it has gone up but not off the scale.
• I've read that it can often take about a month for eyes to revert back to how they were. It's this a gradual thing or will I wake up one day and my eyes have completely reverted back?
• How do you decide how to adjust long acting insulin?
• How did you cope with the lack of data when you were first diagnosed? I'm hoping to get a freestyle libre so I have a clearer picture of what is actually happening rather than just snapshots.
Everything is still a bit new but starting to get my head round it.
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