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<blockquote data-quote="electrolyte" data-source="post: 2762661" data-attributes="member: 598486"><p>I've been having symptoms of reactive hypoglycaemia since I was a child, with various horrible experiences trying to get answers, but lately I've felt ready to try again. I'm on a very long NHS waiting list, but I do have a small insurance policy that will pay for consultations so I've got an appointment in the first week of June to try and get it officially written down at last! </p><p></p><p>One of my specialists for another of my conditions has suggested a CGM might help me out - it's impossible to spot a hypo starting when I'm having so many other symptoms all at once, but if my phone could let me know <em>before</em> I slam into a wall then I'd have much more of a chance. The flare-ups of said condition (MCAS) tend to hit my stomach the hardest, too, both <em>causing</em> a hypo and <em>worsening</em> the effects of it, since my body is basically empty afterwards. I also just can't always spot a normal hypo getting started because "I feel a bit shaky/weak" could be one of my other conditions needing attention.</p><p></p><p>Anyway, all in all, it seems best to try again at a diagnosis. A previous specialist did rule out diabetes, but I learned in my appointment with the nurse to get this referral that he'd written to my GP blaming my "small build" for all my symptoms. Genetically, I have a very small frame, and I was an athlete. I'm absolutely furious as I think that's what stopped me getting any further with the diagnosis in 2016! Well, it's been left untreated for so long that I'm now 60lbs heavier than when I saw him, so at least no one can blame my weight this time...</p><p></p><p>In the meantime, now that I finally know most of my dietary requirements & restrictions with MCAS (which has decided not to follow the rules, I guess), I'm going to make sure my diet is as mathematically perfect as possible and I'll also be testing a CGM for the two weeks leading to the appointment (my wallet says ouch) to be able to say "yes it would help" or "I don't need this after all".</p></blockquote><p></p>
[QUOTE="electrolyte, post: 2762661, member: 598486"] I've been having symptoms of reactive hypoglycaemia since I was a child, with various horrible experiences trying to get answers, but lately I've felt ready to try again. I'm on a very long NHS waiting list, but I do have a small insurance policy that will pay for consultations so I've got an appointment in the first week of June to try and get it officially written down at last! One of my specialists for another of my conditions has suggested a CGM might help me out - it's impossible to spot a hypo starting when I'm having so many other symptoms all at once, but if my phone could let me know [I]before[/I] I slam into a wall then I'd have much more of a chance. The flare-ups of said condition (MCAS) tend to hit my stomach the hardest, too, both [I]causing[/I] a hypo and [I]worsening[/I] the effects of it, since my body is basically empty afterwards. I also just can't always spot a normal hypo getting started because "I feel a bit shaky/weak" could be one of my other conditions needing attention. Anyway, all in all, it seems best to try again at a diagnosis. A previous specialist did rule out diabetes, but I learned in my appointment with the nurse to get this referral that he'd written to my GP blaming my "small build" for all my symptoms. Genetically, I have a very small frame, and I was an athlete. I'm absolutely furious as I think that's what stopped me getting any further with the diagnosis in 2016![I] [/I]Well, it's been left untreated for so long that I'm now 60lbs heavier than when I saw him, so at least no one can blame my weight this time... In the meantime, now that I finally know most of my dietary requirements & restrictions with MCAS (which has decided not to follow the rules, I guess), I'm going to make sure my diet is as mathematically perfect as possible and I'll also be testing a CGM for the two weeks leading to the appointment (my wallet says ouch) to be able to say "yes it would help" or "I don't need this after all".[I][/I] [/QUOTE]
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