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Help - Highest reading yet!!!!

Hi Krazus, I was told self testing is a waste of time, eat porridge "best thing I could east", pasta was ok. It is very confusing, I think that is the worst thing, I personally feel out of control. I am experimenting for a very low carb to see if it makes any difference. Just tested again and now @ 15.0 after no carb lunch How are your levels?
 
I dont know to be honest. I have not done any self tests yet. I am due to see the diabetes nurse tomorrow and will then make up my mind from there, I am hoping I get one who is a bit more open to suggestion and other peoples experiences.

I think no matter what I will get a self testing device.

My doc told me the HBA1c test that confirmed the diagnosis was at 95% as opposed to 40 - 50% for average person. Im not sure how that equates to the figures people are quoting on here, as they all seem to be between 5 and 20 something? (Dont know what units they are using).

My colesterol was 7.4... something (No units again), but was told it should be about 4 or 5...

This is one of the things I will be asking about tomorrow.
:thumbup:
 
Welcome Joanne, I am also very new too, but one thing I am beginning to learn is that everyone is different. As I have said before my levels of extremely high so I am experimenting, have always eaten porridge as love and thought it was a healthy breakfast but if it is that keeping levels high then will have to go without. I am trying high protein, scrambled eggs are good, but miss my toast. Oh dear not doing very well am i
 
My first HBa1C was 66, my second 2 months later after taking medication was 111! I have a book here that says 32 is the highest reading acceptable.

Within a month of being diagnosed I have lost a LOT of my eye sight and having problems with my legs neuropathy.

OK they have changed my meds and I now have readings over the last week of between 3.9 - 8.4, all very acceptable.

I have to say though, having listened to the guys on here who have the experience, I have reduced my carbs to perhaps 30 - 40 a day. Major life changing stuff. No bread, no potatoes, no rice was just the start. That has, in my mind, made a massive difference as I have now stopped taking gliclazide.
 
cheers guys,the day i got tested(had gone in to see gp as i thought i had kidney infetion) my reading was 22.3 its levelled down to 10-15 which of course is still too high,see i was told bread was ok to have and to use brown rice but i just cant stand the taste & twxture of brown rice,and of cousre to have porridge for brekkie! on way to holiday we stopped off at mc`ds and i had a breakfast wrap and 2 hours after my reading was 8 the lowest its ever been! so maybe the porridge really isnt the best to have :( i will try the scrambled egg xxx
 
orchidlady
TYou've been fooled by the government's nonsense about "Healthy Diet". For diabetics, low fat/ high carb diets don't work and cereals are far from healthy.
I loathe porridge myself, but I cannot keep control of my blood glucose if i eat anything grain based. You hneed to eat a low carb/high fat diet to control blood sugar. That means wsomething like Atkins
Hana
 
hanadr said:
orchidlady
TYou've been fooled by the government's nonsense about "Healthy Diet". For diabetics, low fat/ high carb diets don't work and cereals are far from healthy.
I loathe porridge myself, but I cannot keep control of my blood glucose if i eat anything grain based. You hneed to eat a low carb/high fat diet to control blood sugar. That means wsomething like Atkins
Hana
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I think what you actually mean Hana is that you cannot control your blood sugars without this approach. This is not true for everyone else so please do not lump us all together. I have found that moderation is the key to my control.
 
orchidlady said:
Morning all, so today I am really really low carbing to see if I can bring these levels down. Have had Scrambled eggs and Mushrooms this morning (yuk)and will test in a couple of hours to see the difference versus porridge. Probably a stupid question but if I eat anything for a snack should I then wait another 2 hours. I prefer to graze rather than eat big meals. Was thinking sugar free yoghurt or handful of nuts maybe a pear. Rubbish fasting reading of 16.1 this morning, had roast chicken, loads of green beans and brocolli, NO potatoes, not 1
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Remember what I and others told you on your Metformin thread. From the description you gave us you do not necessarily meet the classic T2 criteria. It's great you have started to do low carb but find it isn't making any real kind of difference after around a week you need to go back to the docs and get him to investigate further. If he wont then I'd ask to be referred to your local diabetes clinic.

Good luck!
 
Thanks Xyzzy, I think you were one of people suggesting I give this go, how long realistically should one see a change if following a very low carb diet? You probably saw yesterday got to 21.4 yesterday and not eating anything crazy, so bit worried really
 
orchidlady said:
Thanks Xyzzy, I think you were one of people suggesting I give this go, how long realistically should one see a change if following a very low carb diet? You probably saw yesterday got to 21.4 yesterday and not eating anything crazy, so bit worried really
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I am assuming posters here think you may be T1.5 LADA. If I were you I would try very low carb for a couple of weeks, if you see no or little change very low carbing, then I would go back to the GP. I wouldn't go longer than that incase you are LADA and in need of insulin. A couple of weeks probably won't do any harm, longer might, although I know very little about T1.5.

Take care.
 
Entirely agree with Defren. If low carbing does nothing after say a couple of weeks you need to investigate the possibility of Late Onset or T I. 5
 
orchidlady said:
I thought I was doing the right thing eating porridge :o(
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So did I Orchidlady ... until I bought myself a meter and started testing. What a surprise! I thought potatoes were fine too ... discovered even a couple of tablespoons sent my BS up to 13 very rapidly and didn't come down below 10 after 2 hours. Same with rice and pasta - so I now I don't buy them so I don't have them in the house so I don't eat them. Same goes for milk for me, it's carby.

However, the bonus is that I can eat without restriction - meat, fish, eggs, cheese, above the ground veggies and a bit of fruit. I use butter, cream, almond milk and I occasionally eat some low carb crackers - 3.5g each. I've NEVER felt hungry since I increased my fat intake and stopped eating carbs and my tum has never been happier or calmer. :)

And I love this website - http://www.dietdoctor.com/lchf :D
 
Blimey Grace well done you, you seem to have things under control very quickly, is right you were only diagnosed in Aug 2012? Seems like most people have been put on Metformin since day 1 and with a lot lower levels than me. Maybe I am trying to tackle too much
 
joanne-77 said:
cheers guys,the day i got tested(had gone in to see gp as i thought i had kidney infetion) my reading was 22.3 its levelled down to 10-15 which of course is still too high,see i was told bread was ok to have and to use brown rice but i just cant stand the taste & twxture of brown rice,and of cousre to have porridge for brekkie! on way to holiday we stopped off at mc`ds and i had a breakfast wrap and 2 hours after my reading was 8 the lowest its ever been! so maybe the porridge really isnt the best to have :( i will try the scrambled egg xxx
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I spoke to my GP today and he has removed gliclazide from my meds as it is well under control now with 4 metformin and 1 sitaglitin :mrgreen: Before I was off the scale on the meter for 6 weeks. They actually thought I may be type 1. All my readings on the meter were mid to high 20's or off the scale entirely.

There are still medical issues that have not been addressed or diagnosed but at least my meds are now working. That with a low card diet and I am beating it :)

Like you I got all the **** about the healthy eating plate etc and asked my GP about it today and he agrees, it is utter tosh and the NHS is so slow to change it can actually be a danger. Our diabetes clinic still says carbs are fine in moderation. In my mind, I believe they are now speaking utter rubbish.
 
AllyS said:
joanne-77 said:
cheers guys,the day i got tested(had gone in to see gp as i thought i had kidney infetion) my reading was 22.3 its levelled down to 10-15 which of course is still too high,see i was told bread was ok to have and to use brown rice but i just cant stand the taste & twxture of brown rice,and of cousre to have porridge for brekkie! on way to holiday we stopped off at mc`ds and i had a breakfast wrap and 2 hours after my reading was 8 the lowest its ever been! so maybe the porridge really isnt the best to have :( i will try the scrambled egg xxx
Click to expand...
I spoke to my GP today and he has removed gliclazide from my meds as it is well under control now with 4 metformin and 1 sitaglitin :mrgreen: Before I was off the scale on the meter for 6 weeks. They actually thought I may be type 1. All my readings on the meter were mid to high 20's or off the scale entirely.

There are still medical issues that have not been addressed or diagnosed but at least my meds are now working. That with a low card diet and I am beating it :)

Like you I got all the **** about the healthy eating plate etc and asked my GP about it today and he agrees, it is utter tosh and the NHS is so slow to change it can actually be a danger. Our diabetes clinic still says carbs are fine in moderation. In my mind, I believe they are now speaking utter rubbish.
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Brilliant news Ally bl**dy well done you :clap: :clap: :clap: :clap:
 
xyzzy said:
AllyS said:
joanne-77 said:
cheers guys,the day i got tested(had gone in to see gp as i thought i had kidney infetion) my reading was 22.3 its levelled down to 10-15 which of course is still too high,see i was told bread was ok to have and to use brown rice but i just cant stand the taste & twxture of brown rice,and of cousre to have porridge for brekkie! on way to holiday we stopped off at mc`ds and i had a breakfast wrap and 2 hours after my reading was 8 the lowest its ever been! so maybe the porridge really isnt the best to have :( i will try the scrambled egg xxx
Click to expand...
I spoke to my GP today and he has removed gliclazide from my meds as it is well under control now with 4 metformin and 1 sitaglitin :mrgreen: Before I was off the scale on the meter for 6 weeks. They actually thought I may be type 1. All my readings on the meter were mid to high 20's or off the scale entirely.

There are still medical issues that have not been addressed or diagnosed but at least my meds are now working. That with a low card diet and I am beating it :)

Like you I got all the **** about the healthy eating plate etc and asked my GP about it today and he agrees, it is utter tosh and the NHS is so slow to change it can actually be a danger. Our diabetes clinic still says carbs are fine in moderation. In my mind, I believe they are now speaking utter rubbish.
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Thanks :) Well chuffed with myself at managing. Having said that had a blow out last night and went to the pub :roll: then find out have a business meeting tonight, guess where ..... yep the pub! I think diet coke tonight ;)
Brilliant news Ally bl**dy well done you :clap: :clap: :clap: :clap:
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orchidlady said:
Blimey Grace well done you, you seem to have things under control very quickly, is right you were only diagnosed in Aug 2012? Seems like most people have been put on Metformin since day 1 and with a lot lower levels than me. Maybe I am trying to tackle too much
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Yes, I was diagnosed on 8 August 2012 and put on Metformin 500mg a day for week 1, 100mg week 2, 1500mg week 3 and then I went onto Metformin SR 1000mg a day for a week then it was upped to Metformin SR 2000mg a day. In the meantime, I did a crash course in Diabetes by logging onto the forum every day and reading everything in sight. I listened to the 'Pro's' on here and without that I'd still be floundering because the NHS advice was - 'Here's a booklet, here's the tablets, see you in 3 months.'

But to be honest I think that was a blessing because had they pushed more of their dud info at me, I'd probably have followed that and not bothered to find this forum. So maybe the NHS clinicians realise their advice isn't up to scratch and so silence is the best policy. :roll:

I must be doing something right because yesterday I went swimming, then to Tescos and for a walk in the park afterwards. Today, I've been to the hairdressers, shopping for a pair of trainers to go walking in, I've hoovered and cleaned my living room, rearranged my bedroom and put 6 bin bags of rubbish out for the collectors tomorrow. Not bad on a few Morrison's crackers and cottage cheese and a plate of steak and kidney and carrot and swede!!!

So the money I was thinking of lashing out on my funeral plan two months ago because I felt so awful, will be spent on a holiday instead! :D
 
Morning all, had a virtual carb free day yesterday and 1 hour very strenous pilates class last night, was really expecting to see a change, just a a little would have been nice, was 16.1 this morning, will keep going though. On a positive note was really racking my brains about a low carb breakfast, just can not face meat, cheese or eggs. just had Greek yoghurt topped with warmed summer berries, yum and only 12 carbs. Only side effect I seem to have right now is my mood, very tearful (very unlike me)and irritable. Probably feeling sorry for myself, not get much RL support at the mo.
 
orchidlady said:
Morning all, had a virtual carb free day yesterday and 1 hour very strenous pilates class last night, was really expecting to see a change, just a a little would have been nice, was 16.1 this morning, will keep going though. On a positive note was really racking my brains about a low carb breakfast, just can not face meat, cheese or eggs. just had Greek yoghurt topped with warmed summer berries, yum and only 12 carbs. Only side effect I seem to have right now is my mood, very tearful (very unlike me)and irritable. Probably feeling sorry for myself, not get much RL support at the mo.
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I have found I am always a lot higher first thing. Take your pills and you should see a drop a few hours later?

I am always now around 6.8 - 7.4 regardless of what I have had the day before. I was bad last night and ended up slightly tipsy from 8 bottles of cider (i rarely drink). I measured before bed, WOW WOW! 20.4! I get up, 7.4 ;)

I now think eating has more to do with it than taking pills? My GP has even intimated that he would suggest removing pills as I get this more and more under control :)
 
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