Hello everyone,
preamble: I'm new here and I really need your help and advice. I am not a diabetic, but I've been run ragged by endocrinologists for the last 3 years becuase of my symptoms. I am known to have highish insulin levels and lowish blood sugar levels (nothing "serious", I never normally get lower than 3.5 mmol/L), but I have classic signs of neuroglycopena (the neurological symptoms of hypoglycemia), made worse 1 hour after eating. I have been tested for an insulinoma (benign tumor on the pancreas), and results are somewhat inconclusive but not "normal" :? .
The consultant is now saying my symptoms are nothing to do with my sugar levels because he says they are not the symptoms of hypoglycemia, and they will not test the level of insulin in my blood (it being an expensive test) till my sugar levels drop to their cut-off score of 2.9 mmol/L. I say I'm getting hypo symptoms at 4.2 mmol/L, they say impossible, I say it is affecting my ability to do my job, I know it's sugar/insulin related, they say no! I say they do not have the evidence to make their conclusion.
the facts: I have too much insulin hanging around when I being forced to starve and my sugars drop lower than a "normal person's" on a starvation test, I also have a "reactive" element where my sugars drop after food (sometimes less than an hour after food). They say it is not hypoglycemia because my symptoms come on real strong when sugars can be as "high" as 4.2 mmol/L.
Questions: Dear people, can you feel hypo with sugars of 4.2mmol/L? If you do, are your symptoms like mine: blurring of vision, slurring of speech, inability to walk in a straight line, extreme tiredness, "zoning out", burning sensation in feet, inability to react quickly to anything.
I'm sorry for the waffle, but I'm sure some of you have expert knowledge of hypoglycemia and I thank you in advance for any experiential evidence you can give me,
best wishes,
Gillian
preamble: I'm new here and I really need your help and advice. I am not a diabetic, but I've been run ragged by endocrinologists for the last 3 years becuase of my symptoms. I am known to have highish insulin levels and lowish blood sugar levels (nothing "serious", I never normally get lower than 3.5 mmol/L), but I have classic signs of neuroglycopena (the neurological symptoms of hypoglycemia), made worse 1 hour after eating. I have been tested for an insulinoma (benign tumor on the pancreas), and results are somewhat inconclusive but not "normal" :? .
The consultant is now saying my symptoms are nothing to do with my sugar levels because he says they are not the symptoms of hypoglycemia, and they will not test the level of insulin in my blood (it being an expensive test) till my sugar levels drop to their cut-off score of 2.9 mmol/L. I say I'm getting hypo symptoms at 4.2 mmol/L, they say impossible, I say it is affecting my ability to do my job, I know it's sugar/insulin related, they say no! I say they do not have the evidence to make their conclusion.
the facts: I have too much insulin hanging around when I being forced to starve and my sugars drop lower than a "normal person's" on a starvation test, I also have a "reactive" element where my sugars drop after food (sometimes less than an hour after food). They say it is not hypoglycemia because my symptoms come on real strong when sugars can be as "high" as 4.2 mmol/L.
Questions: Dear people, can you feel hypo with sugars of 4.2mmol/L? If you do, are your symptoms like mine: blurring of vision, slurring of speech, inability to walk in a straight line, extreme tiredness, "zoning out", burning sensation in feet, inability to react quickly to anything.
I'm sorry for the waffle, but I'm sure some of you have expert knowledge of hypoglycemia and I thank you in advance for any experiential evidence you can give me,
best wishes,
Gillian
