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Hi

H

Hazza

Well-Known Member
Hi all, I'm Harry and my wife is Liz, my daughter, Lily, was diagnosed with type 1 diabetes on 2nd June this year. She is 7 and is finding it really tough. It was a hell of a shock as she has never been ill in her life and is as fit as a fiddle.
She is doing ok at the moment and does her own blood testing and has done her injections for a time but refuses to do them now (we don't push her and never would) after getting a couple of blunt needles which hurt. Her mum and me get blunt needles too now and then and she cries which breaks your heart.
She knows that it is for life and that she will need insulin all the time but she hates it and wants a pump for Christmas. The doctor has said that a pump would be a good thing but not untill we are fully aware and able to control with MDI, which I can see the logic in. Her mumbers are all over the place right now and have gone from 3.4 to 26.5 in the same day. I'm sure that we are counting the carbs right as we were getting good results only a couple of weeks ago. I think that maybe her ratios are changing and the honeymoon may be over.
The diabetic team are fantastic and are always on the end of the phone, we could't get better care so a great big thankyou to them.
I have been looking at the forum for some time and have found loads of usefull advice, but I thought that it was time to join and introduce ourselves.
Thanks for listening
Harry
 
Hello and welcome to the Forum!

Have to say I've found it extremely valuable.

Sorry to hear about your daughter. A friend of mine had a very similar experience with her 7-year old son and he was helped a lot by a few hypnotherapy sessions believe it or not. It was something called solution focused hypnotherapy which got him to visualise being happy whilst injecting himself - worked a treat. Not everyone's cup of tea I know but if you're careful with who you go to then it could be an option to consider?

Hope it works out well.

Griffy.
 
Hello,

There are quite a few parents on the forum for those of us living vicariously as diabetic.

My son was too young diagnosed to know what had happened to him and it is his 3 year anniversary tomorrow - WOW! I can't imagine it is easy for a 7 yr old to be diagnosed and worse for those in the teenage years. Somehow we manage to make diabetes work in with life but sometimes it does get the better of us.

Crazy levels are pretty common in kids. Khaleb has been pretty ill all through winter (we are in Australia) and I've been tearing my hair out but he's really stable now. I have no idea why you'd want to be settled with MDI before going on a pump. I can't see the logic at all. I would think if you want a pump you should do it asap. Why wait? Being stable on MDI wouldn't help much in changing over to a pump. Plenty of kids/adult are going straight to pump here now.

I hope Lily can cope okay over time. Diabetes does just become another member of the family - the least well behaved one.

Twisting needles slightly as you insert them seems to make them hurt less rather that just pushing straight in. Don't know if other people do this?

JDRF can be good in getting you in contact with other people the same age as your daughter and camps are fantastic.
 
Hi Harry & Liz and welcome to this forum. I too have a 7 year old daughter with type 1, so I know how hard it can be. I am sure you will find this site invaluable as there are plenty of parents in the same situation who can offer advice, support or simply a shoulder to cry on.

It is still early days for you and I'm sure things will get better. It sounds like she is going through the honeymoon period which at times can be challenging as their requirements are contantly changing. Keep carb counting and working out the ratios as this does help to keep better control.

Leggott.
 
Thanks all for the welcome, we are still learning the basics but are getting there.
I have never thought of hypnosis to help her but it may be worth thinking about.
The doctor wants us to learn to count carbs and use correction doses as needed rather than rely on a pump/meter to work it out for us so that we have a good knowledge of what affects Lily and what measures to take to correct it. They have had more success with pumps once a good basic grounding has been gained. There is no question that we will not get one, it is just a case of biding our time.

Harry
 
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