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High GAD level on diagniosis

Discussion in 'Newly Diagnosed' started by Lynn D, Dec 28, 2020.

  1. Lynn D

    Lynn D · Newbie

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    I have, earlier this month, been diagnosed with Type 1 diabetes. I am very concerned about my GAD levels. My level was 2000 on the blood tests which I had which diagnosed my diabetes, which I understand is very high. Is this normal, or should I be concerned that I might also have something more sinister (i.e. SPS - Stiff Person Syndrome)? I have no particular symptoms of SPS but have read on the Internet that a high GAD level is indicative of this syndrome. I have not got an appointment re. the diabetes until February and don't want to have to wait until then to find out whether I have more to worry about than just the Type 1. I would be grateful for any information.
     
  2. urbanracer

    urbanracer Type 1 · Moderator
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    Hi @Lynn D and welcome to the forums.

    Never heard of SPS before and having just looked it up it seems pretty rare.

    Did the 2000 number come with any units? I ask because 2000 IU/ml is normally the top level of the 'assay range' for the test so it may not mean that this is your level. I didn't even get a number, I was just told that I was 'strongly positive'.

    Please call your GP or the surgery's diabetes nurse if you are worried as we shouldn't really be providing medical opinions on these forums.
     
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  3. Circuspony

    Circuspony Type 1 · Well-Known Member

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    I can't find the email for the exact figure but my GAD result was high and I'm 'just' type 1.

    Very frustrating you have to wait until Feb but for now I wouldn't worry about anything but the T1 and concentrate on managing that.
     
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  4. Lynn D

    Lynn D · Newbie

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    Thank you for your reply.
     
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