Honeymoon period

ElyDave said:

The OP is not middle aged, she's an early 20's diagnosis so hardly middle aged. From reading, MODY is largely genetic, but poorly understood, and manifests by mid 20's so that could be the case. What is not clear to me is if it is a random mutation, or inherited.

WHat about LADA? Low insulin needs.

Or just plain type 1?

I don't know about you but I'm not competent to diagnose it

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As long as were competent to manage our bloods

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ElyDave said:

The OP is not middle aged, she's an early 20's diagnosis so hardly middle aged. From reading, MODY is largely genetic, but poorly understood, and manifests by mid 20's so that could be the case. What is not clear to me is if it is a random mutation, or inherited.

WHat about LADA? Low insulin needs.

Or just plain type 1?

I don't know about you but I'm not competent to diagnose it

Click to expand...

To diagnose MODY you have to test for every one of the eleven genes know to cause the eleven different varieties of MODY but there may be more of them, hitherto unknown so to confirm MODY is tricky. As many of the varieties of MODY have mild expressions they might not cause any troubles before you reach middle age.

What can be tested are insulin levels from C-peptide, as this shows you own insulin production, should you have one.

Antibodies can show if there is an autoimmune attack on your pancreas.

Most evidence seems to be circumstantial as to the cause of high bg.

hale710 said:

I work with a man who is MODY. He takes basal only. He claims to watch his carbs, but he eats more cake than I do....

I can't remember who said it, but I'm much of the opinion of it not mattering REALLY on type. Unless they find a cure for one type, then I want to know haha provided the endo has provided a level of care and treatment to suit my symptoms I'm not overly fussed.

I could be LADA, but I definitely am not T2. I don't understand enough about MODY, or any of the others, to diagnose myself.

If could then why did my doctor go to medical school

Enjoying hearing the differences in honeymoon experiences!


Blogging at drivendiabetic.wordpress.com

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You'll be on a better honeymoon soon ;-)


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I think they know so little about LADA that they use LADA and Type 1 interchangeably - which most of us with LADA do at times as well. I was diagnosed LADA but my category on my records is type 1. The thing is, they don't seem to know whether LADA really does ever become Type 1 or whether they are still different even when the LADA pancreas function has diminished. Given how little they know, the treatment is the same once LADAs are on insulin, so it's more important to know at diagnosis than later on I guess. Having said that, the prognosis is a bit different - LADA progresses over several years whereas Type 1 is much quicker and i think that's useful to know to help plan your life! I guess time will tell for you - if you're still pretty much in your honeymoon period in 6 months time I'd say you've probably ruled out full Type 1.

I strongly suspect that you are actually LADA Hale, but to be honest even if you were to come off the insulin you are only delaying the inevitable. If on the other hand you did turn out to be MODY, some of the genetic variants of MODY never need to use insulin and sulphoylureas treat it better - if by any chance you have one of those variants you might be able to permanently resume your off-shore career. I don't really know enough about MODY to know whether that's likely for you though.

Incidentally, I don't think your random BG at diagnosis differentiates Type 1 and LADA in any way - I frequently hit the mid 20s with the post prandial spikes before finally getting the LADA diagnosis and going onto insulin, but my fasting and HbA1c was still quite good at that stage as i had enough insulin production to bring the BG back to relatively normal within 3 hours or so - just no first phase.

Smidge