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Honeymoon period

I had a cliff at diagnosis which after about two weeks, I had loads of hypos resulting in needing very little insulin to the extent of no basal and very low bolus. Very gradually my levels began getting slightly higher, so I gradually increased the insulin alongside. Would settle for a few months,add a bit more. Now settled (currently) on 9 units basal, and bolus 1\10 breakfast, 1/15 lunch, 1/10 tea. So, because I don't low carb, having much more bolus compared to basal, roughly 30 units bolus so a 70\30 split. I do think I am still producing some of my own basal. since diagnosis nearly 3 years ago as when initially diagnosed needed 18 units basal, which was the lowest starting point for me based on age/height/weight by the hospital. Would it matter if a test confirmed I was, not really.

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Yesterday I did some reading on the relatively rare diabetes form called MODY. It seems to me some of you on this thread might benefit from doing the same. Any relatives with diabetes?
 
I have a T1 cousin. She had the cliff moment aged 11. 3 week rapid decline then hospitalised with DKA. VERY different to my diagnosis lol


Blogging at drivendiabetic.wordpress.com
 
noblehead said:
I'd imagine the suggestion had good intentions behind it hale.

Appreciate your frustration not being able to go off-shore but first and foremost your health must come first, is it a blanket ban on type 1's working off-shore or are there companies that allow insulin users to work provided they pass a strict medical test?
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They definitely have good intentions, I just thought I'd see what dcuk had to say on the matter :)

No blanket ban, not even a company wide ban. Just for me. It's purely my graduate status and the fact there are "other options" that is preventing it


Blogging at drivendiabetic.wordpress.com
 
hale710 said:
They definitely have good intentions, I just thought I'd see what dcuk had to say on the matter :)

No blanket ban, not even a company wide ban. Just for me. It's purely my graduate status and the fact there are "other options" that is preventing it
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I see, well I do hope you manage to convince them otherwise and you get posted off-shore soon :)
 
Totto said:
Yesterday I did some reading on the relatively rare diabetes form called MODY. It seems to me some of you on this thread might benefit from doing the same. Any relatives with diabetes?
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No T1, just an aunt who developed T2, with insulin later in life (i.e. 60-70)

To be honest, does it really matter if you're calling it T1, MODY, LADA, insulin dependent diabetes, autoimmune diabetes... the outcome is the same, treatment with basal-bolus regime and possibly additional drugs.
 
ElyDave said:
No T1, just an aunt who developed T2, with insulin later in life (i.e. 60-70)

To be honest, does it really matter if you're calling it T1, MODY, LADA, insulin dependent diabetes, autoimmune diabetes... the outcome is the same, treatment with basal-bolus regime and possibly additional drugs.
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I disagree. I think you will benefit from a confirmed diagnosis of what type. Basically, are you insulin resistant from the start or do you lack insulin production and if so, to what degree.
 
Totto said:
I disagree. I think you will benefit from a confirmed diagnosis of what type. Basically, are you insulin resistant from the start or do you lack insulin production and if so, to what degree.
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If I was insulin resistant, then eating what I eat and injecting the insulin to cover it would surely lead to weight gain. I did ask the question regarding my type to my consultant during the time I needed little insulin (wishful thinking) but was told 100% type 1, we ran your bloods on diagnosis and your definately type 1. what tests they ran I don't know, as I had little knowledge about everything back then.

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brett said:
If I was insulin resistant, then eating what I eat and injecting the insulin to cover it would surely lead to weight gain. I did ask the question regarding my type to my consultant during the time I needed little insulin (wishful thinking) but was told 100% type 1, we ran your bloods on diagnosis and your definately type 1. what tests they ran I don't know, as I had little knowledge about everything back then.

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Exactly. You need to know why you are diabetic. As does your Dr. The treatment varies a lot for different kinds.
 
brett said:
If I was insulin resistant, then eating what I eat and injecting the insulin to cover it would surely lead to weight gain. I did ask the question regarding my type to my consultant during the time I needed little insulin (wishful thinking) but was told 100% type 1, we ran your bloods on diagnosis and your definately type 1. what tests they ran I don't know, as I had little knowledge about everything back then.

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Same here, I was told definitely T1 based on symptoms and also told positive antibodies I think, but I wasn't listening that closely at that point
 
Totto said:
Exactly. You need to know why you are diabetic. As does your Dr. The treatment varies a lot for different kinds.
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My consultant does so I know I'm type 1. My treatment would be the same regardless as without basal my bloods go up and without qa my bloods go up. I'm slightly underweight, fit, active what would be different?

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I agree it doesn't really matter what they call it but I wish I knew more regarding tests etc. I know I was positive for GAD but unsure of other tests or results. I actually think the docs are not all that clued up on various types and many seem happy to stick with T1 and T2.


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S
brett said:
My consultant does so I know I'm type 1. My treatment would be the same regardless as without basal my bloods go up and without qa my bloods go up. I'm slightly underweight, fit, active what would be different?

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Are you the OP of this thread? Let us get back to the topic.

Glad you have a proper diagnosis Brett! Not all of us have, you know.
 
Totto said:
S

Are you the OP of this thread? Let us get back to the topic.

Glad you have a proper diagnosis Brett! Not all of us have, you know.
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Um, I was only replying to your comments after I had replied to op. Sorry your obviously upset you don't feel you got a proper diagnosis, not my fault!!!
think the topic was regarding honeymoon period of type 1s, which I am and said I think im still in earlier on.

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brett said:
Um, I was only replying to your comments after I had replied to op. Sorry your obviously upset you don't feel you got a proper diagnosis, not my fault!!!
think the topic was regarding honeymoon period of type 1s, which I am and said I think im still in earlier on.

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How easy misunderstandings occur. I try to help on OPs question. Good to hear honeymoon can last though. I myself haven't a clue what type I am or what to expect so will discuss that in other threads. .
 
Totto said:
How easy misunderstandings occur. I try to help on OPs question. Good to hear honeymoon can last though. I myself haven't a clue what type I am or what to expect so will discuss that in other threads. .
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How were you diagnosed Totto ? Sorry, not being nosey, just wondered why you haven't been given more info.


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Oh,diagnosed by OGTT last week and I was shocked. I have posted on the diagnosis, last week, and my concerns about heredity today. I have known for some time there was something funny with the recent and randomly picked up pp readings but my fg are all in the clear.

I suspect I have MODY and OP might as well, seems to be vastly under-diagnosed. There is more to middle age diabetes than you would think.
 
I agree, I think there is a big percentage of misdiagnosed out there who are MODY ! It seems the docs have no interest really, T1, T2, insulin or no insulin.


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The OP is not middle aged, she's an early 20's diagnosis so hardly middle aged. From reading, MODY is largely genetic, but poorly understood, and manifests by mid 20's so that could be the case. What is not clear to me is if it is a random mutation, or inherited.

WHat about LADA? Low insulin needs.

Or just plain type 1?

I don't know about you but I'm not competent to diagnose it
 
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