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Honeymooners!?

My honeymoon phase lasted several years (from min of 2003 till 2007), wasn't until 7 years ago that I got out of it and steadily rose until last year when my endro tried something else and boom the amount of insulin I needed was cut in half (turned out I wasn't insulin resistant just an allergy to gluten that was preventing my body form using things right, thus the increase in insulin and with the cutting of all gluten thus the lowering dosages needed of insulin to keep things stable - baseline insulin is still around 100 units but meal time i've gone down to a couple units with meals to a max of 10 units needed. With a1c of 9.8 down to 6.2 ...
 
Hi Type1bri.
Eek I know the feeling. Are you keeping a food / insulin / carb diary to help you check for patterns? I know it's a pain but when I finally kept a diary it helped a little.
Also, what were your carbs? It could be they are too fast or slow acting?
 
@Nyxks wow great result! Gives us hope that it can all be managed eventually (with hard work) :)
 
Hi emmotha
Yeah I keep a diary of those bits
Main carbs were potatoe and parsnip tonight!!!
 
Are you injecting before or after you eat? I forgot the other day to inject before my porridge so I did it about 30 mins later... Ended up having a hypo of 2.5. The only thing I can think of is that my pancreas spurted some insulin out because I injected too late... Who knows, just a thought... Always expect the unexpected! ;)
 
I'm 15 months following diagnosis and I have dropped from 10units of basal (levemir) to just 2 units. If I have any more than I have continuous hypos. Still in honeymoon period now but slowing coming out of it
 
type1bri have you seen a dietician yet? Do you know about the GI diet?
 
Not seem the dietician yet
Been doing a bit of research on gi values but not really done anything with it yet, any advice please??
 
It's basically about how quickly the food lasts, ie the body breaks it down more slowly therefore you have the glucose in your system longer. I've never actually tried it yet but thre dietician recommended it. You have low, medium and high GI foods.
Low breaks down much slower, and high breaks down really fast, potentially faster than the insulin is released.

Potatoes are medium so not too bad. But it might be worth trying things which are low GI such as seeded granary bread - I haven't got my book out with me today but might be worth googling low GI foods.

Also, another explanation is if there is a higher fat content it can make your food digest slower than your insulin. Do you ever notice a spike after you go low (that your corrective carbs wouldn't explain?)
 
I was dx nov 2013. Decided to go lchf straight away have been able to keep my bs to under 7.6 2 hrs after meals and generally in the 5s before meals. About 4 weeks ago I decided to start taking lantus at night. Now up to 10u . Usually wake up in the high 4s now and no hypo's so far touch wood. My body can cope with the small spikes from my diet quite well. I started the lantus to keep my baseline lower. I am a builder by trade and also go to the gym 6 days a week. I wonder if this is why I don't need to bolus.
 
Hello!

I was diagnosed 20 months ago but I'm still honeymooning. When I was on injections I was on 4u Levemir a day and took 1u per 12g carbs. I moved to a pump a few months ago and love it! It's made it easier to microdose, I'm now using 1u per 22g on average but have 7.45u of basal a day.

On MDI the 4u basal meant I was hypoing regularly. Now on the pump I have a really low dose for the afternoon and it's helped so much!
 
So frustrated. Yesterday I had a porridge pot for breakfast with 2 units and 2 hours later I was 4.3. Today I had exactly the same and 2 hours later I'm 10.4. How can this be? Grr.
 
So frustrated. Yesterday I had a porridge pot for breakfast with 2 units and 2 hours later I was 4.3. Today I had exactly the same and 2 hours later I'm 10.4. How can this be? Grr.

THAT is prime honeymoon lol I get this every day at work after lunch. I err on the side of caution and then take more insulin at 2hr mark if I need it
 
Hi Brian, I'm no expert but I've certainly had the same sort of problems you mentioned and I would definitely say that is down to your background insulin being too high. I would re assess what your on and lower it.
 
Hi all,

Type1Bri - do you have someone to call on your diabetes team about this? Its frustrating isn't it - I suppose its a case of reducing your doses and keep monitoring.

How are you coping with the hypos? I don't let myself hypo - I start to feel odd when I drop below 7 so I might have a cup of tea to keep me steady - I know this isn't where I need to be but it will take time. Do any of you honeymooners share my fear of going hypo? I dont let it happen as it scares da bejasus outta me. My consultant says that people with good control will experience 2/3 hypos a week - I don't think so! I had a few alright when I first came home from hospital but not since.

Diagnosed Type 1 four months ago and boy has it been a rollercoaster! I have noticed a change myself recently - I need less insulin for meals, and find I need a snack midway between meals but then again I start to panic if I get to 6! I have a longish commute to work so wouldn't be happy driving home before say 7/8. They gave me a ratio of to 10 to 1 but I only use this a rough guide as I my dosages seem to change all the time.

Im on 6U Lantus at night and have started to wake to readings of 5/6 which is lower than I have been. I take 2/3/4U Apidra at meals depending on what Im eating and if Im exercising afterwards. I find that I need a bit more Mon to Fri when Im working as I work in an office. At weekends I need less as Im always buzzing around.
 
... Also a fellow honeymooner - started insulin three months ago after getting away with not taking it for a while.... all in all things relatively steady - but having said that, I've changed my basal three times in those three months, so still trying to settle into things.... And yes @Starmaker123 - I do share your fear of hypos - not so much in that day as I can feel them pretty well again now - but I am still scared of them at night - despite never having had one - I'm just worried I won't know.... and as such I don't take enough nightime basal, which means I wake up in the 7's and 8's.... not ideal I know :-/

Not entirely sure how to overcome that fear - especially as I'm now on a much peakier background.... the only downside thus far though, after many with the others, so will have to figure out a way!
 
@artemis - Im ok during the day also but I dread bed time and as a result don't get a lot of sleep. I live alone with my young son which is a worry for me also. And now that my control is improving, my numbers are lower which means hypo is more likely. Strangely, even though Im tired a lot of time, Im able to keep going and manage quite well and I put this down to the insulin which is revving me up! I do get cranky tho, as my son informs me - life is hectic, my working days are long - I do hope the sleep will improve with time. I also find that since I have started on insulin, I have these weird sensations in my body which I presume is the insulin working and my blood sugars changing but I find it quite unsettling esp at night when Im still. It feels like my body is no longer mine if that makes sense - does anyone else find this?

Would you consider talking to someone ie counsellor, it might help with the anxiety? I did but unfortunately the person I met with didn't understand diabetes and told me to just inject when Im having a hypo, yikes!! BTW my consultant also said the way to overcome the fear of hypo is to have them - but easy for him to say eh.:inpain:
 
I was diagnosed a year ago as T2, then 10 months ago T1 LADA, but my hospital notes say T1 honeymoon period. 10 months ago my diabetic consultant said I would be on insulin with weeks, but through low carb high fat diet I am still insulin and medication free. Now following Dr Bernstein's solution recommendations and trying to keep blood glucose levels below 4.6 pre breakfast and 5.6 2hrs after eating, which he says can keep your panchrias insulin beta cells alive for years, thus keeping in the honeymoon period for years. I can't regularly get to 4.6 pre breakfast, averaging around 5, but have been at this level now for 4 months, so, as my diabetic consultant now says to me every time I see him, whatever you are doing is working to keep on doing it.
 
Hello. Does dr Bernstein have a book or something u follow? Interested in trying it out.


@Starmaker123 much of what u r feeling could also be stress related? It's a big thing to deal with on top of everything else.
 
Dr bernstein has written a few books on diabetes, the one I have read is called diabetes solution. You can download it on kindle or iTunes for around £5.00. A very good read. Dr Bernstein is a world-renowned advocate for diabetes care. Now 80, he developed type 1 diabetes when he was just 12... Still runs his practice in usa.
 
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